Showing posts with label joy. Show all posts
Showing posts with label joy. Show all posts

Tuesday, October 9, 2018

Disappointments

Disappointments should be nothing new to me.  I have placed my hope in others and have been let down so many times in the past that I should be used to it by now.  Things hardly ever go the way I plan them, so I try to remain spontaneous and in the moment all the time.  I had wanted to go to visit my friend Robert Miller in Ft. Lauderdale this month because he was having surgery to replace his hip.  Unfortunately, I made some choices that limited my travel options.  I can't go and surgery took place today, but he is doing well and should be on the mend soon.  Early this month I helped out a friend and used up what savings I had. But disappointment aside,  I wish I could have gone, but things just didn't work out toward that direction.  I wanted to go see my dad at the end of last month because he was in the hospital, but things conspired against me and I have run into trouble with the bank that actually occurred over Labor Day weekend.  A clerk at the local Circle K where I bought my cigarettes actually used my debit card and charged $335 dollars and the bank found that these charges were similar to my spending habits and that there were no wrong pin attempts and decided that these charges weren't fraudulent.  This has set me back over a 1000.00 in the past 2 months and has seriously hurt my ability to make ends meet let alone go anywhere on a weekend trip.

I am still battling with TD bank over the fraudulent charges that were put against my account back in July when Domeneck Lattella stole my iphone and debit card and tried to put through checks that weren't any good.  If I could recover a portion of the money that he profited from against my account I would be in a much better financial situation.  But, I am not sure what is going to happen with the bank and the decision that they had come to.  I had told my friend Judy that I wasn't planning on staying with her longer than 90 days and that time is rapidly coming to a close and without the financial help of Ryan White or the Bank reversing their decision I am sort of stuck in the living situation that I am in.

I have found a house here in the Orlando area that is $800.00 a month and it includes all the utilities.  I am excited that I was able to find the house, now I am struggling to come up with the move in money that the woman is looking for.  I am hoping that everything falls into place and that I don't have to struggle to get into the house. It will be a great feeling to finally have a place over my head again, after being homeless for so long.  I have come so far, and overcome so many hardships that it is time that something good finally falls into place.  I am hoping that in the next couple of months I would have enough saved up that I will finally be able to get another car.  In the 2 1/2 months that I have been in Orlando I have been able to clean up my act and get many of the things that I lost when I got screwed over in Jacksonville.

I know that things will eventually come out the way that they are supposed to.  I have registered with Ryan White and let them know that I am in need of housing assistance and I am hoping that someone will be in contact with me soon and will be able to help me some towards getting into this place.  It will certainly help me get into a better place and be able to stand on my own two feet again.  After being adrift since 2017 to have a home base and firm foundation will be an achievement that I can be proud of.  I thought that I was on the right track when I was in Jacksonville, but things went sideways so fast, and I ended up being on the streets again and that was extremely rough.  I don't want to put myself in that type of situation again.

It has been my history that once things start going better the rug is pulled out from under me and I fall flat on my face.  I have lost so many things over the past 20 years that these moments of achievement pale in comparison.  I am not sure what the future holds but there are many programs out there that might be able to help me get further ahead then I have been before.  I have been coasting for the past several years and just riding the ups and downs of life, and not trying to really embrace what things are happening around me any more.  I gave up on my volunteer activities because I got wrapped up in my own little world and didn't want to burden those around me with the issues that I was facing, preferring to handle them on my own.  But, the truth of the matter is that I was embarrassed, I got back involved with the drug culture of Daytona, and got sucked into the schemes and scams of those I associated with.  Before, I knew it I was back on the street doing the same things that I was doing before when Kerry left me.

Now that I am away from that crowd and the influence of drugs I can see that others have followed in my footsteps and have begun the journey toward sobriety and recovery.  Though not everything has been a disappointment and some of the gambles that I have taken have paid off, I am never the less concerned about where I am heading in the future. My direction at this point is unclear and people from my past have stopped talking to me altogether and I am not sure what that means.  Originally I was hoping that I would be back up in the Atlanta area by the beginning of the new year but that doesn't look like that is even in the picture anymore.  I have been talking to the Carol, the lady that owns the house that I am attempting to rent about doing a rent to own purchase from her.  This would be something that would give me stable roots and something that I am extremely interested in.  The truth of the matter is that I am hoping that this first year lease works out and that we get along well with the neighbors and the landlord and that opportunity is still on the table.  That would definitely be something of a plus for me going forward.  It has been a long time since I have owned my own place and it would be nice to finally have something to call my own again.  A place that would continue in my family and be a legacy I could leave to others after I am gone.

Speaking of gone, my father is still very sick and isn't doing all that well with his treatments, which is also a disappointment to me.  I don't know what I am going to do if both of my parents pass away, both seem to be going through their own series of medical issues and at the age of 70 they may not be around much longer, and I can't keep depending on them like I used too. This means that I have little time to get my stuff in order and get back on my feet, because once they are gone I will not have any other support system around me.  Robert is in Fort Lauderdale and is married now and has a husband to worry about, and all my other close friends are in Atlanta or Pennsylvania, I am here in Florida on my own now.  So much has happened over the past 6 years that it is impossible for me to know how my friends in Atlanta are fairing and if they are still doing the same stuff they were doing when I left, I am not sure I want to go back into that situation. Up until 2015 I was traveling up to Atlanta fairly often and was in contact with a lot of them but over the past 3 years my health and situation has changed and I am not as capable as I was before to travel up there and get myself wrapped up in the silly games I used to play around with.

I haven't heard from Kerry or Sterling since I first got to Orlando. I don't know if the plans that Kerry and I were talking about are still on the table or if he has changed his mind and is going about doing his own thing and not included me in those plans or what. Last I heard Sterling was heading out to Washington State to help his friend who was going through some heavy medical issues.  So plans moving back to Georgia seem to be on hold indefinitely at this point.

Good news is that Dominic has gotten himself into rehab and will soon begin the program and that will benefit him in the long run.  The waiting game is the hardest part right now.  But we got him in and got him an ID, the program is supposed to help him with housing and job assistance both of which he needs for the future and will help cover some of the out of pocket expenses I am having to cover at the present time.  The only draw back at this moment is that of transportation. I don't have a car and there doesn't look like there is going to be one on the horizon any time soon.  I am hoping that our friends Nick and Justine who say they want to come to live with us in Orlando will be able to help me cover the rent and that will free my money up to help with transportation costs.

What I have discovered that with any plan there are bound to be many disappointments in life.  It seems that every venture comes with its own share of disappointments, and issues.  It is by coming through the disappointments and overcoming the issues or challenges, that we learn and grow.  We don't ever start something knowing every nuance there is about it, and unforeseen things tend to crop up at the most inopportune moments, but it by these things that we mature and grow and learn how to deal with them.  Life is full of excitement and challenges, but along with those comes the disappointments, the struggles and the of course the doubts.  Yet, the rewards for doing a job well done and the feel of accomplishment outweigh the disappointments, discomforts, and tears that we shed over them.

No one ever promised us that life was going to be easy, or free from disappointments, nor did they tell us that it would get easier the further in life you go.  No unfortunately, the challenges are going to remain the same or become greater the longer you are alive, the good thing is that the more you experience, the more you learn, the faster you grow, and the more knowledge and wisdom you obtain.  Sometimes, it might seem easier to give in to hopelessness and despair, but believe me there isn't any reward in doing such.  You will feel better about yourself, and gain more confidence and strength the harder you apply yourself to the situations you find yourself in.  Even now as I am facing an uncertain future, and my health isn't the greatest it could be, I find myself in a hopeful place, a place where I can reflect on my past and I have a clear vision of what I have accomplished, what I have survived, what I have come through, what I continue to go through and I have a better more complete understanding of the struggles that I am facing today than I did yesterday.  I have more hope today than I felt last month or even last year.  I know that if nothing changes I will be alright and I can make it, I can survive and I will.

Don't give in to your despair and doubts, know and reflect constantly on your past and what you have accomplished, achieved and come through.  In light of that the challenges of tomorrow won't seem so scary and you will be able to have more confidence in your decisions and your choices.  Think smart, stay alert and be vigilante not to succumb to the doubts, depression, and disappointments that creep up on you.  You are stronger than you give yourself credit for and you have accomplished so much and gained even more through your personal trials and struggles.  Use your story, to help others and give others the tools they need to move forward. Be a shining example of what other can be, even if you have doubts yourself.  You never know who will benefit from hearing your story and how your struggles might inspire someone else to move forward in their own life.  Life is not easy, it is tough and demanding! Every day is a struggle through grief, strive and your own personal demons, but you can come far just by believing in yourself.

One last note that I would like to share with those of you who are going through your own recovery.  Keep in mind that you will have to fight every day to overcome the urges and desires of your brain, but you can do it, you can overcome and be victorious, you have to keep going, even if you have a fall and slip up, don't give up you owe it to yourself and those that love you to keep trying and to live again.  It is hard, and doesn't get easier, but I know you have found the strength to start this journey, now all you have to do is fight to make it through. Battle everyday, fight for what you want, and keep your head held up.  There are others like you going through it and they too are struggling and you can help each other by sharing your testimony and your story for others to hear. Know that you are not alone, that I am fighting every day the same way you are and if you need me I am hear to offer you words of encouragement and guidance, pick up the phone, call, email, text, I will encourage you as much as I can. 

As always you are in my hopes and dreams,

Uncle B

Sunday, September 2, 2018

Finally Alone but not at Peace.

I am not sure how many of you remember my life, and history, but you can find it here in the pages and posts of my blog.  One of the people that used to care about me told me once that I shouldn't put all my business out there on social media for the world to see.  That I would learn better, now Reggie told me that back in 2015 and here we are 3 years later and I find myself still doing the same thing.  But here is what Mr. Williams didn't know or care to understand back then is that I am trying to redirect my personality, my desire to help other people instead of opening my home and providing everything for them like I used to do, I now use my life as an example to hopefully impart and pass on some of the lessons I have learned.  In this way I can actually reach and help more people than my feeble efforts I was attempting when I lived in Atlanta and Daytona.  It has taken me a long time to get to this point and I have been working on it since 2012 and it still isn't quite sunk into my thick skull yet.  Tonight I am reminded of something my ex-lover Sterling Williams once said to me "Bryan it really isn't you it is all the extra that comes with you!" I remember sitting at the dining room table and him saying that to my face, and at the time I didn't understand what he meant but now upon reflection I can see exactly where that was coming from and why he said it.  Guess what he was absolutely right.

Every relationship, every person I have ever dated not only had to deal with me, but also the people that I wanted to try and help along the way.  It was never just me and that one person it was me and my entourage.  Tonight, I am feeling particularly vulnerable and reminiscing about my past and what I have been through.  I am thinking about all the people that have come in and out of my life, those that I really cared about and those that just was there because I thought I was helping them and doing the right thing.  My mother even pointed out to me the other night on the phone that I have always gone the wrong way when trying to help people out.  I had a single thought in my head that if I could help one person out and get them off the streets or off the drugs then I was accomplishing something.  I ended up inviting these people into my home, providing them with security, comfort, food and shelter as well as providing cigarettes and other items.  Some people genuinely took my help, learned from me and made some remarkable changes in their lives.  Others, I ended up just enabling and helping them maintain their current lifestyle.  Problem was that the person I was involved with had to deal with these people and their using me and me doing for them and I forced them to accept it.  Not right or fair.

Here I am and my 50th birthday is approaching fast, in just a few short months I will be there and yes it is a blessing to make it this far, it has been a struggle and a near impossible feat to get here.  I have endured and survived so many illnesses and surgeries and yet I keep on chugging along.  But because of my choices that I made when I was younger, I hurt and alienated a lot of people along the way. I ended up leaving people that loved me and cared about me, for the users and abusers of the world and though I was trying to help others, and trying to spread my own kind of hope and peace in this world.  I regret the sacrifices and the people that I lost along the way.  Over the last few days I have been reaching out to some of these individuals, past relationships and ex's that had to endure and suffer through my indulgent and reckless behavior.  In away I am hoping that they will have gotten to a point in their life that they can accept my apology and forgive me for the struggle and heartache I put them through. 

2018 has been a year of learning for me, I have had to endure crisis after crisis and fend of users and abusers at every turn.  This summer was extremely hard when I got trapped by my own foolishness and was sorely taken advantage of.  I ended up losing everything that I had left.  The few things that I had been able to salvage over the past 4 years I finally lost and at the end of July I had to start over completely from scratch.  The last time I had to do that was in 2012 when my dad sent to Atlanta and brought me to Daytona because of my living situation and my health.  My doctors had feared that after my kidney surgery and all the bladder and kidney infections that I had been through that living on the streets of Atlanta would end up killing me. So when Bobby O'hara and I broke up and Robert Miller and I were bouncing from friend to friend and place to place with nothing of our own I called my dad and ended up moving to Florida.  Thanks to Linda Stapleton for driving me to the bus station or I would never have survived at all.  Unfortunately, the years haven't been all that kind to everyone, we lost Linda, Mike, and so many others along the way.  But as I am learning Death is part of Life itself and is just a gateway to another place.  I am keeping faith that it is too a much better place, where all the struggles of our past are forgotten and life of plenty is granted.

But tonight as I am writing this because it is a holiday weekend and I a sitting in my room writing in my blog, I am not out getting high with my so-called friends, or people that chose to be around me because I have money or drugs.  For the first time I am finally Alone, I don't have a boyfriend and I am not in a relationship, I am not walking up and down beachside or walking the streets of Atlanta high as hell on Meth. I am not surrounded by a bunch of people who need or want something from me. I am not sitting here worrying about how to pay the bills to keep a roof over everyones head or the power from being turned off, nor am I worrying about what everyone is going to eat tomorrow.  I am sitting here and for the first time in my entire life I am thinking about myself and what I want.  I am trying to figure out what I would like to do for my 50th birthday to make it memorable and special, and I am wondering who would even want to come and see me.  How many people really still care enough about me out there to want to spend time celebrating my milestone birthday.

I have invited one person definitely and he said that it would be cool.  I have mentioned it to several others, but the reception has been rather mellow.  Maybe I am deluding myself thinking that anyone out there still cares about me.  I wanted to invite all my ex's and see which ones come, and see if they are with anyone else and if they were happy.  Hoping against hopes that they could tell me the secret of how they finally got there because the mystery still eludes me.  I always thought that relationships and life were supposed to get easier the older we got, but surprise the joke was on me because not only do they get more complex and complicated they are fraught with new issues like declining health.  In the back of my mind I have always thought that I would get back together with one of my ex's that our story wasn't finished yet, but I am not sure anymore.  I wrote not long ago that one of the reasons that I keep looking backward was because of the level of acceptance and understanding that these men gave me when coming to grips with my illnesses and limitations, but maybe I am kidding myself, maybe there are others out there that would be willing to do the same if I just gave them the chance.  But I have been running for so long and hiding from the real me by using drugs for so long that it is hard now that I am sober to see any future for myself at all.  My best friend Robert Miller got married and him and I used to joke that when we were old and gray together that we would open Mommas Home for Homeless Homosexuals a senior gay retirement community and would chase each other around in our wheelchairs. Guess that isn't going to happen, guess I am always going to be on my own.

For the past 4 years I have been with someone who never wanted to sleep with me because he was afraid of catching HIV, I missed the intimacy and the closeness, but I settled because I thought that the companionship was enough, and I was happy getting high and taking care of everyone else in my life.  But, in truth I wasn't totally there for him, I had so many other needy people in and out of my life that I was trying to help that him and I really never had any time to ourselves or were alone.  For that I am truly sorry, and I have been for almost a year now trying to make up for the mistakes of the past that I made with him, and nothing really seems to help. He has grown more distant and withdrawn than he ever was.  I haven't heard from him in over a week and I am worried about him.  I know in his own way that he loves me, but we aren't right for each other, I want more than he is willing to give.  I want a real relationship with love, intimacy, closeness, tenderness and compassion, and I think that I deserve that in my life.

So here I am alone for once but am I at peace with myself? No, is the answer to that.  I want more out of life than what I have gotten. I really do want a true relationship, with someone who isn't afraid to tell others that I am their lover and that we are together, who doesn't mind holding me and telling me that they love me.  Like I said I have been so used to being surrounded by others and taking care of so many other people that I honestly don't know how to take care of myself at all.  The one person who ever treated me like how I wanted was the person I treated the worst his name was Sterling Williams and he is the person I told our story wasn't finished yet.  I don't know if we will ever get back together, but he is the only person that I was ever in a relationship who never asked me out and I didn't ask him out it just happened.  We lived together and he wasn't embarrassed by me, he introduced me to his family and friends as his lover and even told his mother about me right away.  Funny how all of that transpired so long ago and how angry that made so many people.  But that was a different life and so much has happened, who know if and when we will ever see each other again.

But no I am not at peace with myself. I don't see a future a head of me and I only see a road full of doubts.  I am trying desperately to figure out how to live by myself and take care of myself.  I want to finally be able to give myself to someone else if the time presents itself with no baggage dragging behind me and no clingers either.  I no longer open my home to the homeless and help them off the streets.  Instead I give them clothes, and blankets, gift certificates for food and I let them work out the escape plan to get off the streets.  I also offer them guidance through my blog and my daily life.  There are agencies out there that will help them, traveller's aid is one that will give you temporary emergency housing and help you come up with a plan to move from homelessness to productivity.  I recommend giving them a call and seeing what they can do.

I am learning and I know that I am old, but whoever said you can't teach and old dog new tricks is totally wrong. Because, I am living proof that insanity isn't healthy for any of us.  Albert Einstein stated that "insanity is doing the same thing over and over again and expecting a different result".  I am through being insane, and I am ready to embark on a new life with a new purpose and a new adventure. My mission of giving hope and peace to others is still intact and sound, but I want to offer more, guidance, inspiration, motivation and education as well.

I have been through so much and have learned a lot, but there is so much more for me to experience out there.  I am thankful for the strength I have received from the trials I have been through,  if I can give hope and inspiration to just one person then my life and all the pain I have been through is worth it.  I will learn how to adapt and I will learn how to take care of myself and I will survive.  I hope you will too.

As always my hopes and dreams are with you,

Uncle B

Monday, March 26, 2018

Smile

I am sitting here listening to my favorite songs and the music that is flowing all around me reminds me of a bright beautiful smile.

A smile is a state of being
it is conveyed in the tone of your voice,
it is the light that shines around you.
It warm the coldest places,
brighten the darkest days,
It truly is a positive feeling of the mind
when you have a smile on your face and in your heart
Positive energy flows out and is returned to you 3 fold

People notice it
People feel it
People enjoy it
so will you

So turn your frown upside down
smile and enjoy the blessings you are about to receive
when that smile touches your eyes and is sincere
Darkness fades
Happiness invades
Joy abounds
Pain rebounds
and nothing will hold you down

Try it out and you will see what I mean
Today is a new day let your inner beauty shine out
Through your bright smile.

It is all up to you hold on to the past and frown
You really don't have to be that sad clown
let it all go and enjoy
Smile you are beautiful inside and out.

As always my thoughts and prayers are with you,

Uncle B

Friday, March 16, 2018

Age is an issue

Facebook is a great way for people to keep in touch, track down people that have been absent from their lives for years.  But it is also a way for us to keep up to date on things that are happening to people we care about and what they are facing. I am one who hesitates to engage in conflict, but I am not the type of person who shies away from it when it comes my way.  The past several days I have been sitting at home and I have been thinking, reminiscing about my past, reflecting on what I have been through and planning for what I am am facing.  When a friend of mine shared pictures of himself and a simple statement about age, I saw it and thought about what was written and the pictures that were posted.  Then I started reading the comments and what I found troubled me a bit, because I knew exactly what the others were saying, I have felt the way that they are, were feeling. And in my youth I actually participated in the very practice that I am about to write about.

I like to think of myself as a pioneer, a person who puts themselves out there in the forefront and helps blaze a trail for others to follow.  How could I know that simple actions that I had in my youth would impact the lives of others so deeply.  Only now in retrospect can I see that many of the things that I did in my youth have had a resounding effect on others, and that I was one of the people that help inspire and bring about change throughout the LGBTQ community. Yet I am one of the people in this world that is causing a problem and a break in our community.  Though today my ideas are a little different then they were years ago, I still find that I am an ageist.  This is troubling to me because I have so many friends that are my own age and I care about them, but only once in my entire life did I date someone the same age or older than myself. 

Like many in the community I believed that it was my preference to date younger people, but in a sense it was a blinder that I was wearing, I was looking at the outside person and not the package as a whole.  I was one of those high maintenance queens that searched for perfection and could pinpoint ones flaws and faults within minutes of meeting them.  I was shallow and vapid though I thought that my opinions and thoughts mattered.  But a hard life lesson was soon to come my way.  It first struck me at the age of 24 and literally robbed me of my 20's and 30's and scared me mentally and physically for life.  It left me an outcast in the community that I helped mold and create, and today I stay on the fringes of it.  I still consider myself part of the gay community, but I refrain from many of the things that I should still be involved in.  Because somewhere inside of me is the deep abiding fear that I am not perfect and therefore not worthy of love and acceptance into the community that I love and dedicated my life to building.

When I got sick with cancer and then ended up with not 1 but 2 colostomy bags, I turned away ashamed of my body and my broken form.  I secluded myself and sought refuge in drugs and other means to escape the fear of persecution.  Yet, repeatedly human nature has surprised me and I have found friends and sometimes companions along the way.  I have more scares than most, have had more surgeries than most, and I still have the fear that I can't be accepted for me because somewhere in my mind I have decided that people in the gay community are discriminatory against those that don't fit the ideal image of perfection.  Though I have found and joined groups that accepted me limitation, scars and illness and all.  I have found friends when I never thought I would and I have found a sort of peace within myself that I never thought I would because of my battered and broken body.  I have even found people who don't see me as damaged but as bright and shiny star of hope and comfort.  These are things that I would never have thought possible.

But as I was reading my friends post and the comments I realized that there is still a problem with age in the community, that the young still look at those of us with age and have prejudice.  I have come to the realization that I don't look at people the way that I used to, yes I still look at physical appearance, but that is not the person. I have had the unfortunate experience to love a beautiful looking man who was very ugly and dark inside and that made me realize the truth in the adage "you can't judge a book by it's cover".  Yet, my own insecurities continue to hold me in a pattern. I am afraid to put myself out there again and hope that someone can look past the body and see the person on the inside.  I sit in the house day after day and I watching TV, reading and avoiding the truth.  I am lonely, and afraid, these are my truths. Yet, I continue on and do what is expected of me.

Yet, something that my friends wrote stirred in me a desire to once again get out there and make a change in my life.  In doing so I hope that I can inspire others to do the same.  Life for the gay population is different now then when I was growing up.  I have learned that the superficial is not the way to look at another person. Maybe there are others out there that have begun to see that too.  Maybe it is only something that happens with age and wisdom, but I hope not.  I think that if I were to step out of my comfort zone and do something about my situation I might others doing the same.  I am beginning to understand my limitations, accept my physical appearance, and instead of hiding the person that I am.  I am letting the world see the person that I have become. I live my life by example and have been doing so a long time. I write about my life here in the blog, and I talk about my differences to everyone I meet.  My story is one of survival, it is one of hope, and it is one of comfort.  I have lived with 6 terminal illnesses for a long time now and I have done so with courage, and against overwhelming odds. I do it with a smile and a positive attitude that everyone notices.  So, if I can change and look at my mistakes with grace, knowing that I cannot change what I have been and done in the past, I certainly can make adjustments and do something about it in my future.

So I have taken to writing this piece about age.  I have never let it define me or limit my actions. I have taken care of the things that I must and have been there when others have needed me. But that is not all to my life.  When replying to my friends post, I was reminded of the things that I have done in my past, the accomplishments that I have made, and the triumphs, as well as the defeats.  But in all of this I have been a motivator and an instigator for change.  I have been as I put it a pioneer and I have done things that at the time seemed inconsequential, yet had far ranging affects on my peers and those that have come after me.  I may not have been able to rescue everyone, I haven't been able to save the world, or help as many people as I had wanted too.  But in my life there have been thousands of lives that I have touched and I have helped and they are out there. They know what I have done for them and I am not asking for any praise or thanks.  I am looking to those people to help me spread the word that age is a number, physical beauty is a thing that fades with time, and that we must look at the persons heart, soul and attitude to find the things that we are missing in our own lives.  A friend found a sense of belonging and community in his church, he found acceptance and he also found a feeling of wholeness and completion the likes that I have never really felt other than in fleeting times.

Yes, beauty is in the eye of the beholder, but there are things that you need to think about before you wrinkle up your nose at the affections and attentions another casts your way.  Don't let their age be a detractor, because with age comes experience, wisdom and understanding and with those things comes the added bonus of compassion.  I don't know how to change the world or change how the gay community looks at one another, but I can tell you that without my friends of age I wouldn't have made it as far as I have in life.  I wouldn't have been able to face the uncertain times that I have come through or had the strength to persevere when all about me seemed bleak.  I have come through some dark times and very rough medical situations and I have become a stronger person because of them and their advice.  I never gave the appropriate thanks to those that came before me.  The ones that fought for gay rights, however, I have performed in the play Stonewall and celebrated those lives.  It is unfortunate that many of the younger generation know very little to nothing of the days of the 60's and 70's that gave rise to our "Gay Movement" of the 80's and the "Equality Movement" of the 90's and 2000's.  What I can honestly say is that I am grateful to have been a part of those times, I wouldn't change my involvement and actions in anyway. 

So here I sit and I want to begin a new movement, be a voice for compassion and understanding and hopefully change the way the younger generation thinks and feels about us the old guys.  I am tired of being a Yuck or Gross.  I am still an attractive person and I have more to offer today more now than ever.  I am stronger and wiser.  Age hasn't made me less fun, I still can keep up with the 20 years that still are in my life.  But I am not looking for love there anymore either.  I have tried repeatedly to find it in the younger generation and have been left wanting and disappointed.  I am tired of feeling like I am being used and unappreciated.  I am comfortable with who I have become and I have surprised myself that there are those out there that find me attractive and have shown some interest in getting to know me.  Honestly, with my medical situation the way it is I am not really hoping for any new developments, but I am learning that my time isn't always the right time.  I have faith in God and His plan for my life, and if He decides to put a new face in my equations then who am I to argue or find fault.  At least I know that I am not alone right now, I have friends, and people that care about me, and I am not far from my family if something happens that I should need them. 

Let me remind those out there that old is not ugly, old is not boring, old isn't anything but a state of mind.  I am one that can talk about this, I am almost 50 now, and I still do things that I did when I was in my late 20's and things I should have done in my 30's but because I had cancer and missed almost all of those years, it took me some catching up to do.  I have a unique perspective about things because I experienced a lot of them later in life than most.  I found knowledge and wisdom in older friends when I was going through some really tough medical issues.  Those friendships have enabled me to survive and adapt.  It is the job of us that lived through the 80's till now to enlighten those that are younger and teach them about the past and the hardships that we and those before us had to endure.  Gay pride is not a marketing theme, though lately it seems to have become commercialized, no it is a time to celebrate our heritage, our loss, and to remember those that were taken from us early by AIDs.  It is also a time to celebrate the victories that were won and the sacrifices that were made to get us to the place we are at today.  Not only do us of age have things that we can teach the younger generation, we can show them understanding and compassion, offer guidance, and wisdom and help them through the issues that they are facing.  Never forgetting that we still have a long way to go yet in the battle for equality and acceptance.  We have the moral obligation to unveil the myths and misconceptions that surround HIV and AIDs we need to honor the memories of the friends and family that we lost during the height of the epidemic. Plus, we need to remind the world at large that AIDs is still with us we are still loosing brothers and sisters still today to this disease.  Though it isn't the media focus that it once was we would be neglect in thinking that we have vanquished and won.  The war is still being fought, and many are still being persecuted because they have been diagnosed. 

Many of us are tired we have battled long and hard, created a better world for those that come after us, but we are not able to rest just yet, there is much left to be done.  I am reminded every day that I wake up that I am still here way longer than any doctor ever predicted I would be.  I have overcome some incredible odds and I am still fighting today.  We can't let the younger generations forget all that has come before, the heritage, the community, the bonding that we felt and developed in the 80's in the fear of the unknown disease.  Community centers were born, research centers organized and help organizations established that have become the norm.  We need to remind the young that many thousands gave their lives, tears, and suffering for these mediocre changes that we have finally received.  Yes today is a better place, there is a bit more acceptance in the world, but there is much hatred and bigotry still out there.  Our community still suffers from many such forms, and maybe there needs to be a movement inside our own movement that tries to foster change.  Ageism is a form of intolerance, and discrimination that we cannot and shouldn't allow to fester in our community.  We need to look beyond the sexual revolution and think towards a more unifying and holistic love of ourselves.  To look to our elders and still love them and accept them, to show respect and compassion.  Being gay isn't defined by sexual attraction alone, it is being comfortable with those that you are more drawn towards, who you can associate and understand better. We are different yes because of our desire to be loved and we enjoy sex with the same sex, but it goes beyond that I think or at least it does for me.  I feel more comfortable with women as friends, but I feel a kinship and bond with males that I cannot quite describe. 

The human heart has the capacity to love and bond to many different things, and people.  We need to understand ourselves better, look at our motivations, and think about what where we truly feel the most comfortable.  Age is a number, it doesn't define us.  It may limit us physically, but emotionally and mentally we are still those same 20 somethings that we once were in a much more experienced and worn package.  Most of us wear our age well and are proud to do so.  Every year that I am here I am thankful for.  I have worked hard to get here and I plan on hanging around a little longer, if I have to do it alone then so be it.  But, I don't think so there is someone out there looking for the inner me.  When they finally stop looking at the outer me and see the inside they will find what they are looking for. Until then I will keep trying to raise the awareness that age is not something to be afraid of, it isn't something ugly, it is a gift, it is a treasure.  Hopefully others will begin to see that we are of value still and we have things been through situations that can help them, we have lessons we can teach and we still have our voice to make change happen.

So from the age of 49 looking back, I remember the days when I was afraid of being 30, then 40, and of course 50.  But look here I am I have made it this far, have learned much, endured more, and I have something that I can help the world to understand and that is the human spirit.  I know how to give hope, how to inspire through living and comfort just by being there.  Life is a journey that doesn't end.  I can tell you that I am still going through some things even now, but in the end it will have made me that much stronger a person and will give me another lesson that I can teach another person.

So don't wrinkle up your nose at the attentions of those older men that admire you, take it as a compliment, get to know them, maybe just maybe you might find what you have been searching for and it was right in front of you the entire time and you just couldn't see it because of the blinders you have been wearing.  Age is beauty, a gift and something to be cherished.

As always my hopes and dreams are with you. Let me encourage you to live your life full with laughter, love and light.

Uncle B

Tuesday, February 21, 2017

Time and place

When you have reached the fill of bullshit that others throw your way you are going to change major components of your life. This may entail changing your venue and restarting your life over again or simply adjusting the current way you are living.

This prospect is usually unappealing and daunting, but trust me there may come a time and place where this may be the only available option. Each of us have different breaking points just like each of us has different levels of patience and when that runs out tester beware because the resulting explosion may actually take their head off. It is never fun or pleasant to see someone reach their wits end not is it fun to be the recipient of of such a cataclysm.

Life presents each of us with challenges and problems in which we must strive to overcome. We may not know the first steps we have to take, we may even be blindsided by these issues, just know that everything in time has an ending. Nothing lasts forever and all issues seek their own resolution in their own time. Though we may not know the correct actions to take each problem will present it's own resolution in time, be patient and trust that God has you and will carry you through.

I don't know what my point of no return is, and I hope that I am never pushed that far. I am patient and try to be understanding in all things that deal with others. Though I will admit that there are times when my buttons are pushed and my patience is tried, especially lately, my​ health is steadily decreasing due to the advancing of cancer throughout my body and those around me seek to undermine me and test the limits of my nature.

On March 28th I will be heading to Gainesville, FL where at Shand's Hospital they will be operating on me to remove a portion of my right Kidney. To some this might be a routine operation, but for someone like me that has had so many abdominal surgeries in the past this is going to be a tricky procedure. One in which my doctor's feel that I will be successful and recover from. Though, I have my misgivings about such risky surgery since I have suffered near death on a few occasions.

Yet, for all things there is a time and a place. I am reminded of something that I once told you about how it is not the ending of the road but the path we take that creates the character and strength of who we become. We are all works in progress and the journey is what molds and shapes us. Fate and Destiny work hand in hand to bring us to the exact place we are supposed to be at exactly the right time. You will see that no matter the path that you choose you are going to reach the exact spot you were meant to be, at exactly the precise time. This is just one of the immutable facts of cyclical living. Our lives are a basis of cycle and circles, think about it this way everything has a way of coming back around. What's​old will come back in fashion, when one relationship ends another begins and so forth. Life is a series of circles​and cycles.

So, as this time of surgery and recovery looms near, I know that it is but for a mere fraction of time and then I will be on to face something else just as harrowing as this, though if luck holds maybe not as adruous or hard. But again only time will tell.  I just keep firmly entrenched in my mind that "This too shall pass" and remember that nothing lasts longer than it is supposed to. Because everything has it's own time and place.

As always Live well, Love much and Laugh often.

Uncle B

Thursday, April 7, 2016

My Dearest Child

It is hard to believe that you are 15 years old now.  Time has surely gone by you are so grown I can't believe it, I always thought that I would have had more time to spend with you while you were growing up, and guess what I blinked and you are already a teenager.  I wanted to write to you and tell you some of the things that you can expect as you get older.  I want you to always remember I may no longer be here, but I am never far away as long as you keep me in your heart.

You are about to embark on the greatest journey you will ever take.  Life is full of pitfalls and obstacles along the way.  It isn't going to be easy, but no one ever said that it was going to be.  Don't get discouraged at things that happen because they are only temporary and will soon pass by.  I am sorry to say that you are going to have to work only to pay bills and raise a family.  But there is nothing more rewarding than seeing your children grow.  Work can be boring, tedious and you are never going to feel that you are being paid for what you are worth, just remember that you have to start somewhere and there is only one way to go and that is up. 

Stress of life and daily living might get you down from time to time, but focus on the things that make you happy and bring you joy.  Spend as much time as you can with your family for you are going to need each other, because no one knows you better than they do.  Love each other daily and be thankful for the things that you have worked so hard to get.  Be wary of strangers that continually try to interfere or drag you down, they may people that you consider as friends.  Your heart my son is the biggest target and your feelings will often be hurt, guard yourself against those that would use your kindness for weakness. There is nothing wrong with saying "No" and meaning it.  You have to learn how to be selfish at times, otherwise you are going to get used.

Smile everyday and be thankful for your health and life.  I wish I could tell you that life gets easier the older you get, but unfortunately that isn't going to be the case.  You are going to be tested, tried and sometimes feel like "What's the use?" The secret to this my son is that everything that you go through hone you and make you stronger.  You will be amazed at the things you are going to do.  Do not be afraid to speak up for yourself, let your voice be heard, because all it takes is one person to change the world.  There will come a time in your life when you are going to look back at your past from where you are at.  I do not want you to feel sad or depressed, trust me when I tell you that you might feel disappointed because you are not where you thought you will be.  The secret here is to look back at all you have accomplished, all the things you have been through and be proud of what you have done.

Keep in mind that the place where you are at is not the end of the road, but just one of many stops along the way.  The path that you have taken is what matters, it is the path that gives you knowledge and strength, the path and all it's pitfalls, obstacles and traps are what have developed you and made you the man that you are.  Love often and hard, show compassion and understanding to others, because it will be returned back to you.  Cherish what you have because you have worked hard and long to get it.  Don't let what other people say bother you, because at the end of the day they don't mean a thing.  They don't pay your bills, nor do know what you truly are about.

Those that take from you more than they contribute are not truly friends, they are trying to benefit from your suffering and pain.  You cannot choose who your family is, but if they are not meeting your needs create your own family and support network that you can depend on.  For those are the people the truly love and care about you.  If there is one thing that I could teach you and help you to understand.  Happiness is not something that you can find, it comes from with in.  You create your own happiness, don't let anyone take it away.  Prosperity my son is something that you can achieve easily, all you have to do is be happy and content with what you have where ever you are at in your life.  You will see what I mean, just trust me.

No matter what you think you are never alone, God is with you always and hears all your prayers and cries.  When you are weary and tired God will carry you through, open your heart in prayer and know that it will be answered.  I wish I could be there with you my son as you grow older, but since that cannot be. I would say to you what my grandfather once told me.

"A man does not leave their mark upon the world, by how much money he has, or what they own, but by how many lives they have touched and who remember them once they are gone."  Explore your talents, always do what you love, because if you love what you do, your passion will shine through.  Money is an elusive thing but if you follow your heart and do what you are passionate about the money will follow.

I love you my son and I hope that by reading this it will help you along your journey of life.  I will see you when you get to the other side.  We will see each other in heaven you have my promise.

I love you,
Dad

Wednesday, April 6, 2016

The Time Has Come

Tick tock goes the clock on the wall
Tick tock I can see it all
Nothing spoken here
can make this clear
Body lies in shock and fear
have heard the message dear
that the time is near or should say that it's here

Cause in the morning I will see the sun
Oh the day has just begun
The darkness of the night has been swept aside
The sun is full of life and cheer
so sweep away the dread my dear
The time is here
Its bright outside.

Be happy and merry
there's no time to terry
tick tock goes the clock on the wall
tick tock can't you here it's call
It's spring beckoning to summer's call
winters dread has lost its thrawl

In the light you see it clear
Nothing last forever
be merry and full of good cheer
Except for happy ever after
Nothing last forever.

Tick tock goes the clock on the wall
Tick tock I can see it all
Nothing ventured nothing gained
Don't let earthly things give you pain
Face each dawn with a smile
Don't give in to stress or strain
just laugh and give that extra mile.

Tick tock goes the clock on the wall
Tick tock I have seen it all
Tick tock goes the clock on the wall
Tick tock be brave and tall
Tick tock you will survive through all.

Nothing last forever
except for ever after
so treat each trial with a smile and laughter.

Tuesday, March 24, 2015

If you only knew

If only you could see the fear in my mind,
the doubt in my heart, then you might understand.

But to the world I only show a confidence and faith,
I show positive living and the light.

I have been called to use my voice to help those
who are victims of pain and strife.

But if you only knew what turmoils that
goes on sometimes inside.

I am human that is true
a war is being fought within my soul

You will never know I won't ever let it show
I walk in faith and in grace

I have been touch by the Hand of God,
I know that I am truly loved and blessed.

The Great Healer has heard all prayers
He has saved me so many times.

Now you know why I have to let my light shine.
It's my story and my song

If you only knew everything that I have been through
You would understand my faith and join in the praise

I want you to know I know what you are going through
I have been there right with you.  So are the angels that protect

You will never find yourself alone or a reject
If you only knew Jesus died for you.

Then you might be in harmony
and see the light that I have inside.

If you only knew God Loves you and
So do I.

As always my hopes and dreams are with you,

Uncle B

Wednesday, February 4, 2015

Be a Warrior not a worrier!

I was thinking a lot about things that have been going on in my life over the past several months, and I realized something really important.  See back in August I was in so much pain in my back and I didn't have a clue what was going on with me. I had been to the emergency room 19 times and all they ever kept telling me was that I had a back strain.  But, the pain started out as a small pain between my shoulder blades, I thought that maybe I was just extremely tired or since I had just bought the stick shift car maybe it was from all the shifting I had been doing.

I really didn't have too much time to dwell on the pain, because during this same time period, Alicia, Lonnie, Kim, and others kept making random appearances at my apartment and so many things were going to hell in a hand basket and I just couldn't get the situation under control.  It was during this time that I ended up getting arrested 3 times in just a months period.  I was also told by my landlord that I had to move at the beginning of July.  I was running out of time and with my back hurting so badly, I couldn't do much.  For the first 2 weeks, I ended up laying around in bed, and as time started closing in on me.  I began to worry so much that I became afraid. My whole world was crashing down around my ears.  Because of the friends of Kim I ended up being robbed and lost everything important I owned.

Because of my back pain, and the constant visits to the emergency room.  My dad and step mother allowed me to come back to live at their house. I was only there about 2 weeks when I had an MRI which was the very beginning of a long and painful journey.  The morning of the MRI it took me almost 30 minutes to get out of bed.  When I finally got out to the living room, my father noticed that something was wrong and asked what the matter was. I told him that my back hurt so bad that I wasn't sure I could drive to the appointment.  When I got to the imaging center it was all I could do to get in the door and walk up to the desk. The receptionist noticed how I was walking and rushed to get me a wheel chair.  I even ran into two close friends while I was there and was in so much pain that I couldn't really even talk to them to let them know what was going on.

Time clicked by so slowly, and my mind was running through all these different scenarios.  I was worrying and worrying the longer it took the more heavy the weight on my shoulders became.  Long story short I was wheeled into the MRI room, the tech put me on the table, the machine was made only one pass when the tech came back and helped me up saying that the radiologist needed to talk to me.  I was wheeled in to the guys office and he promptly asked me how I got to the imaging center.  I told him that I drove, and he asked me if there was someone that could come and pick up my car and get me to the hospital ASAP.  The image that he showed me had an infection centered in the thoracic spine, it appeared to be through the center of my spine and right into my spinal column.  I was told that the infection was so severe and was strangling my spinal cord and that if I didn't get treated immediately I could become paralyzed for life.

I stayed in the hospital for 14 days, and given IV antibiotics, it is here where I learned that I needed to be a warrior and not a worrier.  See I was freaked out because once I got to the hospital, my legs gave out and I had to have my dad get a wheel chair and for the next 2 months, I couldn't get them to move at all.  The antibiotics worked slowly and because of that I ended up having to go to a nursing/rehab facility for continued IV treatments.  I was admitted at night to the facility and by the time I got settled in it was after midnight.  So I didn't get to meet anyone at that time.  But at 8 am the next morning I was assaulted by a myriad of people, nurses, doctors, cna's, administrators, therapists.  All the information overloaded my mind but the one thing that struck home and hit me squarely between the eyes was what the physical therapist said. She told me that she was sorry but I was never going to walk again.  Now, as you can imagine this was my fear from the beginning.

That night as I lay in my bed and continued worrying.  I decided to pray instead of letting my mind run away with me.  The head can only take so much information and process it, the shoulders can only stand so much weight before you feel like the world was resting on them.  The weight was overwhelming I felt like nothing was ever going to be the same, that I was stuck and I would never be able to move again, both figuratively and literally.  So I did the only thing I knew what to do, I turned to God in prayer.  I prayed continuously through the night, and when the sun broached the horizon and sunrise started. A peace descended upon me, it was like something I never felt before, and I had the calm assurance that if I did all I could on my own, I would be rewarded and I would get my legs back.  So when therapy came in to start my rehab, I diligently did as I was told.  Then that afternoon I started going back to the gym, this was a routine that I established.  I would drag myself up on the balance bars, and I would shuffle along.  I literally taught myself to walk again.  I prayed diligently and had the calm reassurance that I was going to be healed.

It took me 3 weeks to start walking with a 2 wheeled walker and 3 to 4 weeks later I had graduated to the 4 wheeled walker.  and just 2 weeks after that I graduated to a cane.  I used that for 2 weeks before I had a fall in the parking lot and they put me back to the 4 wheel walker.  But when I was finally released from the home 18 weeks later. I went home using only the cane.  I continued to pray and do the exercises that I was taught in the home.  I am now off of any type of walking assistance, and I have stopped taking the pain medication.  I do go back there to visit my friends and staff members that work at the home every Sunday. this past Sunday my friend Jonathan and I went back to the home and every one there was amazed at the progress I have made.  My back is straight, and my posture is good, and they keep telling me that I am looking so good.  I am pleased and excited by the progress I have made, but I am not surprised because I knew in my heart all those months ago that I was going to be healed and I was.

See, don't let your worry over life add weight to your shoulders, because if you keep worrying the weight will pile up and before you know it you won't be able to move.  See worrying is never an answer, it will lock you into place.  You can't get past it and it weighs you down and make it hard to think.

What am I trying to tell you?  I am telling you that if you go from worrier to warrior your life is going to be so much better. You will also find that by leaving your problems and concerns at the feet of Jesus you are no longer weighed down by all those heavy thoughts and worries.

Practice praying daily, give all your concerns, problems and desires over to the Lord and you will begin to experience a brighter countenance and life seems to be easier to get through. I challenge you to stop being a worrier and  become a pray warrior and you will see changes in your life and miracles all around you.

As always my hopes and dreams are with you,

Uncle B

Monday, December 22, 2014

Giving back or Paying it forward what does this mean?

It is easy to see around Christmas time that the spirit of giving and love is in the air.  But, what is the cause? It isn't because we have any more money then usual as a matter of fact Christmas time is when most of us go into some minor or major debt buying gifts for friends, family and loved ones.  Sunday my step mother and I were at Walmart, she had 4 or 5 little items, she set them down on the conveyor and was wrung up.  Before she could swipe her debit card the man in front of her told her to stop, he was paying for her groceries.  As I walked down the front of the store and past 2 other registers friends of this man was doing the same thing.  I went outside to smoke a cigarette and was surprised at how many people came out of the store with the Spirit of Christmas that they didn't have before they went into the store.  As they were all walking out they were all talking about the men paying for their stuff and saying Merry Christmas.

Now that is one way of paying it forward, and I am sure that it was contagious and the next person would pay for the person behind them because they now had extra money that they didn't think they would have.  Either that or they put the money in the Salvation Army cam outside the door with Santa Claus.  No matter what you do paying it forward not only benefits you it benefits another person.  I know we have discussed this subject before, but something is telling me that tonight is the night it needs to be rehashed. When you give of yourself, money, time, attention and love you will receive it back ten fold.  It is called the law of returns.  Remember that in the ethereal plane like energy attracts like. Positive attracts positive and Negative attracts negative.

I honestly the giving back and paying it forward are similar in nature could possibly be the same thing. By going to the nursing home each week I feel a sense of fulfillment and satisfaction in seeing my friends that are patients there and others that work there.  They tell me that my positive energy and bubbly personality add life and character to the home when I am there. I take the time to walk through all the wards and say hi to everyone.  It is amazing that everyone in there knows my name and who I am by sight.  I talk to my friends Sue and Mark on the phone, and usually tell them what day and time I would be there to visit. My visits aren't for personal gain, the reason for my visits was because I know how it felt to be in there without anyone coming to visit.  Not having anyone come and break the monotony of the day.  How the boredom and daily schedule make the days blur together and begin to feel like you are in jail.  So I go back and visit my friends and those that have no family or visitors come to see them.  I love to see their smiles when I come in and hug them.

One person that I see every week is Miss Ruby Miller, she was my neighbor when I was a  patient there. She came into the ward after I had gotten there.  At first her family, son, daughter-in-law, grandchildren and great grandchildren came to visit her almost every day.  But as the months have moved on her visits have become less and less.  As of this month I have been her only visitor, and I make sure that I stop by and visit with her. This afternoon she told the nurses at the nurses station that I am the only one that comes in and says Hi to her on the regular. I do understand that life must go on and that people have jobs, responsibilities and things to do, but it is hard on those in the nursing home because they only see the same people that work there day in and day out. They don't think about the work schedules, school schedules, after school activities, etc.  And in Miss Ruby Miller's case she has Alzheimer's and doesn't always remember things like a normal person. Yet, every time I see her, she remembers my face and my name and tells me hi.  I give her my hug and tell her how good she is looking, which is so true.  She looks so much better than when she got there and she seems to be able to get around a whole lot better too.

But why am I talking about this subject now? What does it have to do with each and everyone of you?  Why would I talk about this so close to Christmas?  Well, the truth of the matter, most of the time people only get joyous and social around Christmas and that is when they think about doing for other instead of themselves and I am hoping that maybe we could change that because there are lonely people out there, there are shut-ins, there are elderly and so many others that we could and should take time to visit with, let them know that we love them and appreciate them.  No one wants to wither away and die unloved and unnoticed.  Please I am begging you to Pay it forward or Give back some of your time throughout this year.  See what joy it brings to the faces of those you visit and the joy it brings to your heart and soul.  Every day of every year should be like Christmas Time where we feel full of love, joy, laughter and hope, where we think of others before ourselves and take the time to enjoy our friends and family and loved ones.  It doesn't have to be one time a year.  It can be all year long.  Just try it and see!

As always my hopes and dreams are with you,

Uncle B

Monday, November 4, 2013

The weather is Dreary but disposition is Cheery!

I woke up this morning with the usual suspects..aches, pains and that persistent cough.  But the other thing I woke up to was the phone ringing and a pleasant and happy sounding voice on the other end of the line.  Often it is the opposite when the phone rings in this house.  You have know idea who is going to be at the other end of the phone, and in my case it is usually bill collectors calling about this hospital bill or lab test that I haven't been able to pay for.  See no matter what I do it seems impossible for me to cover all the expenses that this illness has brought to me.  I do have medicare, and I now have insurance from the company I work for but it still doesn't cover everything.

Even with the President's attempts to help people like me with the new healthcare legislation the slope is still very slippery, and now the choices that we have aren't all that clear to us.  Plus, none seem to cover everything and I am still stuck in a situation where I have to pay large sums of money to receive the care that I need just to survive.  Not to mention the cost of the prescription drugs that I have to take for my HIV, which are not covered in the formulary for medicare's 100 percent coverage.  I still have to pay over a $1000.00 per perscription per month for my drugs, though my antibiotics and most other medicines are covered at 100%.

Now, for those of you not in Florida this morning's weather is quite cloudy with heavy wind gusts and it is cooler than I am used too.  It has been like this since Friday and I am hoping that the cloud cover will dissapate soon.  However, as I said in the title it maybe dreary or gloomy outside but my inside is full of happiness and cheer. Despite the fact that I have been sick with bronchitis I woke up this morning with a song in my heart and a hope for a great and blessing filled week.  Like I wrote last night I have been going through the motions of living for the past year.  I mean I have been going to treatments, working, hanging out with my partner and basically doing the day to day minimum to life, but I haven't been out there in the fore front of activity.  I haven't been to a Positive Champions Speakers Bureau meeting in a year, or PCHAP or any of the other organizations that I was a member and active participant of.  You may ask me why is that, and I would have to tell you because I haven't felt good, that I haven't had the time or energy and honestly my health hasn't been up too it.  Every one of those things is the truth and even individually on their own would keep a normal person from participating.  But as you know I am far from normal and I am usually pretty active.  However, I just couldn't get into the groove of things this past year and I let so much slide.

Yet, for whatever reason this morning has been different and I feel a renewed energy and a sense of purpose that I haven't felt in quite awhile and despite my cold and bronchitis I feel that I need to be up and doing something.  I have made coffee already and several phone calls and the day has barely begun. I think that my long road of holding has finally come to an end.

This has happened to me one other time in my life when I went from being in an extensive pattern of holding to bursting forth from it with a renewed vigor and I can tell you it was the Summer of 2008 after my last ileostomy.  It was June, I remember precisely because it was before Atlanta changed the dates on their Gay Pride celebrations.  I had gone through 2 years of intense holding because of repeated surgeries on my colon and abdomin.  Finally I woke up one June morning and decided to put on shorts and go out into the world and see if anyone noticed that I was wearing a colostomy bag.  Guess what they didn't and my sense of self and self esteem were tremendously bolstered by that fact. Then I learned techniques that have kept it hidden from everyone until I have been ready to reveal it and that too helped my confidence level. See it took me taking that step out there and going on blind faith to get out of that pattern and break the mold that was holding me in fear and self-loathing and let me tell you that having bags to use the rest room is quite a morale deterrent and something that I had to live through and get over.  Going out into public and having people seem me as totally normal and not noticing that the bags were there was a big boost to my ego, self confidence and so forth.  That day changed the way I viewed myself and the way I let other perceive me as well.  Today I woke up with that same renewed feeling of self confidence and hope for a brighter tomorrow.

Remember it is not the outside package that means anything at all it is what you have on the inside that matters.  Hold yourself with self confidence and poise and you will attract others like yourself too you and things will start to look up.

As always my hopes and dreams are with you,

Uncle B

Wednesday, December 19, 2012

December 19th Status Update

This year has been a tough year for everyone of my friends, and me as well.  I am thankful that it is finally drawing to a close, and on the heels of all the hard times comes several blessings that I want to share with you.  Every day cannot be a picnic and something I have learned coming through 2012 is that you have to take the good with a measure of bad.  But, with hope and faith things will work out for the best, whether you want to believe that or not, it is really true.  As we went through the Thanksgiving holiday we all stopped and gave thanks for the things that we were most thankful in our lives.  But, that was just one point in the year, we need to take a closer look at our daily lives and be thankful daily for the small things that happen to us.  Once you begin to do that you are going to see that the smallest things add up together, these little blessings may not seem to mean much, but when you take a step back and look at how they multiply you will be amazed at just what you can have come through.

As 2012 draws to a close, I have to tell you that I have a new family, that has opened their hearts and home to me and accepted me with open arms.  They have done everything they can to make me feel like I am a part of their family and special.  For someone that hasn't actually enjoyed Christmas or the holidays in many many years, this has been a big shock and surprise.  Since coming out to California my life has been filled with such joy and happiness that it is hard to contain.  God has been so good to me this past year, has brought me such loving and caring friends both in Florida and in California that I can hardly believe how lucky I have been.  Everyone one of us has a story, something that we had to face and come through in 2012 and here we are we have made it. There have been people that have inspired us, motivated us and given us the strength to push onward even when it seemed the darkest.  This holiday season take the time to reach out to those that have been around you and by your side, give them the praise that you feel in your heart.  Tell them how much you appreciate them, and all that they have done for you.  None of us could have made it through this year without our support group, our family and friends that stood by us in our times of trouble and despair.  These are the ones that have made it possible for you to look back and marvel at all that you have endured and come through and deserve the highest praise.


Though I can't put everyone's story out there I want to point out a few that have inspired me and given me hope for a brighter tomorrow and a happier future.  These are stories that show strength, compassion and love.  These are fighters that even when the toughest of times seemed too much to bear they pushed ever onward and have come through.  I know a lot of you think that I am something of an inspiration through everything that I have come through, but I have a dear friend that lost her husband of many many years, who opened up her heart and her home to let me come out to visit.  She has started to live again and with just a little visit and several hugs brought Christmas back into my life.  Then there is her daughter who I have been close to since she was 8 years old that told me what was happening and wanted me to come.  These two have shown me what the meaning of Christmas is all about, love, hope, happiness and joy, even inspite of troubles.  Here is the unique thing about me and my friend, whenever we are apart our energies and lives seem to get off track and turned upside down, most of the time a phone call between us will straighten out our course, though sometimes it takes a bit more like a visit.  I can tell you that since being here I haven't felt this good and strong in a long time. The depression and despair that had seemed to fall over the house quickly evaporated once I got here.  Now with the Christmas tree up and house all decorated it seems like life is finally coming back to the house.    Then there is my friend and partner who while I was going through my own health crisis's and issues in Florida was going through his own all the way across the country.  Even though at times he wasn't sure about "Us" or "Me", we made it through and are together.  Speaking of him, he just had neuro-surgery just two weeks ago, and what a boost to his self-confidence and self-esteem it has been.  I haven't ever seen him this happy or excited since I have met him. Another friend of mine found himself in a horrible living situation that did nothing but weigh him down and destroyed his health. Yet, through it all he maintained a positive outlook and repeatedly demonstrated his strength of character in all of his emails and Facebook postings.  It takes a strong person to endure circumstances like that, and to do it with such grace and love it has truly been inspiring.  I am also wanting to mention my new family Voncellar, CeCe and Mary, thank you so much for being the greatest influence on your son/brother/grandson, and accepting me whole-heartedly into your family making this one of the best Christmas's ever!  Then there are my friends at the Positive Champions Speakers Bureau who have been there with me through every hospitalization, every health crisis and personal /emotional crisis I have gone through this year.  Even though each of them had their own health issues, and problems they made me feel accepted and part of their circle. Thank you guys you don't know how much you all mean to me.  You are my family!

I know times are tough, money is tight, and Christmas this year might not be as perfect as you want it to be, just know that Life doesn't always seem to work out as it is planned or pictured. It can be better or worse depending on your point of view. Even non perfect circumstances can bring contentment and happiness. Though we may wish for the perfect picture of our minds eye, understanding that you just might not get it makes it that much easier to accept. I have often been filled with disappointments by not understanding this little concept, but this year I have a whole new set of eyes and a brand new understanding of how things truly are.  We have to make our own happiness, our own perfect moments, don't wait around for life to give them too you.  If you do, you will be closed off to new and wondrous things that are out there waiting for you.  Understanding this will also help you to understand that even though you aren't exactly where you want to be, you are exactly where you are supposed to be.  Nothing worth having comes easy.  It is the stuff that you have to work hard for and struggle with that are the things you treasure the most.  As this year ends make sure you ring it out with good cheer and a song in your heart. Let go of the past, surrender yourself to the future, take that leap of faith and know beyond a shadow of a doubt that you are going to be happier and more successful in the new year than you ever have been before.

Even as I am getting ready to close this entry, a miracle of life has been granted to my family.  We are welcoming our newest member born just a few minutes ago a new nephew.  A new year, and a new life, what better symbol of hope can there be!

I love you all and wish you a very happy holiday season. Make sure you give praise to those that deserve it, cordiality to those that don't and share the joy and happiness of Christmas and New Years with all around you.

As always my hopes and dreams are with you,

Uncle B

Wednesday, November 21, 2012

My Testimony (Why I am So Very Thankful)

As I look back over the past year I am amazed at what I have been through and have endured.  But I didn't do it all on my own, and on this evening before Thanksgiving, I want to give you my testimony, share with you the incredible journey that I have found myself on this entire year.  I am sure that each of you will be inspired and amazed at what we can endure, what we can learn, and most importantly what drives us on in the face of tremendous odds.  This blog has been an extension of who I am at this phase of my life, I hold nothing back and reveal my entire personal life here.  It has been a blessing for me to share those things with you.  Be patient with me, some of this stuff might be something you have heard before, if you have been reading the blog religiously.  However, as with all my writing new things are always revealed.  There are always lessons to be learned, heard and found in everything I write.

I am going to start with today and work my way backward in time towards the beginning of the year.  This morning I woke up at 5:30 am which is highly unusual for me.  I am normally not a morning person at all, but for some reason I have woken up early for the past three days.  I have to tell you that in the morning I am usually non functional, it takes me sometime to get myself together and motivated to start the day, however for the past three days I have popped up wide awake, and filled with the most amazing joy and believe it or not a song in my heart.  This morning I got up and immediately started listening to my new favorite song "Restless", I actually played it three times singing with it each time, and as I sang my heart and spirit just soared.  Before I knew it I looked up and it was 10:30 in the morning.  I had done my traditional Facebook good morning and greetings to my friends and associates on Facebook and had planned to just sit on the new couch and chill for a little bit.  I had decided that since it was the day before the holiday that I was just going to relax and wasn't going to worry about the open enrollment for medicare today. That I would take care of it next week.  To my utter amazement I got on my laptop in the living room and before I knew it I was looking at medicare plans in my area.  I actually clicked on a link and it took me to a page that compared all the different plans in my area.  I looked over the information and got an idea of what I was looking at, was sort of undecided when my cellphone rang and it was a lady from the company who hosted the website, my information was routed to her and so she called me.  We talked for a few minutes and I explained what I was looking for, and she started pulling up stuff on her end and talking to me about all the different plans.  Now during our conversation a lot of information came out about my various medical conditions and concerns that I had that needed to be addressed by whatever new plan that I got.  The woman's name was Marcia, and she stopped me and told me that she just needed to tell me that I sounded so upbeat and positive despite everything I was going through and proceeded to tell me what a pleasure it was to talk to me.  How, just by speaking with me and hearing the positive attitude and happiness in my voice had made her week and was going to make her Thanksgiving that much memorable.  This actually touched me in a very deep way.

See we never know where any casual conversation we have with someone else is going to take us, how our words, confidence and happiness can be heard through the phone line, and how that is going to affect or influence another person.  How just being yourself and having a smile on your face can carry through your voice and be delivered to the person on the other end of the line.  See we never know who might be looking at us, watching us, and finding inspiration from us.  Eyes and ears are all around you, and we may never know how many lives are touched and influenced just by our passing by them.  Which is why I tell you to live as you believe, let your light shine around you, and let your joy and happiness wash out into the world.  Remember that even though you might not see them, they can see you.   As I have told you this has been a long year, full of difficulties, encounters, connections, crossings and even a couple of brushes with death.  It  has taught me that there is so much in the world that I don't understand yet, and so much to learn, but on the opposite side of that coin there is so much to teach, talk about and put out to others.  I have learned that nothing is ever truly what it seems and that miracles do exist and happen in our daily lives, and if we are too busy to notice they may just pass us by unnoticed.  There is beauty and majesty in everything around us, there is wonder and adventure in every encounter we have, again we might have to look for it, but it is there. Every new day brings lessons and understanding if we are open and receptive to hear them.  Nothing you do is transparent, you aren't as invisible as you might wish you were.  People see you, interact with you, listen to you and might be inspired by you. You just never know!

I learned the trouble of misconceptions and preconceived notions about others, I learned that some people can be biased and judgmental and never give you a chance, because they think they know you, and you might do the same to them.  I learned how if you are not paying attention to those around you, how easily it can be to miss the hand of love and acceptance they are extending to you.  I also learned that if you don't listen carefully to what someone is saying to you, and really hear the words they are speaking you might make the wrong assumptions.  You might be surprised at something someone says to you, and be even amazed and full of awe at the love they have for you and it was there right before your eyes the entire time.  I also learned that if you aren't careful with your feeling you might misplace them in the wrong person, and how during a simple conversation the truth will be revealed if you are listening with both your heart and your ears. The heart is hard to fool, trust me it can hear the words that are spoken and translate them into honest feelings if you let it.  Let me explain this too you and maybe you can understand what I am saying by this.  I met someone last fall and I really cared about that person and for most of the year I thought that me and this person were going to be together, get to know one another, and build a relationship together.  I moved from Atlanta to Ormond Beach in February and was talking to this person and trying to get him to come down with me.  But, every month there was another excuse, and a reason why he couldn't or wouldn't come.  He knew what I was going through and told me that he wished he could be here with me to help me go through my surgeries and illnesses but never came.  We hadn't talked in several months due to circumstances beyond both of our control, however during our first conversation when we reconnected recently, he asked about my surgery and when I explained that it didn't work out as was expected and that I would never be made whole again like I had hoped. He said isn't there something like a bionic colon or something else that they can try?  I grew quiet, he didn't ask me if I was alright with it, didn't tell me he was sorry to hear that it didn't go right, nor did he say anything like it's okay, don't worry we will make it through this together, nothing like that.

Now, let me talk to you about the other person in my life, my ex, when he found out how sick I was, which I sent him an email in March, the same time that the first person said he was going to come and then didn't, my ex called me immediately and this is what he said to me.  Oh my god Bryan and I am sorry to hear about what you are going through. I don't want you to go through this alone, let me find out what I can do to get there.  I will call you on Friday and see if I can't be there that afternoon.  Mind you this is Wednesday afternoon when I got the call.   When he called on Friday I explained to him that I appreciated that he wanted to come and help me but that I was staying with my father and that there just wasn't room.  We stayed in touch since that day. Mind you I kept talking to the first person up until July when it wasn't possible any more, and my ex both during this time.  However the more my ex and I talked the more he revealed to me that he loved me and wanted me in his life.  He said to me that with all of the stuff medically that we had been through and how close both of us came to dying this past year, that he realized that he wanted to spend whatever remaining time we had left together whether it be a week or 20 years.  That we owed it too each other to be happy and that I truly understood him and made him happy.  Then in June when they tried to operate and the procedure failed and it became evident that I was going to be physically impaired for the rest of my life, he told me look it is okay, that he loved me anyway, he didn't care about all of that other stuff and that we would work through it together and not to worry.  Now keep in mind that I have been hurt in love before and I wanted to be sure.  Honestly, when he told me that he loved me I thought it was in a friendship sort of way, I actually  thought he was interested in someone else.  It took him several months of talking to me to convince me that I was the one that he wanted.  His words didn't sink in, we had both inadvertently hurt each other last year in Atlanta and when we separated I didn't ever think we would get back together much less talk.  However, when he reminded me of the events of the last day that we spent together, and what had happened and what was said and done that honestly convinced me that he wasn't bullshitting that he really did love me and cares for me.

I would say that I was conflicted and confused because I was interested and having feelings for both of them.  In a way I still do, however, my eyes have been opened to the difference between the two, and I know in my heart that I have love for both of them, I also know that there is only one that I am "In Love With".  It is through this revelation that I learned just how great the human heart is, and I am amazed at the abundance of love that it can have for others.  I have learned that everything we go through and endure makes us stronger and more able to deal with other things as they come up.  See, I moved back to Florida for several reasons, first, I had lost my apartment in Atlanta because of bad choices I had made, the drugs I was doing and the company I was keeping, and as a result of those decisions not only was my apartment lost, but my car was stolen, I ended up loosing all of my clothes, jewelry and possessions and my two beautiful dogs were taken from me and put to sleep.  I was devastated and living on the streets and if that wasn't enough I developed kidney stones and ended up spending a lot of time in the hospital.  Where it was revealed to me that I had renal disease, my kidneys were totally impaired by my HIV Drug regimen, and that if my condition didn't change I was going to need dialysis.  Second, was when I told my dad about my medical condition and all that was wrong with me he asked me point blank did that mean that I was dying.  At that point all the doctors and evidence pointed toward that as fact.  I had been told that I probably wouldn't make it to see next year.  So my dad and step-mom told me I could come and stay with them until I got on my feet.  Literally I left with just the clothing on my back and nothing else.

This my friends is just the beginning of the amazing journey and adventure that I was about to embark upon this year.  I wasn't here in Florida a week when I started urinating blood and running a fever, made several trips to the emergency room, and in March, keep in mind that I got off the bus from Atlanta in Daytona Beach on February 3, 2012, I ended up in the hospital and my colon ruptured in two places, and I was rushed into emergency surgery, kept in ICU for 9 days and wasn't released for 20 more days after that. I learned during that time that there was so much of my life that I needed to share with others, that I had been given so many lessons and that there was work for me to do yet.  I was delivered by God from death, and inspired to continue my work helping others, but this time from a safer distance and through a talent that had laid dormant long enough. I started my blog in April and have been writing ever since. I have met some very interesting characters, friends and acquaintances on this journey. Plus my time on the streets of Atlanta had taught me some very important lessons and survivor skills that I was lacking. My friends and family encouraged me to write my experiences, my lessons learned, and thoughts as well as the wisdom I had picked up during my life.  I had never imagined that it would take off like it has, I am read by over 400 readers a day, and my blog is translated and read in 27 countries around the world.  On top of that I get emails, phone calls, comments on my blog and on Facebook daily about how my life has been an inspiration too so many, that my words speak directly to some, and how easy it is to understand and comprehend what I write about.  But my friends there is still more, I am just beginning to understand life a little better with each passing day.  I comprehend more and see more now that my eyes have been opened toward the world and those around me.  I now understand that there is so much more to be seen and learned that lies just beyond the surface.  That new lessons are presented to me each day, new challenges that I have to rise too, and that nothing or no one can make me feel anything other than what I want to feel, if they do, then I have given them power over me and that isn't always a good thing.

Never in my life have I ever truly been on my own, I have always been in relationships or had others living with me.  This is the first time since I have moved out of my parents house at the age of 17 to join the Navy that I have truly lived and been on my own.  Now, I mean physically alone, I know that I am never truly alone that God and the Angels are watching over me and are always with me.  But, I have never had to entertain myself or lived without someone sharing the place with me.  This is new and it is interesting.  As I have learned more about myself and the lessons of life, I have begun to see the world and others differently.  I have begun to see just how different I am from others, that my positive attitude and sense of humor affect and infect others and how just being confident in myself and strong in my desire to help others has moved me into a whole new world.  After my failed operation in June I joined the Positive Champions Speakers Bureau and the Partnership for Comprehensive HIV/AIDS Planning. I have met some great individuals with the same background as I have.  We stand united against the fears and stigmas of HIV/AIDS, we strive to educate and inform the public of the misconceptions and myths surrounding the disease, and we speak out in public and support the LGBT community and Positive people everywhere no matter of their sexual orientation.  Despite my illness and constant visits to the hospital they have welcomed me and made me apart of their group and family.

But most importantly I have learned that there is life after being diagnosed with terminal illness, that their are ways of compensating for limited faculties and disabling conditions of illness and disease.  That no matter what the doctor's predict about your mortality and time left, that it is just a prediction.  That with a positive attitude and outlook your whole condition and sense of being can be transformed.  In spite of all the illnesses I have, which at current date I have 6 terminal illness all serious with no cure, nothing and no one gets me down for long. That my attitude and outlook are helping countless people and inspiring others to do things they never thought they would be capable of doing.  I live my life as an example, so that others might take hope and benefit from those things I have gone through.  Even though I live with constant pain, I can still give joy and laughter to others, that I can help bring some light into an otherwise darkened world and show people that hope and love still exists.  Since I have gotten sick and became outspoken and vocal about my illnesses I have seen a host of different reactions, some pity, others fear, others revulsion, others awe and wonder.  But, through all of this not one of them has turned away from me and left me.  When I asked a person who told me they were revolted by the fact that I was HIV Poz why they just didn't walk away and stay away, he told me because he soon discovered he was wrong, that he had made some assumptions about me and that the more he learned about me the more he couldn't deny the enthusiasm and joy that I had, and when he heard my story how everything he thought shattered in the face of truth.

As I told you earlier there are people out there that have these notions they think they know you, they think that they have you figured out and when the truth hits them, their whole image of you shatters and they are forced to accept the real you at face value or move on.  In his case when he found out that I had inadvertently infected myself with HIV by using a dirty needle that my one lover had used to shoot up his drugs and put back in my box for my vitamin shots.  His perception of me was changed.  See he thought that I was promiscuous and had slept around and that I had contracted the disease from having sex.  You just never know do you!  Looks can be deceiving and you have to give others the benefit of the doubt. No one can tell just by looking at you that you are ill, or might be dying.  It is through this young man's confession to me that my outlook about others changed as well, and I realized that even I was guilty of looking at others and pre-judging them.  So I stopped doing that literally, I simply now take everyone I meet at face value and I embrace the challenge of getting to know them, and understanding their story.  Because behind every mask, and we all wear one, is a story that is just waiting to be heard, everyone longs to be understood and accepted for themselves on their terms and loved unconditionally.  God has chosen to keep me around a little bit longer and for that I am eternally grateful, he has brought into my life once again a man that I love very dearly, who through every turn and every opportunity has displayed grace, love and acceptance, who always knows exactly what I am feeling and exactly the right words to encourage me, or inspire me.  He has taught me about myself too, he has given me hope and something to live for.  He has proven to me that he wants to spend whatever time we have left together, he turned away from his old life and old ways just because I showed him a different way to be.  He inspires me to be more than I am and encourages me to reach higher than I ever thought I could.  When I talk with him there is nothing I can't do or accomplish, and he accepts all of me, my strengths, weakness, my anxieties, my fears, and my limitations.

Lastly my readers and friends I want to say thank you to you.  For your devotion to reading my blog, for sending me the letters of encouragement, for using your voice on Facebook and other mediums to tell others about me.  I thank you for your prayers, and your wishes for my continued health.  I have never thought I would ever find the sort of acceptance that I have discovered this year.  Everyone I have met and continue to meet constantly tells me that I am such an inspiration.  But it is because of all of you that I am.  It is because of you telling others about me that my popularity has grown.  It is because of you that I have the strength and the ability to continue writing.  It is because of all of you, and the support and love that you have shown me that I am truly grateful, and because of you I don't feel alone.  You have heard my voice both the literal one and my written one and the message that it gives you of hope and inspirations is what drives me forward with compassion and passion to help make the world a better place for all of us to live in.  I am here for you, feel free to write to me, tell me what is going on in your life.  Don't be scared, don't live in the dark, if you don't want to talk to me talk to someone about what is going on.  Trust me when you do the weight and the pressure you are feeling will be lessened and you might find some unexpected advice and help when you least expect it.

Thank you for being my friends, readers, listeners and support network, it is through you and with you that my message of love, acceptance, and friendship is truly being spread.

As always my hopes and dreams are with you,

Uncle B