Wednesday, January 24, 2018

The funny thing about animals is:

My roommate's found a cat that they brought inside way before I ever moved in with them. She was aloof, Moody and sometimes standoffish. Which surprised me since most animals warm up to me right away, which she didn't. Oh she would let me scratch her ears and occasionally she would allow me to share a chair with her. She would be laying on the back and I would sit with her for a little bit.  She has ventured into my room several times but really never stayed long.

About three weeks ago she actually came in and slept in my room for several hours.  It was a night when I was feeling a little down and lonely. She was locked out of my roommate's room where she usually sleeps and they were not letting her in.  That I guess was the start of our precarious relationship.

The truth be told she is really partial to Demario my good friend's partner. Travis, my friend she seems to tolerate and you could say that she likes him too. Me she treated as an outsider. Never having very much to do with me. Previously when Travis and Demario were away from home she would sit patiently by the front door and wait for them to come back or she would stay in their room.  She never bothered with me.

Four days ago Demario got sick and had to go to the hospital. He was admitted and Travis stayed with him. I had several doctor appointments that day and when I came home I could hear her crying in their room. Which is when I discovered that their door was locked and she was trapped inside. Hearing her cries I called Travis to see if there was a way for me to get his door open and let her out.  He told me about Demario and his condition and that he was going to stay with him for the night and she would be alright.

Travis ended up staying with Demario at the hospital Saturday night, all day Sunday . Monday morning I had to go to see the neurosurgeon and didn't get home til the afternoon. I had expected Travis to be home when I got back from the doctors. He didn't get home for several hours after I got home. I was talking to my mother on the phone and she could hear the cat crying. She asked me how long the cat had been locked in the room without food, water or access to her litter box. When I told her that Travis and Demario went to the hospital Saturday morning she begged me to figure out a way to get the cat out of the room.

Hanging up from my mom I picked the lock opened their room gave her food and water. That was a turning point in our relationship apparently. Because even though Travis was home and stayed the night last night. Maxine (the cat) followed me out to the kitchen when I went to talk to Travis and she rubbed all over my legs and was purring extremely loud.  Then this afternoon when Travis went back to the hospital to visit Demario, Maxine apparently feeling lonely came into my room while I was napping and curled up right on my chest.

When I woke up she stayed with me sat on my phone and notebook while I was trying to make some appointments for next week. She was insistent on getting my attention and having me scratch her.  I guess I made an impression on her and gained her trust. I think that she had finally accepted me into her family and her world. The funny thing about animals is that once they accept you and you gain their trust they accept you and let you in their lives.

Maxine demonstrated early on that she was sensitive to my mood and reacted to my loneliness. That night several weeks ago when she came into my room and slept with me, I believe she felt my despair, depression and loneliness and came to give me warmth and companionship when I felt most alone.  Demario whom she is extremely partial too has not been home and she has been trapped in the room for a couple of days must be missing human interaction.  Tonight she is laying here with me purring, I am home alone and was feeling down when she decided to come and lay with me.

It is my belief that she is lonely and missing her owners and felt my mood and emotions which brought her to come spend time with me. Animals provide unconditional love and companionship when we need it most. But they also need to have that love and companionship returned. Cats love but remain individual and very selective with their affections. Dog on the other become attached and bond deeply with their owners. They are pack animals and follow a single leader the alpha, which in this case is their human owner.

Dogs freely give their love and affection to their owner. Being bonded to their owners and living in the pack makes them very dependent on their human to take care of them. In essence they lose their individuality to the pack they have developed with their owners. They love are faithful and are great companions.

Whether you are a dog or cat person doesn't matter. You have to agree that pets are awesome friends and companions. I think that they also can help stabilize our moods, relieve anxiety and depression. They are empathic to our emotions and moods and are truly there for you when no one else is.  In my experience they also have the ability to help heal us.

After I battled large cell lymphoma and moved to Atlanta my partner Joe and I got two Chow Chows. One was named Pooh Bear because he looked and acted a lit like Winnie the Pooh. The other was a female Blue Chow and her name was Midnight. Pooh was bonded to me because when he was a puppy he was attacked by another dog and I got in the middle of the fight broke it up and took care of him. Also Joe traveled a great deal when I first moved to Atlanta and Poor was all I had for almost 8 months. He was my companion and best friend. I also had a cat named Sneakers at this time who I raised from 4 weeks of age feeding her with a bottle and keeping her safe.  Her mother was killed and I did everything I could to keep her alive.bdo she was already bonded with me.

Sneakers, Pooh and Midnight became my pack. They we're as dependent on me as I was on them.  It is my belief that I enjoyed almost ten years of being cancer free because of them.  Pooh died  seven years after I got him with stomach cancer. Three years after Pooh died I lost Sneakers, she hemorrhaged and died in my arms. She literally crawled to me dragging her hind legs and intestines to get to me. She was 14 years old. Midnight lived a little while longer but suffered a stroke, became blind and became very ill. While the three of them were alive my cancer remained in remission. I believe that all three of my animals were bonded with me and took on my cancer to spare me. I loved them dearly and was with each one of them when they passed. They were my children and my family, I had them cremated and had engraved urns with miniature statues of them attached to their urns.

Unfortunately last summer when I went to jail for 60 days and my landlord decided that I abandoned the house I was living in literally threw all of my possessions away. My social security check was also stopped and I was unable to pay for my rental unit any longer. I lost everything including their urns. But, my point here is that as long as they were alive my cancer remained in remission. It wasn't long after Pooh and Sneakers died my cancer came back and I lost my large intestines. Prior to my first surgery my dad and I found a yellow lab puppy. Her name was little bit, she was a very special dog. So smart and had the loving personality that Pooh had.

If I believed in reincarnation I would swear that little bit was Pooh come back to take care of me. My first surgery was extremely painful. But little bit was with me through it and the 29 other surgeries that I had. She became a service dog and loved me so much and I miss her dearly. Since then I have had other pets. A cat named Tigger who decided that he liked living outside but always came back home. He slept with me every night and was definitely my cat. I had Skylar and Madison both black labs but I lost them all and maybe that is why I am once again battling cancer. Because I don't have a stable environment to live in and I no longer have a pet.

It is my belief that animals as pets love and protect us with their very lived. They feel our emotions, moods and balance our energy and our lives. It is my belief that they have the ability to heal us mentally, emotionally and physically.

However, the funny things about animals is that they are very selective in accepting a human owner. But once they do they are there for you always. They are you comfort and companion when you need them the most.

As always my hopes and dreams are with you. Laugh often, live well love deeply. It's your life your time enjoy it. It's all about you now. Stay focused and do you. Say no when you need to and stick to it.

Uncle B

Wednesday, January 17, 2018

Where does it go! Why so fast

They say "Easy Come, Easy Go", and I immediately think about my money. Getting paid once a month really sucks and usually by the 10th of the month I am totally flat broke. Especially when I was used to getting paid every other week and quite a bit more than I am making now. If it was just me that I was supporting my money would go a bit further I think. My income was never meant to support more than one person. But for three years I was doing considerably well.

But, then my relationship failed and my ex took off to Atlanta which threw me behind in every aspect of my life. I got behind on my electric, cable, rent and just about every other aspect of my life. I ended up losing my condo and from that moment forward I gave been struggling.

In December I finally got tired of struggling and made a move to try and correct that situation.  At this point I have come to stay with a friend and his partner.  I have taken control of my medical situation and have reached out to try and get myself established in Jacksonville.  January has been a month of appointments trying to get the care I need and establish myself with the appropriate agencies that can help me and keep me off the streets.

Though this journey is just beginning I am hoping that they end result will bear the fruit that I need. But if January is going to be any guage as to how things are going to be then I maybe in trouble.  Because before I knew what was happening my money was gone and the struggle has been real.  Though my luck has turned around a bit with credit. I fear that it might cause me to drift back in the wrong direction financially. So this evening I started laying out a plan to get a budget in place that should help me plan a bit more towards saving money.

Further, by encouraging my partner to fill out and get food stamps will help with the food situation thus making February easier financially.  This month was full of unexpected expenses that I shouldn't have next month. There were 3 trips to and from Daytona that I had not planned on or prepared for.  With that being said I know that next month there will be trips back to handle legal business but after that things should go back to normal.  I am not sure what the outcome of court is going to be but I am hoping that no matter what I will be able to start saving money so that I can finally get into a new place that has everything that I would like to have again.

Flying by the seat of your pants and not budgeting adequately can lead to living from paycheck to paycheck. This year it is my goal to get away from living that way. I fear that the next several months are going to be full of struggling to get to that point because I know that no matter how well you plan unexpected expenses crop up.  Yet by May I hope to have created a buffer that will take care of those. But as with everything in life you have to start from square one and move forward.

I have never found a way to jump ahead and stay there. Because there is always something lurking around every corner that you haven't thought about or included in your original planning.  When I was working full-time and I had money it was easy to over spend and live beyond my means. Then when I got sick, unplanned and unexpected, I was forced to leave the work force and depend on social security. This was definitely something that I wasn't used too and I still struggle with the amount that I currently make.

Though I do believe that I am finally getting the hang of things and becoming more comfortable with my means. I still find that my money goes out way faster then it comes in. Yet, with the proper help and support from my partner I think that it will become much easier in the future.  I know in the past that we talked about money and finances, but apparently it was a lesson that I needed to learn all over again. Because here we are talking about it once again. The one thing to keep in mind is that if you have more withdrawals than deposits it is easy to go out of balance and negative.  Therefore it is important to know what your expenses are and budget accordingly.

In my budget I am padding in a $100 buffer each month. This will be applied to savings and will add up rather quickly. This will I hope give me the opportunity to eventually replace the things there I have lost and give me the ability to fix some of the negative things that are affecting my credit at this moment.

In a couple of months hopefully I will be able to come back to you and report that "Easy Come, Easy Go" is no longer something that I fear. That I will be able to report to you I have stopped living from paycheck to paycheck and that I have been successful in saving money each month.

Here is my advice to you on a simple budget. Gather all your monthly bills and expenditures together from the previous month, pull out a notebook and at the top record your projected monthly income. From there it is simply enough to create a line item for each bill subtract it from your projected income and keep a running tally of what you have left after each line item.  As you pay each bill  go back to your budget and record your actual. Compare your projected and actual and keep track. This will also be useful to you when balancing your checkbook each month.

As I have noted some of my projected payments will not be as high as my actual so already I have created a buffer and will be able to save more in the long run or that is my hope and goal.

As always my hopes and dreams are with you. Laugh often, love much and live well.

Uncle B

Wednesday, January 3, 2018

Easier written

I find that it is much easier to write down my thoughts and feelings then it is to verbalize and say them aloud.  Expressing oneself is vitally important in today's world.  Learning how to release pent up feelings and emotions is essential in maintaining successful relationships.    Yet, in my experience you must begin with yourself. During the past year I had to relearn an old lesson that I should never have forgotten. It took me years to learn that you have to be completely honest with yourself and with others that you are in a relationship with.  During the past year I was less than truthful in dealing with my partner.  More to protect him then in attempts to hurt him. Yet, damage to our relationship has been done.  I am not sure if the hurts that I caused and the damage done to our relationship can be undone. 

However in 2018 I plan on giving my relationship one more try. One more effort to right the wrongs that both of us have done to our relationship. If it doesn't work out this time then I guess it really wasn't meant to be.  This is a new place for me, a chapter in life I have seldom chosen to walk down.  This will be the first time in years that I have chosen to put myself in a place where I am willing to go back with someone and try to erase all the pain and failures of the past.  Literally, I have been down this road several times with this same person.  Each time they promise to change to be different and better than what they were. So far each time the situation either remained the same or has gotten worse.  I just hope that he can abide by his decision this time. Has not been lying to me and just saying what I want to hear. Because I really don't want to waste my money once again bringing him into my life for it to just blow up in my face once again.

With the title of this entry in mind I see that I am doing it once again.  I sit here writing about my feelings and my fears. I will have plenty of opportunity to talk about them on the return trip to Jacksonville.  That's if he is actually going to come with me this time. 4 other times in the past I have made the offer to have him come with me and 4 times he has backed out.  What he needs to understand is that I am doing this to help him.  I am jeopardizing my welfare and my place to stay as well as my personal funds trying to help him.  However, this is the last chance that I am willing to give him. I am not going to be doing the drugs and other things that have been common place in our relationship,  I am not even going to entertain opening that door not once. 

Well, it has been two weeks since he came up to Jacksonville. It was a very expensive endeavor bringing him up here, but I knew that it was going to be. Money this month went so quickly that I have had to change some of my plans. With him being up here my rent increased by $200.00 and food has become an issue. However, as things go I think that everything will work out once him and I get established here in Jacksonville.

With the amount of doctors appointments it really isn't possible for me to get a job and go to work. Though I have thought about it more than once. I have been trying to encourage my partner to at least apply for food stamps and try to get some other types of assistance. He has asked me to help him and since he had to go back to Daytona to meet with pre-trial services I think that I will take the opportunity to work on applying for him.  With at least that much help it will go a long way towards easing part of the financial burden that has been on my shoulders. From there getting him and my ID's straightened out will possibly enable him to get a part time job which would also help. If I can convince him that he needs to give me $350 a month for his portion of the bills not including what he gets in food stamps will make it so much easier for him and I to get a place of our own.

My goal at this point is to try and fix the damage done in the past. To encourage and open honest and direct communication. Promote getting at least a part time job so he can help me with the bills and get the things he wants.  It is my hope that I will be able to bridge the gap between writing about my feelings and actually expressing them.

By writing this entry I have become more focused on what I need to do and hope that with his help and the encouragement of my friends that he will begin to see the need to try and change and help me. He feels that he needs to be around to help take care of me. But the truth of the matter is that he really needs to start by helping me financially and get us back on to stable ground. This will be the most beneficial thing that he can do, which in turn will help me both physically and mentally.

As always my hopes and dreams are with you. Laugh often, love much and live well.

Uncle B

Tuesday, January 2, 2018

Even Today

Today I met with UF Health CARES only to find out that my paperwork from Daytona was not conpletely faxed across. I couldn't prove that I ever had a registered viral load. Too the doctor that reviewed the portion of the test that came across the fax it looks like I have always been undetectable.  This one mistake made my entire visit there non-productive. I had to have my blood drawn to get a new proof of positiveness letter and reschedule my appointment for 2 weeks away. This is rather disappointing because that means it will be another two weeks before I am finally enrolled in Ryan White services.  I can tell you that the visit wasn't entirely a waste. I met Brandon during my visit, a highly intelligent young man who besides being heterosexual, he was also born with HIV.

Though we didn't have as much time I would have liked. I got to discuss a bit of his story as I told him my own.  One thing that I was capable of doing was answering many of the questions that he had.  I am amazed that even today persons with HIV can still feel prejudice and stigma. Which can trigger deep depression and feelings of fear, persecution, alienation. All of which can instill a deep and abiding sense of worthlessness and a lack of self-worth.  Which according to Brandon has often made him feel as if he were a burden to others and unlovable. 

His most relevant question for me was how do I stay positive and grounded? Luckily for him I was asked almost the same question not an hour before by the social worker for my primary care team at the VA. My answer to their question was simply that first I don't dwell on my illness and second that I use my blog as a sort of catharsis.  That's right my coping mechanism is writing in my blog as well as telling to others my story every chance I can.

Like Brandon, I still deal with stigma and fear. I also know from our talk today that fear is a constant companion. Like me, we both fear how others will react to our disclosure of our illness. How others will receive us.  The fear that others will reject us and thus diminish our hopes for a relationship. There are now treatments that a mixed couple (one poz and the other not). This maybe an option for some. But what if your potential partner isn't willing or not educated about it.  However you decide to handle this dilemma is up to you.

But there is a whole lot more to Brandon than meets the eye. He feels compelled to help others, he has dedicated himself to the expansion of HIV research. In his own words he felt like he had a debt to pay becausr of everything he went through and his still being alive. With that debt in mind he dedicated himself in his sisters memory to constantly trying make a difference and help those around him.

Whether we want to accept it or not fear, misconception , stigma and prejudice still persist today. There are groups like the positive champions speakers bureau that work hard to stem these injustices and seek to educate and elighten the community of the truth of this disease. Back in the 1980's and the 1990's HIV/AIDS was headline news. There were marches, charity drives, concerts and an outpouring of information. Now,  there is barely mention of AIDS Related death's and one rarely hears of the infection rates. Yet, one thing that I have learned is that in some of the nations largest cities. The majority of people being diagnosed, are dianosed with full blown AIDS versus being diagnosed with HIV.

As I explained to Brandon that my telling of my story has a two fold reward for me.  It gives me the opportunity to talk to others one on one about what I went through and how it has affected me both positively and negatively. The second is that I am inspiring hope in others who might have given up on themselves and society in general.

One of the things about me is that I truly enjoy talking to people and it makes me feel like I am helping others and gives me a sense that I am giving something back to the community.

So if you are looking for a way to cope with your feelings of anxiety and depression or are looking for ways to deep or cope with stereotypes and stigma. Then maybe you should take up writing and talking to others about your story. I honestly think that you will find that your depression lessens and your self-worth will increase.

You are not doing this for yourself alone yet you will reap the most benefit from doing these things.

As always my hopes and prayers are with you. Love deeply, laugh often and live much.

Uncle B