Walk away While you Can. You don't know when your last moment will be.

I may be preaching to the choir, but many of you don't seem to realize the truth behind the message that I am trying to send out to you.  For years I lived in Atlanta, and in 2012 I moved back to Florida because I was having severe issues with my kidneys and many of my doctors thought that I wasn't going to make it.  When my father offered to buy me a ticket from Atlanta home, I took the offer and I have been fortunate ever since.  I have been back and forth to Atlanta many times since then, my last visit was in 2014.  I had gotten stuck there and ended up landing at my friend Chris Tucker's house and stayed with him till I could find a way back home to Florida.  I had gone weeks without my medication and had run out of Colostomy bags and I was in a miserable place spiritually and emotionally.  If it wasn't for my ex's mother, caring about me I would have gotten much worse than I was, she took time out of her schedule and drove me to the VA hospital in Atlanta, and got me some Colostomy bags so that I could hold on till I found a way back home.

But it is now 2018 and the world has gotten darker and each morning I wake up to news that I have lost another friend or acquaintance because of an overdose.  Drugs have become a major problem for the middle and lower class society here in America and it isn't getting better no matter how much money the government spends on their war against drugs.  Prescription pain killers, Methamphetamines and Heroine are the drugs on the street, easy to come by and readily available.  Fentanyl is being used to cut many of the substances that are readily available to drug users and is the leading cause of death from ODing.  Since 2017 I have lost close to 150 friends and acquaintances to overdose, and that is way too high.  The number needs to be zero!

By December of 2017 I had my fill of the drug culture and society that Daytona Beach, Florida hosted. I was tired of being homeless, hungry, scrounging for drugs and constant theft.  I was tired of freeloaders and others that were just around because they knew that I was connected and could find them their next fix.   So I packed up what few things I had left and I moved to Jacksonville, FL where I started over.  Within a few months I was on my feet and doing well for myself.  I had gotten a job, got myself back into care and was making improvements in my life.  Things were going good for me and I wanted to share them with my boyfriend and partner, Dominic.  Unfortunately, after being in Jacksonville for a week he decided that he missed the old life so much that he went back to it and left me sitting at home.  He kept saying that he was coming back that he wanted to be with me, but every opportunity he had he squandered and stayed struggling with his addiction in Daytona.  Now there is a reason why I am telling you all of this and it is to paint a picture for you and to tell you my story.  What happened to me and why I am thankful now that I am finally clean.  The setbacks and mistakes that I made along the way and how I am focusing on myself to avoid making them again.  Each of us can relapse at any moment, it happens, and it is something to be expected from time to time.  But let me tell you something that you might not be aware of.  You never know when you draw up that last shot or snort your next line if it might be your last.  God is with you and is going to continue to be with you, but He only gives people so many chances to change their ways before he takes those chances away.

In late February I started talking with a friend of mine and Dominic's, I listened to what he told me, which turned out to be my mistake, because I went from the frying pan into the fire.  Will had painted a picture of Dominic that was very easy to imagine, used words and arguments that Dominic and I had in the past that only could have been come from him to Will.  Will had me so convinced that Dominic didn't love me and that Will was the better person who was going to come and take care of me and sweep me off my feet.  The reality was so much different then the fairy tale, let me tell you.  Yes, Will did show up and get a job within the first couple of days being there, but the cost of bringing him down from Pennsylvania, and then the expense of having stay with me, began to take a heavy toll.  Not to mention that he chose to leave the 1st week of April supposedly to go to court, yet I found documents that he left behind showed that he really didn't have court, he just took off.  Trying to minimize my losses I tried to close my bank account which never happened because he over drafted it by 800.00.  I ended up cancelling the credit card that was used to rent the car he drove to Pennsylvania, but even today I am being sued by Hertz because there was damage to the car, it was turned in late and in the wrong city.  Now let's talk about the reason why he left.  Plain and simple he brought drugs into the home after he was told not too.  I ended up doing them with him and relapsed.  He got funny and stayed away from me but accused me of trying to pick up the neighbor and some random kid off the street.  It got so bad that he got physical with me and when that happened it was literally over between us.  Dominic and I were together 3 1/2 years before there was any violence between us, and after all the fighting Dominic and I had been through and the associated abuse, there was no way I was taking it from someone else.  I was determined and shut myself totally down.  I wouldn't give Will a break nor another chance.  It just wasn't in the cards.

Meanwhile Dominic had been left in the cold and locked up in jail in Volusia county because he failed to appear in court even though I had sent him back in enough time to make the court date.  Because I was so angry with him and I wanted to make sure that he was the right person for me, I wrote him a detailed letter explaining what I thought I knew, everything that Will had told me, I explained that I understood that he wasn't attracted to me and didn't want to be with me and that Will was there now and we had made plans and things were going good.  I did however send Dominic a care package as I normally would have but I let him sit in jail. I really thought it was the best thing to do and I thought that it would teach Dominic a lesson and everything would turn out for the better.  What I didn't know is that my roommate's partner was going to die and that my dad was going to find out that he had stage 4 inoperable lung cancer and that my world was going to fall back apart.

I ended up going back to Daytona, at first to get some drugs because my roommate really needed them to cope with the passing of his partner.  But I went back on the promise of making some money by helping a friend try and get a car.  I figured this would help me recover some of the losses I took when Will left.  But it only made my life so much worse.  I ended up getting my car, wallet and Iphone stolen.  My checking account was flooded with fraudulent transactions and I got extremely sick and ended up in the hospital from the end of May till the beginning of June and then to make matter worse from June 20th through the end of the month, then ended up back in there from the 1st of July till the 28th.  Again my car was stolen and this time was involved in a couple of accidents.  I lost my place in Jacksonville, was strung back out on drugs the entire time I was in Daytona and was extremely sick on top of it.

Dominic got out of jail while I was going through this series of events and was so angry with me for the way that I left him and let him sit in jail that he wouldn't talk to me and only wanted to fight with me.  This made my situation that much worse because the one person who I thought would understand what I was going through would be him.  But he turned his back on me and left me to my own devices, which on hindsight was probably for the best.  In Mid-July my father and I had a blow out my step mother drove me to the McDonalds.  I ended up having a minor heart attack and ended up back in the hospital till the end of July, Dominic got caught shoplifting again and was in jail and I ended up having no place to go when I got out of the hospital.  I ended up calling my life long friend Judy in Orlando and asking her if I could come and stay with her till I could get on my feet again.  I have been here since July and it is now Mid-December and I am still here.  Dominic and I eventually start talking and set our differences aside and made up with one another and when he finally got out of jail I brought him to Orlando to stay with me and Judy.  Unfortunately, that wasn't going to last because in October when I took Dominic back to Daytona to court he met up with some friends to get some of his clothes and jewelry and the next thing I know he has brought drugs into the house.

This led to major problems.  Both of us relapsed and he ended up cheating on me with someone else and I got hurt. He fought with my friend and roommate and was asked to leave.  It wasn't pretty, but it is what it is.  I took him to a friends in Deland where his relapse continued till he ended up back in jail on November 25th.  He is still in jail today but we are hopeful that he will be out by the 19th of December and we will be able to finally spend our first Christmas together. Since we have never been able to share a Thanksgiving, my birthday or Christmas together since we got together in 2013.

I went into this whole story to show that everyone no matter how hard they try is prone to relapsing and falling back into a habit and pattern of usage over and over again no matter how far or how hard they have tried to get away from the drugs and the people that have them.  Because we are all human and we suffer from anxiety, depression, insecurities it is hard to stay away from a long term habit like that. I used to think that by changing the people you hang around, the place you live and your entire surroundings that you could totally escape it.  That isn't the truth! It will be a life long battle trust me when I tell you this.

But now let me talk to you about the friends and loved ones that weren't so fortunate as me and Dominic, those that didn't escape the epidemic that is sweeping the nation and the world.  Many of my friends are no longer here, so it is my job to convey to you their story to leave with you the last thought that they each had before the past from this world to the next.  Like Dominic and I they thought that it would never happen to them, that they were stronger than the addiction and that they could do just one more line, one more shot and it would be okay.  But, in all cases they were wrong.  My dear friend Jade was found outside of an abandoned resort so desiccated that they could not identify her by anything other than the serial number on the pacemaker that was installed in her heart because like many of the young ladies in Daytona she contracted Cardio myelitis and cardiotoxicity associated Methamphetamine usage.  Neil was found blue and in his car dead because of a hot shot that had been laced with heroine.  So many other I could name have lost their lives to drug use and overdosing.  But drug use alone is not the only cause of loss of life, many of the gay people I know are heavy into the use of methamphetamine to get their high and intensify the feeling of sexual activity. Many of them have poor diet and end up forgetting or stop taking their medications and before you know it they have complications to HIV/AIDS that they are dealing with.

To sum up what I am feeling and the fears that I have for you I am going to include an earlier post that I made a couple of days ago.  But first let me tell you that each time you pick up that needle, make your next line, you are taking your own life into your own hands.  You think that you are strong enough, that you don't have an addictive personality or you can handle it just one more time.  You are wrong too many of our friend are no longer here because they too thought that way and felt that they could beat back the addiction that was plaguing them.  We are not strong enough alone to combat this demon, and it will never be a battle that can be fought and one by a single decision. This is a life long commitment and a struggle that will consume you for months and possibly years to come.  But I have known others that have fought and won, some days are harder than the next, some days might be easier to cope, but after a time the fight will become second nature to you and you will stop focusing on the battle and will begin living again.  Reach out to those around you, tell them about your issues, your addictions and ask them for help. The first step in dealing with a problem is knowingly acknowledging that you have one.  Do not be ashamed to ask for help or guidance it may just save your life.  So now I want to dedicate this to my fallen friends, lost loved ones and anyone else who is battling this dreaded demon of Drug addiction.

To all the friends, family, loved ones, acquaintances that I have lost my heart goes out to you and I want you to know that my world has become less bright and so much smaller since you are no longer in it:

Listen everyday I wake up and the world has become a smaller place. I have lost too many friends, relatives, and people I care about to this drug epidemic that has hit Florida. My heart is in Daytona Beach and everyday some is ODing or getting locked up. What will it take to get you to see that the few minutes of a high is not worth your life! The grief you have to go through to get the stuff, not to mention the constant loss of clothes, material possessions, the couch visitors and homelessness that accompanies it all. The daily struggle, the daily loss, sickness and just miserable feelings!

Please understand I am your friend I am trying to look out for you. I got tired of being walked on, homeless, struggling for food and housing, I got fed up with asking for help and never finding it. The constant drama that followed not being able to always supply demand. I want better for all of us. I want to stay clean and sober, if I could I would continue to help everyone!

Yet, I reached a limit and had to put myself first. Everyone else second. It doesn’t mean I love you less, it means that I finally realized that if I am not clean I cannot expect anyone else to get there either. That if I couldn’t take care of myself I couldn’t help anyone else. I am struggling right now but I am moving forward. Staying away from the drugs and bettering myself. I have a hope for the future and I am working hard to create a reality of safety and security. I am going to get this right and lead others to follow me.

We have lost enough, suffered enough, endured enough. We have survived so far and have changed, grown stronger and wiser. We have heard it all, know all the excuses and will not tolerate anything but the best from the rest of you. Join me we can beat this thing together. Grow stronger and make a difference!

-B

As always my hopes and dreams are with you,

Uncle B

Death comes for us all

Back in April my father found out that he had late stages of lung cancer.  By the time that they found the large mass in his lungs he had already developed 2 matastasized tumors in his brain.  Within a few days of finding out that he had cancer he was in the operating room and had brain surgery.  He recovered from that rather quickly and seemed to be getting stronger.  However, when I went to visit him in June he had started treatments and was feeling sick all the time.  I must admit that my troubles in Daytona with my car, and then my wallet and checking account plus being in and out of the hospital all the time didn't help his situation.  At one point he told me that I made his life miserable, why couldn't I just leave him alone and not make his death miserable.  I was hurt because my father is my go to person whenever I am having problems and he has been there for me every single time that I needed his advice or rescuing.  My step mother talk to me one afternoon after him and I had a fight and told me that the medication and the steroids they had my father on was making him angry and crouchy and that he didn't mean to hurt me.

However, in a way I think some of what he said to me that day was true.  Over the past 6 years my dad has had to rescue me or bail me out at least 15 or 20 times.  I got stranded in Atlanta, Ft. Lauderdale and struggled since my break up with Kerry.  My dad was there for all the problems that Dominic and I had and all the fighting that him and I went through. Dad had to come and get me several times when the fighting became physical.  My dad has been my rock and sounding board since I got sick in 2005 when he came to live with me and Joe and take care of me after my first couple of bowel resections.  It is hard to think of the man who has been there for me so much in the past to be down and out like his right now.  As a matter of fact his birthday is just a few days away and he is going to be 73 years old.  It makes me feel bad that the last summer of his life I made him miserable and had him worried about me and my welfare when his own health was hanging in the balance.  But the job of a parent doesn't ever end no matter what is happening.  I am just learning this now.

I hope that my dad gets better and is able to read this post because I want to tell him that I am very appreciative of all the things that he has done for me and that I am thankful for all the times he has been there for me and that I am going to be lost without him.  He is right that I never grew up and I don't know how to live on my own.  I don't know how to deal with people and that I am better off on my own.  Because I really don't have a clue as to what I am doing.  I am very intelligent but I don't have any common sense at all.  I was lucky when I met Joe Royer and I left Orlando and I went to Atlanta.  He was the stabalizing force in my life, he had the practical knowledge  on how to survive, and since him and I separated I have been drifting and struggling with people, emotions, and drugs.  I found my refuge in my high and I used it to escape the reality of my situation and my disability.

I have some growing up to do.  I have to figure out how I am going to survive on my own without having my dad as a safety net.  He was correct that I could take chances in my life because I knew that he was right there and would help me pick up the peices of my life if I failed or made a mistake.

Maybe I took that too much for granted, and didn't tell my dad as much as I needed to how much he meant to me.  Now that I am sitting here this morning I am really scared and wondering what I am going to do if he dies. I know that sounds silly and selfish and pretty childish, but honestly I have never truly been on my own,  all I had to do is pick up the phone and call my dad.  Last night when I was told that my dad was in the hospital again, and that he wasn't doing all that well, I got to thinking about how much he means to me and what it would be like to loose him.

Apparently, according to my step mother he has contracted a virus and hasn't been eating or drinking and has not been in his right mind in a couple of days.  He apparently doesn't always know who is around or where he is at.  He mistook my brother for my step mothers son, who is in Ohio and not close by at this time.  This makes me think back to the last few weeks of my friend Demario's life and how right before we got him to the hospital he was experiencing a similar episode and didn't remember leaving one hospital and being admitted at a different one.   My friend never recovered after that and was gone in less than 10 days.  I am hoping that this isn't the case with my father but I don't really know what to expect because this is my first time when I was extremely close with death.  When my grandparents died I wasn't anywhere near them and couldn't tell you how they acted.  But, I was there for Demario's passing and I know the struggles that he went through and I am seeing a similar pattern with my father.

I know that each of us has and allotted time upon the Earth and when it is our time it is our time to go.  That there is nothing that is going to change that fact, but there is still the hope that more time will be granted if asked for.  The mind and the body are incredible pieces of machinery that have the ability to adapt and overcome to a myriad of illnesses and disabilities.  The human brain can cause miracles to happen and heal wounds by sheer though power alone.  But I also believe in the healing power of prayer.  I believe that God has a plan for each of our lives and that He is the ultimate physician and can heal the body totally and instantly. 

I would ask all of you to keep my family, especially my father Bryan Zepp Sr. in your prayers.  Because I don't think that it is quite his time to go just yet.  I would ask for prayers of total and complete recovery and the lessening of pain so that he is comfortable.

Please do this for me.

As always my hopes and dreams are with you,

Uncle B

No take backs

What's done is done and I cannot change the facts.  All I can do is face the results of my decisions and take responsibility for my actions.  For several years I was an advocate and public speaker, volunteer and committee member of the PCHAP in Volusia county.  I worked closely with a gentleman named Jeff Allen and he introduced me in to the world of advocacy and education.  It is with a heavy heart that I am writing this tonight because on July 28th in a tragic accident Jeff lost his life and left behind his life partner and best friend Jim Geary.  It is to my everlasting shame that I wasn't there for Jim or the other members of the Positive Champions Speakers Bureau through the loss of their leader and mentor Jeff.

In 2014 my life started to fall apart at the seems my lover Kerry Rutherford Jr. left me and went back to Atlanta, and from there I started on the downward spiral.  What transpired in my life was not triggered by the my loss of my friend and partner alone,  but I made it worse by my turning back to drugs and dependence on them to get me through the day.  I was in and out of the hospital from 2014 to 2017 with chronic renal failure, Hep C and Renal Carcinoma and esophagus cancer.  Financial issues and homelessness became a constant struggle for me and I soon lost the ability to volunteer and attend the duties that I had signed up for.

Jeff was there for me during these times, would come see me and talk to me whenever I picked up the phone and called him.  Jeff, understood me and accepted me for the person I was with all of my flaws and all because he suffered from similar addictions and knew the battle that I was facing.  I never saw sympathy or ridicule in his eyes only love, compassion and understanding.  He always had a kind word for me and a smile and told me that I was welcome back when I got my life turned around.  Unfortunately, my turning around of my life took too long and I have lost my friend and champion when he passed away. 

I have finally gotten through my own recovery and I am healthy again, I won my battle with cancer and hep C and I have overcome the addiction issues that were holding me back.  I wish my friend Jeff could have lived to see my victory.  He was and is an inspiration to me and his story has helped me deal with my own issues and move forward with my life.  I am so glad that I met him when I did and he helped me in so many ways.  He was the one who encouraged me to write and helped me get myself together a few times over the past 7 years or so.    It is my hope that I will be able to leave my imprint on this world in a loving manner that he did.  I may not be the advocate or champion that he was, and I may not have made as many contributions to the HIV/AIDS community as he has done.  But he encouraged me to write and to help others through my writing and I have continued to do that despite my struggles.

I can only hope that my life will be an inspiration and testimony like his was.  He was a shining beacon of light and hope that drew others together to champion a cause. He was relentless and once started something fought for victory and would accept nothing less. 

I cannot take back my actions and I have no way to change what has come to pass already, all I have the ability to do is continue forward and make positive changes in my life and help as many people as I can by following his example.  When I see a need I need to address it in the appropriate manner and strive to make a permanent change in our world.  Equality, fear and persecution are still things that we as a community are still fighting for and against today.  Jeff had a huge heart and a loud voice that was heard around the world and throughout our community.  I can only hope and pray that my voice will carry like his did. 

As I stated earlier there are no take backs but there are areas for which improvement can be made and I would like to dedicate myself in the memory of my friend Jeff Allen to always fight for the underdog, advocate for greater equality and better funding and healthcare, housing and the needs of the HIV/AIDS community.

I am going to miss my friend more then ever.  But I hope that I can do some good and effect positive change in this world.

As always my hopes and dreams are with you, Jeff,  I hope that you are Mary are looking down and can see that you both impact my life in different ways, but have been the driving force behind many of my actions.

I am going to miss you my friends and I will see you soon.

Bryan

Life is Finite

08/29/18

Getting older, aging is a part of life itself.  You know that life is fleeting, that we are here one minute and gone the next.  This is part of the Human Condition, it is inevitable and everyone of us must face the certainty of death to come.

Most of us measure our lives in years, some by achievements, others by amassed wealth or possessions.  No matter how you measure your life you know that at some point it is all going to come to an end.  Some plan for it, other's are taken completely unaware, and some live by the moment.  Because living in the moment and by the moment keeps them in the present and leaves no room for the past to hold them back or slow them down, that way they can experience and enjoy every moment they have upon the Earth.

It's very hard for me to live in the moment and stay there.  Being sick for so long I have tried to teach and program myself to live in the moment and not take each day for granted and enjoy the time I have and give thanks for every new dawn that I get to draw a breathe, but my past has a hold on me and maybe it is fear that is locking me down or just not wanting to totally give up on people that has me constantly looking toward past relationships hoping that one day they might come back into my life.  I have explored this in other post, but I honestly think that because they were able to accept me for the person I am with all of my physical limitations and illnesses, that I fear I won't be able to find anyone that will be able to in the future.  I know that I am not perfect and I have made many mistakes in my life.  That too is a part of the Human Condition, we learn from our mistakes and the more painful the mistake the greater the lesson that is learned.  I once believed that the only way that we truly learn is through pain, however as I have gotten older I am beginning to see that humans have a a greater capacity for learning and understanding than I once had given us credit for.  I have since learned that we also learn through memorization, repetition and through trust, these are the most common ways we retain knowledge. 

Yet wisdom is something that is gained from knowledge accumulated over time and put into practical use and practice.  Just because you have some knowledge and understanding it doesn't mean that you are wise or have achieved wisdom.  I think wisdom is knowing when to apply your knowledge and understanding tempered with kindness and compassion.  This can take years to achieve and is something that we gain as we age and mature.  It is not something that happens overnight, wisdom, patience, understanding, compassion and knowledge all go hand in and hand.  In order to achieve the state of wisdom you must master all the required parts.

As most of you are aware I have been sick since 1992.  Not every single day but more often than not.  I have battled many types of cancer along with hepatitis C and HIV.  I have experienced chronic renal failure, had more surgeries than you can imagine and recently started experiencing heart issues.  No one knows better than me how fragile this body is, how tenuous our life is and how fleeting the moments we share with other can be.  No one knows when we are going to die, not the hour or the day.  Some of our lives may be long life, others will be cut short. None us can fathom the cause of our own demise whether it be from illness, tragedy, disaster or some other form. 

I have always tried to cultivate lasting relationships, I have wanted to be in all the way for the long haul.  Everywhere, I have gone and every person I meet I try to lay the groundwork and foundation for a long enduring and lasting friendship.  Many of you I have met in high school, college or during my time in the Navy, others still from my time when I was in Atlanta, when I moved there 25 years ago.  Technology has come a long way enabling us to reach out and talk to each other.  FaceBook, Twitter and other social media have given us a platform and an environment where each of us can showcase our lives and achievements.  Where we can record the narrative of our lives and reach out and connect with those that we have lost contact with over the years.  Times have sure changed!

In just a few short months I will be turning 50 years old.  Many of my friends and loved ones didn't make it to my age and I miss them sorely, and think about them all the time.  I find turning 50 both a blessing and a curse, I had never in a million years ever thought that I would ever make to this age.  I can remember when I was in my early 20's thinking that I wouldn't ever reach 35 and that was so old back then.  I sneezed and looked in the mirror and wow look at all the time that has passed.  I still grieve and mourn for those that have come into my life and are no longer with us.  Many of whom I feel were more deserving than me to live, yet they were take away totally too soon.

Many of my peers can relate, we lived through the 80's and 90's and lost so many friend during that time.  Even though I am aging and my body is weakening and falling apart, I will tell you that I am thankful and grateful to be here with you still today.  But life is finite, it is fleeting and sometimes very brief.  Please be sure to make time to talk to those that mean something to you.  Reach out to them and tell them that you love them, and appreciate the.  Let them know that you care and they are important to you.  There are so many friends that I have lost over the years to drugs, disease and tragedy that I wish I could have told them how much I cared about them and how much they meant to me.  If I had the opportunity now to tell them something I would tell them that I miss them every day and wish that I had been a better friend and knew how to communicate better with them when they were alive.

I don't know how much time I have left. You don't know how much time you have left either.  Somebody can be in your life one day and be gone the next.  I know this from very personal experience.  I just recently lost a roommate and a very good friend around the same time that I found out that my dad had extensive lung cancer and metastasized tumors in the brain, my brother is dealing with End Stage Renal disease and my mother a paraplegic and extremely ill.  This has all come to light in just a very short time span and I don't know when or if I will ever get to see any of them again.

Do yourself a favor and reach out to those that you count as a friend and loved one let them know exactly how much they mean to you, tell them that they matter to you.  If you aren't truly there for them like you should be or if your friendship is strained then make and effort to fix it before it is too late.  Save yourself some regret and make it right. Because you just don't know what tomorrow might bring.

So at this time I want to reach out to each and every one of you.  I want to say thank you for being my friend.  Thank you for listening to me, being there for me! You are important to me and I care about you and I am thinking about you a lot.  Pick up the phone, drop and email, write a letter, send a card do something! Let's get our friendship back on track, you are part of me, you have taught me so much and I am grateful for you each and every day.  I miss interacting with you, being able to see you and talk to you.  I want to reclaim our friendship. I am here for you and I love you.  My life is more complete just because you are in it and I wouldn't want it any other way.  We need each other!

LIVE IS FINITE IT HAS AND END! I want you to be there with me all the way! What do you say I look forward to hearing from you soon.

As always my hopes and dreams are with you,

Uncle B

Saturday oh what a Day

You may be wondering where I have been for so long and why I haven’t posted anything?  Well I have been in and out of hospitals and recovering from all sorts of medical issues, then there was the fact that I lost everything that I owned that was up in Jacksonville.  I may never find out what really happened to my stuff, I just know that what I was told seems highly unlikely to have occurred and I am saddened that I lost a friend over stuff like that.  However, may the stuff that he has of mine serve him well as he embarks on the new journey of his life. 

I just know that I was stuck and had no help out of my situation and was constantly in and out of the hospital.  He didn’t bother to come and see me or try to find out what was happening with me, he just turned his back and blamed everything that happened on me and walked away.  He made me very uncomfortable the last time I saw him anyway, and his behavior really left questions in my mind as to his real thoughts and intentions.  With that being said it is time for me to move on and explain why I haven’t written in my blog in so long. 

The truth is that I have been writing and it is all down on paper in a 3 ring binder here on my desk.  But since I didn’t have a computer I had no way to get the information into the blog like I normally would have.  But I have stuff dating back to my final day in the hospital back at the end of July.  I have been in Orlando exactly a month and I have to say that I am in a much more stable environment than what I had been in.  Already everything that I lost except for the car has been recovered.  I have gotten a new bed, a new computer, a new laptop, my iphone service turned back on, an ipad as well as an android tablet.

There are some things that are different though, I am away from Daytona and the influences of the people there, which in my case is a good thing.  I couldn’t understand why I kept ending up in the hospital and why my kidney’s and blood pressure kept failing.  Come to find out that the major artery to my heart was almost 85% clogged and I had to have a heart catheter and angioplasty to fix the blockage.  So on July 15th I had heart surgery.  It was scary, but several good things came out of having that surgery, immediately following it my blood pressure stabilized and I stopped having the dizzy spells and seizures that I had been having prior to the surgery, and my kidney function improved almost back to normal levels.  Indicating to the doctors that I may not be as close to dialysis as they had thought. 

But since I couldn’t get online and give you regular updates I decided to sit down and do it today.  Just last night I was writing in my journal and was talking about what I was thinking about my future and weighing my past.  Something that I have been doing all week actually and most of the posts that I am about to type up are regarding that same issue.  But today was a beautiful day full of sunshine and no rain as of yet.  Which is something of a change in weather for what it has been like around here since the first day I arrived.

No matter what I am headed on the right path at this point, God has given me back all that I have lost and then some.  I am even doing well enough that I feel I am at a new point in my life and can honestly say that I have a future.  I have wrapped up many of the loose ends that I had left in Jacksonville, paid off the bed that I no longer have and the frame, I also got my checking accounts straightened out and I have gotten myself back into care with the VA and got my medicare straightened out.  All and all I am very happy with my progress since I have been here.  But, seeing as I had no other options, and the person who I was staying with and considered my friend turned me out like that, claimed that he had changed the locks and told me that I wasn’t welcome back there, then just a week or so later text me saying that everything I owned was lost that supposedly the landlord had evicted us and my stuff was on the side of the road and gone.

I know that this is not the real truth, it may have some factual basis, but being a retired attorney I know that there is an eviction process and that with me being in the hospital in intensive care my roommate could have used that and gotten an extension, he could have fought the eviction and won especially since he just suffered the loss of his partner and then I had the heart attack and was in the hospital.  But No everything that me and my ex had left up there is either gone or he is using at his own. Either way it is on him.  I know that my situation was extreme and I had people lying too me, stealing from me, and literally trashed my bank accounts, credit cards and the whole nine-yards.  But, that is all in the past and I am in a better place with all new things and life is once again sunny.
I couldn’t have asked for a better Saturday,  I woke up a little tire and a bit sore, but that quickly passed and once I got out and was able to enjoy the sun I felt so much better.  So much so that I am sitting here now typing to you telling you all about it.  I am still having some minor chest pains, but I see the cardiologist next week again and hopefully he will be able to tell me what is going on with my heart and why I am still hurting after all this time.  I sure hope that it isn’t another heat attack coming because the first one was very scary and totally unexpected.

Anyhow, I hope that you have a glorious Saturday like I did.  I am going to start typing my past entries into the journal.  Though they are not actually going to be posted on the date they were written. I will make sure that I put somewhere the date that I wrote them, and hopefully by Wednesday I will be caught up enough and will be able to keep writing almost daily and let you know what is happening and going on.

As always my hopes and dreams are with you,

Uncle B

Everything you said but didn't really mean

You have walked away and left me after 4 long years. You made some promises and said a lot of things but in the end you never meant any one of them.  You said you loved me, but you left and didn't come back, I came for you and you wouldn't come.  Then you blamed me and said things that were hard and untrue.  You tried to turn this around on me, but the truth of the matter is that you never really cared.  If you did you would be here.  You wouldn't have said the thing you did to others.  You had me convinced that I was the problem, yet over the last 2 years the violence has increased instead of walking away you would rather hit me, spit on me and say unkind words.  This is not love, this is not something that one should have to endure. Yet, despite it all I have been there for you, sheltered you and still tried to make things work.

Do you get a sense of satisfaction hurting me and using me.  Telling people that I am nasty and that you can't stand to be around me. But when you are in trouble or in a bind I am the one that you come and find.  I have remained constant and faithful doing what I could to show that I care, yet you are not here your still there. I am going through so much and you don't even care.  You don't call or write, I only hear from you when you need something or want something from me. That is not fair.

My mind is in disarray, my emotions are scattered. My nights are sleepless and I am very restless.  Yet still my heart is hurting because I have a love for you. Despite all that you have done to me and against me I am still here. But that my dear one is about to come to an end.  I am torn you have accused me of talking to others behind your back which isn't true.  Many have reached out and talked to me about the things that you are doing.  It breaks my heart to think that you would be so cruel but the words that I have heard you have thrown in my face before so they can't be anything but true.  I find that it has been you that has spoken to others about me and made me seem a monster. 

I am finding out that I have been scared to leave because I have been afraid of being alone, but it seems so easy for you to throw me away.  I have been reminded recently by many people that if you truly cared you would be here, you would be going through this with me.  Someone who loves and cares about another would move heaven and earth to be with that person in their time of need.  Yet, there you are getting high and still shooting dope after you promised you would stop if I bailed you out. You promised that you would be with me and go to every doctor appointment that I wouldn't have to do this all alone. Words, just empty hollow words it is the same thing every time you are in jail you make promises, tell me that you miss me, that you want to marry me, and stay with me.  Yet where are you now?  Not here!

You went back to Daytona to take care of your legal problems and appear for pre-trial services but guess what everyday the bondsman calls demanding that I pay them for both of your bonds. You are hiding and on the run. I am left holding the bag and soon they will be taking money from my check to cover the $6,500.00 that you were your bonds.  I put my faith and trust in you and you have let me down not this time but over and over again.  I don't know what you expect me to do, I can't live torn up like this.  You have no respect for me, you  have no love for me and you made the choice to leave and not return.  Through all of this I have been patient, I have reached out to you and  I have sent you money even when I knew I shouldn't have.  Days have gone by and I hear nothing from you. I have had serious test run and spoken to surgeons and have you reached out to find out about their outcome?  NO.

I am writing this to try and sort out my feelings, to know my heart and to try and clean the wounds in my mind.  Yes I am hurt, but I need to let go. You are doing nothing for me and haven't for a long long time except make excuses and lie.  I came here to re-build, re-group and get my feet back under me I am doing well with that.  Yet I waste energy and money on you when I should be focusing on myself first.  You have shown by your actions that you don't want me around. I have been told some of the things you think of me.  I am amazed that you can lie directly too me and tell me that you love me and care for me yet still do and say the things that you have been doing.  Karma is a terrible mistress and she will come and collect from you all that you have put out.  People are saying that you are lying and stealing from them, that you are using them when I hear these things I don't know what to say.  I am sad because things that I have been told about you in the past of things that you used to do behind my back have proven to be true and it hurts more and more.

The person that I fell in love with 4 plus years ago isn't you.  I don't know where that man went.  He wouldn't have left me, he didn't leave me when I was sick and almost died, he stayed by my side and protected me.  He would never hit me, but since the trailer on Nova Rd it has become worse and worse.  I am not the type to give up on another person, but it seems that you have given up on me so why should I stand in a relationship all alone?  A relationship is a partnership between two individuals to come together and support one another, to build a better future for each other.  I don't know what else to do but say goodbye and walk away.  Something that you have already done.  Days and weeks go by and I hear nothing from you, yet I continue to pay for your cellphone bill.  You aren't here for me!

I have no idea what you expect from me or what you thought was going to happen. But you have been gone over 3 months and it really doesn't seem like you have any intention of returning. I am probably leaving and going back to California and starting over.  There is nothing in Florida for me anymore. 

Please take care. I do still care, but I can't put myself out there anymore for you.  My heart is broken and it will take a long long time to mend. 

Goodbye dear one, Good luck.

Unexpected news and uncertain revelations

Well 2016 is well underway and we have all made it through the first month and a half and seem to still be chugging along.  For now that is!  Just when you think things can't get any worse something creeps up from the shadows of the past and hits you squarely in the head. 

The past 5 years haven't been very kind to me or my health and I am always surprised when I think I have something licked and it turns out to just be a recurring item in my bizarre and strange world.  I have known for a very long time that my body has a different notion of living than my mind does.  My mind doesn't seem to think that there is anything wrong with me physically and my body seems to take pleasure in revealing at the most in appropriate times that the mind is lying to me.  It seems almost like a dream now that I suffered from near catastrophic paralysis just 2 years ago when my spinal column was invaded by a nasty bacterial infection.  Oh I made it through that lovely situation by living in a nursing home/rehabilitation center, months and months of therapy and intravenous drugs and slowly I recovered.  Not fully, my strength never seemed to come back from that and the pain in my spine has never really gone away.

But nothing had prepared me for the news that I received this morning.  Nothing could have at all!!

For those of you my faithful friends and followers that have been going through this journey with me you will see that no matter how many things change in ones life, there are just as many things that remain the same.  When I got sick with my back trouble in 2014 my mother was going through something very similar.  I got better, I can still walk and use my legs and my spine seems to be fusing at right locations to eventually lead to a full recovery.  My mother on the other hand wasn't so lucky her doctors operated where my did not.  My mother never walked out of that hospital, she was irreversibly paralyzed from the waist down.  Damage to her spinal cord has made it impossible for her to walk and has dramatically changed her life.  Tuesday she was supposed to go to the doctors about pain that she had been experiencing in her feet and she was hospitalized all over again.  I found out this morning when I called her that she is also suffering acute renal failure, something that I am all too familiar with.  Since I suffer from it constantly since my initial colon surgery in 2005.  Yet, this was not the only thing that my mother was told she was told that the infection in her back is back and that she also has a lump in her breast which appears to be at this point cancerous.  Now, please understand that I have known that my mother was experiencing problems that I could not even begin to imagine, but somehow I have always thought that my parents were invincible and that I would be the one that would leave the earth before them.  Now, I am not so sure of that anymore and I am scared and worried about my mother.

But that wasn't all the news that I received today that has given me pause and the need to reflect.  See the results of my test have come back as well and what I thought was just a benign growth on my right kidney has turned out to be a whole other creature indeed.   This morning I was told in no uncertain terms that I need to have surgery that the tumor has grown vastly in just a few months time and now cancer threatens my entire core being once again.  Funny just a few short months ago I was given a totally different outlook on my health and wellbeing by the very same doctors that are now telling me that my situation has turned from serious to grave. 

Funny using that word to describe a state for which I have been preparing for since 1991.  Since June of 1991 I have known that my health had taken a turn for the serious and that I would forever after have a complicated life ahead of me.  But the Grace of God has seen fit to give me a pass for a very long time and has allowed me to share my life with many people that would have never had the chance to get to know me had I died all those years ago.  Life hasn't been easy and at times I have feared for it, yet somehow I knew that my time and usefulness hadn't come to end.  I felt that there were many things that I needed to do and say before I could finish what I had started here on Earth with my birth.  So when the doctors told me this news that they were going to have to go in and despite them repeatedly telling me that I would not endure any more surgeries that my body had  gone through enough and simply couldn't recover.  What am I supposed to think and do now? 

I do not fear death as I thought I might, I just don't feel like dying, I am selfish I guess because I want to live.  I want to accomplish a few more things before I have to say good bye to this world.  However, with the doctors not giving me much hope on this front anymore, I am just wondering how I am going to tell all the people that I love and who love me that I may not be seeing them anymore.  I have lost so many people along the way to this point in my life.  People who I felt deserved a more full and better life than I did. Yet, for whatever reason God chose them to come home and left me here to carry on.  I knew in the back of my mind that things weren't right and that I probably wouldn't make it to my 50th birthday, but I thought as we all do that I would have more time.  I am not afraid for myself, because I know that I am about to start a new adventure in a totally different way, I am scared for you those I leave behind in this world that has gone crazy, where total direction and certainty of our entire nation is left in the balance of chance and fate.  This election year is shaping up in the most uncanny way, people don't recall history very well at all...Barry Goldwater entered into an election that was rudimentary and fundamentally the same as what is happening now. Untraconservative and Socialist squaring off.  Both sides of the parties one so far right and the other so far left are going to cause such an unstable rift in our political landscape that our Nation will not recover fully from it this time. 

The world is changing, governments have come and gone and yet the same old bigotry, hate and intolerance survives in the world.  I have tried my entire life to bring hope and joy to those around me.  I was successful a great many of those times, but there have been other times when I have failed utterly and miserably. I take what I have and what I have been given and I give without failing to those I see in need.  My help is never enough but it is always on time.  I am leaving this world without a legacy, I don't know who will be crazy enough to give as much as I do, so I don't know what is going to happen from here forward.  All I know is that I still love each and everyone of you, there are others with my family name that will carry forth that love after I am gone.  They don't know you, and some have never met me, I am sure they all know of me and who I am, but I have lived a life of my own choosing and I know that my death is going to come before any of us are prepared.  I just know that time is running out and the my race is no longer important. 

So in a flash just like that branch of the family tree that I am apart of seems to be about to disappear shortly and irrevocably forever. 

To the rest of the Zepp clan, I stand in awe and amazement of where and how we all started and I am thankful that I was apart of your family.  Many of you have accomplished some very amazing things and have overcome so much hardship and turmoil to get to where you are today.  But you all have become successful in all your endeavors and have created something that is going to last way after you are gone.  I unfortunately was not so lucky, there are many that will remember me in there hearts and minds fondly.  But my choices and path have left no one and nothing.  I have no children, I only have you my family and I hope that you remember me as I was a kind and gentle person who loved to help others.

I may not make it through the surgery and the treatments that are coming faster than a speeding bullet.  My mother might not make it through her treatments and surgeries that are heading her way. So we are preparing you, making sure you are ready to LIVE!  Because life is a banquet and there are too many people starving out there.  So be true to yourselves and love each other and go forth into the world and make a difference. 

As always my hopes and dreams are with you.


Uncle B

Here I am

Knock knock
Do you hear me?
I am knocking on your hearts door
You have changed the locks
I can't get in...
Knock knock
Only you can open the door again.
The man before you is incomplete
You are my confidence in the face of fear
You are the strength I lack
You are my memory
The best of me is you
I lost you due to foolish pride
Now I am lost without you by my side
I miss you with all my being
You are my reason for being
Please forgive me and come back
I love you

Leave it alone!

I know that I have talked to you extensively in 2012 about the past, but something has been in my spirit today and God has been telling me that I needed to put this back out there for someone.  I am not sure who you are, but I am positive that God wants you to remember this simple fact.

So tonight I am going to talk to you about the past.  See there is nothing you can do to change the past, what has happened cannot be changed no matter what you wish.  I have to tell you that when you look back over your life, you are going to see so many things that you will want to change.  But the secret here is that you can do nothing but change whatever it is inside of you that made you act that way.  It was your actions, choices, deeds and who you hung around that influenced those actions that caused those mistakes.  If you truly want to learn and change then you have to self reflect, you have to do some deep soul searching. The answer is right there inside of you.  You have to change yourself, change your environment, change those that you associate with.  In other words, if you are truly serious about change you need to start over, reinvent yourself.  Take those pains and aches of the past and turn them around.  Know that you can, you are the only one that has that power.  Remember looking backwards is 20/20, you can see everything when you look backwards.  Here is something that you might not realize, but the past starts right now, this very moment. You have to understand that everything up until this exact moment is your past.  For we do not know what the next minute will bring, but because we are here and looking at this the present and the past must at some point must be one.

You cannot step forward, move into a new relationship or try anything new if you are carrying the baggage of  your past with you.  It will weigh you down and throw more stumbling blocks in your way at every turn.  You have to accept the past and accept that you can do nothing about it. You may be able to learn from it and change the way you act if a similar situation comes your way.  However, I have to tell you if you keep picking up that baggage no one is going to be able to handle all that you bring to the table. It will overwhelm those you are trying to start something with. So it is very important to forgive yourself and others so that you have the closure you need so that you can move on.  Once you have closure you can drop those bags from the past that are weighing you down so heavily.  Forgiveness is for you and you alone.  Surrender your self-pity, and regain your self-esteem because you achieve balance by seeking knowledge. Truth and harmony are right there for you to pick up and take forward with you, but if your hands are full with your baggage of the past how can you pick up anything else?

You have to remember yesterday is dead and gone.  You must deal with it as you do with all the things from your past, you must walk this walk alone.  Remember that God is just a call away and will help take that burden off of your shoulders, but you have to be 100 percent honest with yourself and Him.  Keep in mind that tomorrow has yet to begin and anticipate the journeys that may come to you on the new dawn.  Adventure awaits the souls that are free, and who live in the moment.  Time has no meaning now as the divine descends upon you.  In the morning all things seem possible, there are no mistakes it is a clean new day.  The slate has been cleansed and you get to start all over again.  God will never ever give you more than you can handle.  All the turmoil, adversity, hurt, and loss only serve to make you stronger.  They give you hope for a new day and new start.  Give thanks for the adversity that comes to you, because the next time you will have the knowledge and the strength to withstand it.

No one ever promised that life was easy.  Who told you that you would only have a garden full of roses?  If you had just roses the thorns would be so sharp that you wouldn't be able to enjoy them at all.  But your garden is full of flowers, weeds, bees and so many other things. It is the variety and the spice that gives us adventure and life.  Make the most of every day because they are a gift from God.

As always my hopes and dreams are with you,

Uncle B

Bigger than Life

Today has been all about a very dear friend of mine that I will never forget.  Someone that never had much but was happy and content with everything she had.  She wasn't self-conscious, vain, or envious. She was brutally honest, courageous, and magnanimous.  Was never to busy to talk, had great shoulders to cry on, and a smile that lit up the room.  She always saw the good in people, never found fault, never stayed down for long and always had a kind smile, warm heart for anyone that came into her life.  She was a very dynamic force and one that couldn't be contained in one body.  Maybe that is the reason why God took her so young!

Her memorial service was today and so many people got up and spoke her praises.  She had a personality that was larger than life.  She wanted to change the world and strove to do so with her volunteering with the Positive Champions Speakers Bureau.  All she ever wanted was to change one persons life, to reach one person with her story. But she impacted each and everyone of us that knew her. Mary was the embodiment of warmth, sun, caring, love and sharing.

She traveled all over telling her story over and over again to groups and individuals alike. She didn't care what others thought, she only cared about what she was fighting for.  She dreamed of a world where there was no such thing as HIV or AIDS and fought towards that end.  She would make you laugh, cry and even shake your head in disbelieve because she was bold and courageous.  Whatever she felt she said.

Souls are attracted by vibration and not by looks, and Mary taught me that.  It didn't matter to her what you looked like, or how you dressed we were all the same to her.  When two souls resonate together they recognize each other and form a bond of friendship and love.  I still remember how she flirted with everyone and didn't care what they thought about it.  She lived in the moment and nothing could take that love of life away from her.

I was fortunate to live close to Mary.  I got to see her a lot, we also talked a lot on the phone and she helped me through some very difficult times in my life.  She had a light inside of her that drew people close, her personality was such that once you were in her orbit you were her friend.  That light inside of her could drive away the darkness and for a brief moment when she was around you knew that anything was possible.

Yet, in the end God chose to take her from this earth and bring her home.  I have mixed emotions about that.  See, I depended on her guidance and her words of encouragement when my life got into some tough spots.  I don't have anyone like that anymore, she was it.  I am going to miss our talks and how she boosted me up and never tore me down.

So what would I like to say to Mary?  Well, I would tell her thanks for taking the time to teach me how to embrace my own Awesomeness and reminding me that everything we do, is building us towards something else.  She saw ahead of her that there were endless possibilities and  opportunities to share her testimony and her story.  When I say that Mary was larger than life, I mean exactly what I have said. She was bigger than life, she radiated warmth and acceptance with the greatest of ease and she gave great big bear hugs.  She wasn't afraid to touch you, nor tell you about yourself if you were in the wrong.  She lived in the moment and by doing so she achieved what most of us envied.  An openness to talk, a freedom to express exactly what she needed to when she needed too. She was comfortable with herself, her situation, her looks, and everything that made her up.  I admired her honest, conviction and courage and I hope that just a little of each of those has rubbed off on me.

She gave hope where there was fear, she gave love unconditionally and expected nothing in return.  Though she may be gone, I don't think it will ever be possible to forget her. She had a great impact on so many of our lives.  For that alone I know she will live on forever in each and everyone of us.

Thank you for keeping her family and friends in your prayers.  What more can I say, Mary saw a world in which change was possible and she struggled to help bring it about.  I can't tell you how grateful I am that she chose me to be a part of her family.  She helped and loved beyond any situation.  She was so full of light and life that it was nearly blinding to look at her at times.  She knew what she wanted and set about trying to get it. A spirit of a lion and the heart of a lamb.

I am going to miss you so much, but I know now that she is with me everywhere and I remember the words she told me when my partner left me and did all those things to hurt me. "You deserve better than that Bryan, you deserve to be happy".  Now, I know that the secret to happiness is found only with ourselves and no where else.  Thank you for reminding me of that.  I am jealous or even envious of her, see it was so easy for her to talk, to get her story out. She wasn't afraid, because there is no reason to fear the truth.  Again, thank you for the lesson Mary!

Oh yes, I have a voice and I write in that voice, but speaking I tremble on the inside.  She told me over and over again, to just be yourself and it will all work out. Guess what she was right and I am still here today.  She didn't have transportation much of the time I knew her, but it didn't limit her much. She still made it to Group and Positive Champions meetings.  I don't think I have ever seen her discouraged for more than a minute. She never gave up on anyone!  She always saw their goodness and she brought that out in all of those around her.

When I say bigger than life that was Mary. Yes it was and I think that she burned so brightly to everyone around her that her poor body just couldn't handle all of it.  When I tell you that she loved, she did!  She loved Gay Men! She Loved Children! She Loved to talk! She loved to hug everyone! So today was Mary's day and will remain for me till tomorrow. Today was a day that was sad, somber, yet funny and exciting as well.  I have a heavy heart because of the loss of my friend but a big ole smile on my face as I sit here and remember.

You maybe wondering why I am telling you all about my friend and her life and what she meant to me.  So, let me tell you that there are lesson here that you can learn from. Something each and everyone of us can use in our daily lives.  You may not believe me, and I am not sure that I do yet myself, but I think as all of us gathered today to remember our dear friend something magical and wonderful happened.  We were reminded that life is fleeting, and that we need to cherish those around us.  We need to surround ourselves with family of our own choosing, be inclusive of everyone, fear nothing, accept everything, live in the moment, cherish the life you have and what you got.  Take back your power, live for yourself and throw your hands and heads up in the air, don't care what others think of you. Just do you and everything else will fall in place.

What can you learn from Mary?  Everything there is to know about life and living.  Learn something new everyday, share it with those you love and those you don't know. Live in the moment, experience everything with baby fresh eyes, those eyes of wonder that still see the magic in the world.  Keep those you resonate with close to you, because like souls attract like souls.  Stay positive, focused and tell your story to anyone who will listen.  Everyone has a story to tell and you never know where a casual conversation might lead you.  Seek the goodness in others, freely give kindness to those you love and give love to those that love you.  Speak your mind and your heart will follow, don't filter out anything.  Someone described Mary today as having the gift of Transparency and I think that is a place where we should all strive to be.  You never had to guess what Mary was thinking or feeling you could see it and feel it.  That is what is meant by being transparent.  We are all given a voice and we must learn how to use it. Your story is unique just as was mine and Mary's but there might be someone out there that needs to hear it. You may save someones life, or your words might heal their hurting soul.  Your story could change 1 persons life and like Mary said "If I can reach or help or change one person than I have accomplished my task".  Mary changed a lot of lives, so many hearts, and will live on with each of us who knew her.

But, now my friends as you read what I am writing about  her, she will also live in you.  You may not have met her, you may never have seen her. But you know her spirit, her heart, and the magical way she changed the lives of each and everyone of us that came in contact with her.  Please take away from this entry if nothing else, one person can inspire change in the world. Yes, you can. All it takes is you to find your voice, tell your story, and live your life like Mary lived hers.  Trust me.

As always my hopes and dreams are with you!

Uncle B

Oh moon shining Bright!

The sky is dark the stars are bright,
but it is the full moon that catches my eye this very night,
fear, emotion and hope are all found in that bright and shining disk in the sky.

Here I sit and ponder the where and whys
I am the only one who can see through the illusions and the lies,

Maybe it is the light that that shines so bright
That takes away the fear and fright,

For I alone know what's going down
I shake my head and frown.

I have warned and have pleaded
But you haven't neither heard nor headed

Comfort and strength are what is needed
In this hour, Oh how I know how your heart has bleeded

Friend so far away
I wish you really knew me today

Maybe then you would have believed my tales
I tied to save your heart from all his childish whims, cries and wails.

Oh moon so bright and shiny
Don't let my friend feel like his heart is small and tiny!

I am here my friend
I made a promise I am your friend and companion till the end

I will wait and watch by the hour
as you wait for him all bitter and sour

Wait and see he will come back to thee
this is his way Please wait and see

He loves you dear
he hides his heart thru drugs because of fear.

In a bit you will find
He is back and loving weak and blind

blind to the pain that he has wrought
but now you know the kind of man you have caught

Don't you ever threaten to end yourself again
because it isn't worth it in the end.

You are a shining star
You know who you are

Stand firm in the dark
be sure to leave your mark

Because the moon is shining bright
everything will come to the light.

I love you man!
-B

Alright God I am listening!

You have got my undivided attention.  Reveal to me the lesson I am supposed to have learned, what am I to teach others from what I have been through?  I need to know and understand why all of this is happening to me.  It is the day before Thanksgiving, at 2 in the morning, it is still pouring and my heart is weeping with the tears of confusion and lack of understanding.  Tomorrow is the day we are too give thanks for everything that has happened to us during the previous year and yet I am struggling to find one thing.  To understand all that has transpired and be happy with all that has passed.

Dear readers, in order for you to understand my confusion and pain I will have to go back and tell you of my year and maybe as I recount the events that have happened too me, I will be able to glimpse or glean the message that I was supposed to have learned on this journey.  Trust me you should probably sit yourself down for this narrative because it is a long one and starts at the very beginning of the year and is one in which I plan on telling you everything because somewhere there is a message I am sure of it.

Well, lets bring you all up to speed, then you will begin to see why I haven't written here in my blog very much at all this year at all.  January my partner and I were in Atlanta visiting. He had wanted to go up there to check in with his probation officer.  I decided to go with him, I was tired of chemotherapy and all the medical treatments and appointments I had been going through.  What I didn't know was that trouble was waiting for us on this trip and was going to change my life in a drastic way forever.

Everything was going okay we arrived and checked into the hotel with absolutely no problems at all.  I was tired but that was nothing new with the chemo that I was going through but we rushed into the hotel. I told him to bring in his weed from the car as we were carrying in the luggage, and he said "Naw just leave it there it is just a little bit and I will come down and get it later." Famous last words, we were in the hotel for 2 days and it remained in the car.  But that day he decided that he was going to go out and get us something to eat, I had to do my chemo that evening and it always seemed to make me more sick if I didn't eat right before I did it.  So he left the hotel, I was in the shower and I only had one bag of clothes we had left most of our other stuff in the car because we were going to change hotels the next day.  This included the rest of my medications and all of my other medical supplies.  I had no idea that disaster was about to strike and leave me in a very bad situation for the next 10 to 15 days.

What really happened that night I will never really know, all I am aware of at this time is that he was stopped and arrested, they had found the weed in the car and he was taken away with everything we owned.  I waited and waited to hear from him.  I finally got a call at 4 in the morning saying that he was arrested and that the car had been impounded.  So early the next morning I called every towing company that the dekalb county police used and finally found the car.  I called to see if I could get at least my stuff out of the car if not all of the stuff.  I explained that my medication, clothes and computers were in the car and that I needed them due to my cancer and illness.  I was told that if I could get a letter from the rental car company saying it was alright for the towing company to release the personal items too me I could come and get them.  Well, the rental car company wouldn't budge and let me have my possessions because I wasn't on the rental agreement.  This was the first time that he had rented the car solely in his name and because of that I was not given permission to get what I needed.

I was left in the hotel with no clothing, no medical supplies and very limited money because we were supposed be going home soon, we had already spent a week in the hotel and the plan was to leave that weekend and it was Wednesday when he got arrested.  I had only enough money to stay in a hotel for 2 more days.  Which is what I did, because I knew if he got out of jail he would know where to look for me and come back there.  At this time I didn't know that the car had also been wrecked, either by him or during the towing process.  All I know in the subsequent months since then that they have been coming after us to get payment for damages to the car in excess of what it was actually worth, and as of today I still do not have the belongings that were in the car.

Here I was in Atlanta pretty much stuck with no clothing, no ostomy supplies and no medication, and I knew that I wasn't supposed to stop the chemotherapy suddenly but what choice was there all the medication was locked up in the car and I had no way to get it out. I had no transportation and I was running out of money rapidly. Luckily I ran into an acquaintance, who was hanging out with one of my ex's.  They were able to take me to my best friends house and I was able to stay there in safety till I could find a way home.  The same acquaintance that took me to my best friend Chris's house offered to bring me back home to Florida if I paid for the gas. I agreed and we left now mind you by this time I had been staying at my friend's house for about 2 weeks, my ostomy appliance was falling off and my skin was burned from acid and erosion.  My ex's mother came and took me to the VA hospital in Atlanta and they were able to fix me up with some temporary supplies till I could get home. My ex Sterling ended up in the hospital for several days during this time he had a massive urinary tract infection and got extremely sick. So as you can tell nothing particularly was going my way already.

But, Mike the acquaintance that Sterling was hanging with was true to his word and brought me back to Daytona.  He also decided since he had no money to return right away to stay with me for a little while.  i am extremely glad that he did, even though his presence was later to cause great harm and yet save my life at the same time.  I was home 3 days when I had an aneurysm, if Mike hadn't gotten back to my apartment when he did and found me passed out in the bathroom bleeding all over the floor and called 911 I would have bled to death and died.  I had lapsed into a coma for 4 days and ended up having 28 blood transfusions and 3 surgeries, I barely pulled through.  I woke up to see my partner and Mike sitting next too me, it brought me strength and I was soon awake fully. However, while I was out Mike had gone to Atlanta and gotten my partner, who was released from jail.  He also proceeded to get all of his belongings out of storage and bring them down to Daytona, along with almost a full ounce of Methamphetamines. During the 9 days I was in the hospital my partner and him started getting high and having sex with all kinds of people and bringing people into my apartment which got the neighbors all upset.

Once I found out I tried to put a stop to the problem but the damage was already done, my partner was totally lost to the drugs, he had been shooting up a lot more than him and I had ever done and he was on a binge that was going to tear us apart.  Not even 3 weeks after my release from the hospital both my partner and Mike were back in Atlanta and I was left all alone.  I came to find out that neither my partner or Mike had paid rent while I was in the hospital and they were both gone and I was 3 months behind in rent, utilities and cable.  I talked to my dad about the situation and we both agreed that maybe I should try getting a girl roommate this time to help me get my bills caught up.  That was the worst mistake I have ever made in my life because the girl that came in came with a lot of baggage and friends and I ended up getting robbed twice and losing all my possessions. But that wasn't the worst my neighbors didn't like her friends and kept calling the police on me saying that suspicious activity was happening in my apartment and so the police became involved with my life.

I ended up getting arrested on possession of paraphernalia charges 3 times, as a matter of fact I am still going through some of those legal procedures right now and hopefully will have them  wrapped up before the holidays.  I stayed in my apartment as long as I could my father and my step mother helped me out as much as they could to get caught up on the bills.  But the damage was done, the neighbors and the police arrests got back to my landlord and I had to move from my home without any warning or notice due to suspicion and  rumours.  I was never arrested or charged with doing drugs, but everyone in the complex assumed or heard tale from one of the old women that lived there that I was a drug dealer and that I was doing and selling them out of my apartment.  That is how my recovery from the aneurysm and summer went.  On Memorial day weekend my back started hurting.  It hurt so bad that I went to the E.R. an x-ray was taken but nothing abnormal showed up on the x-ray so they sent me home with some pain pills.

Let me digress for a minute or two here.  I will never again sneeze or laugh at anyone who says that their back hurts, because I will tell you there is nothing like back pain, it is the worst kind of pain that you can experience because that is where are the nerves are and once it starts hurting your entire body feels the pain and you end up weak and not able to do even the smallest things.  Well, on with the narrative, my back started hurting and I ended up in bed for almost 2 weeks doing only the absolute minimum to get by.  Well from May till September I endured the pain in my back and it got progressively worse and worse. I ended up moving back in with my dad and step mom.  I was here about 3 weeks when I finally had enough I had been to the emergency room 19 times and was continually told that there was nothing wrong other than a strain.  Finally I got my primary care physician to look into it a lot closer.  Now, you may be wondering why it took me so long to get my primary involved.  Several factors actually, my dad telling me that I was faking it and that the pain was in my head, my ex coming back to get his clothes and not believing me that I was in pain and could barely drive and then my primary care doctor being out of the country for 2 1/2 months on some family business.

So finally, I ended up going to have an MRI and with just one pass of the machine, i was pulled out and wheeled into see the Radiologist.  He asked me how I had gotten to the office to have the MRI and I told him that I had driven, he asked me if there was anyone who could come and get my car. I told him that my dad and step mother were in Ormond Beach.  He wasted no time calling my father and telling him to come and get me and my car because I needed to be admitted to the hospital immediately I had a massive infection that was attacking my back and causing my vertebrae to collapse upon themselves and that if something was done to treat the infection I would be paralyzed in a matter of weeks.  I was immediately taken to the hospital where I remained for 15 days and from there I was put into a nursing home and rehab center where I stayed for 3 months.  Which brings me to the current.

I have been out of the nursing home a week and I have been doing okay.  Though I have had back to back doctors appointments since I have gotten out of there.  I have to tell you I have met with every doctor from neurologist to primary care, from surgeon to oncologist, even the neurosurgeon.  I was given hope that I could possibly have surgery and alleviate or even eliminate the pain I have in my back.  But, yestday was a day full of surprises. First some good news and then some not some good news. I found out that the tumors that I had removed on November 7th were benign and I will not have to go through additional chemotherapy. Remember that I had chemotherapy starting in October of last year that ran up till February of this year. So that at least is good news. The bad news comes from the neurosurgeon with whom I met this afternoon at 2 pm. It is unfortunate that he feels that he cannot operate to fix the hump in my back or do anything to alleviate the pain. According to him I will have to continue to endure this pain and walk with a cane or walker for perhaps the rest of my life. Now after speaking with my primary care physician last week I was under the impression that I would be able to go through a procedure called kyphoplasti. Kyphoplasti is a procedure that people who have osteoporosis can sometimes have the rebuilds you the vertebrae and would eliminate or at least alleviate some of the pain that I am going through. Upon research I had found cases where at least 3 levels of thoracic kyphoplasti have been performed successfully, unfortunately I would have to have 5 levels rebuilt and I was told in no uncertain terms that I would not survive the surgery and that he didn't even think him or any other surgeon would attempt to operate on me with my case history and surgical past.

I honestly didn't think that I could feel any worse from that news and situation but then here is how my day today went.  I guess today was not supposed to be my day either. After the shock of hearing all my health news I went home and went to bed never once noticing til yesterday morning that my wallet and every piece of identification was gone. I had an appointment with my case manager to recertify my Ryan White funding for another 6 months when I noticed for the first time my wallet was missing. I have searched my room high and low and cannot find it. Further, it was pouring rain all day yesterday and as you now know I walk with a cane. My case manager to help me told me to bring the car up to the curb so my paperwork wouldn't get wet. She would run it out to the curb as I pulled up. Well alas a good idea but as she was coming to the car the folder gave out and every piece of paper fell in the downpour and was soaked. As you can well imagine my mood and depression deepened. I came home an immediately climbed in my bed. It is now 1:58 am and I am just getting up, and it is still raining. It is almost like the sky is responding to the flood of tears in my heart. I pray that God will give me the strength to push through these setbacks and gain an understanding of why He has chosen me to carry these health issues and what I am meant to learn/teach because I fear I have missed the point!

So there you have it.  Almost dying, losing my home, my man, my credibility, my reputation, now my health and possibly my future of living a pain free existence as well as being dependent on walking aids to get around for the rest of my life.  I need you Lord to explain to me what it is that I have missed, what is the lesson that I am expected to learn, what should I have gotten from this journey, the pain, the loss and where do I go from here?

I am remaining faithful as you commanded Job because I see how you rewarded him for his stalwartness and I trying to be the man that you need and want me to be.  But I am struggling and grasping at things here.  Please Lord talk to me.  Make my way clear and give me the grace, guidance and strength that I need to gain this comprehension.  I know that I am strong enough because you wouldn't have given me this burden if I wasn't. So I am asking you to have Mercy on Your child and grant me the wish of my heart.  A joyful and happy Thanksgiving.

AMEN

Lost, Alone and Scared

Over the past few days my world has been in a constant state of flux. Meaning that nothing has been constant, everything has been in perpetual movement.  When that happens the mind looses focus and thoughts can drift impossibly far distances. Emotions which are tied to thoughts are also out of flux with the rest of your body and you withdraw from the physical.  Now to explain this is rather difficult but I think this is a possible reason why we sometimes can be in a crowd and feel all alone.  See it doesn't matter what you are going through when the mind detaches and starts roaming and grasping at straws and random thought patterns, we become un-anchored to the the world around us.  We have a tendency to wrap up in these thoughts and can't fight our way back to ground.  I described that on my Facebook page on Saturday. My emotional state was such that I was upset, angry, profoundly sad, and I couldn't tell you which way was up or down.  I felt trapped in a surreal place of existence and I couldn't quite wrap my head around reality.

Because of a promise I made I can't divulge all the details of what I am going through but I can tell you this much.  When you care and love someone and they are lost to you for whatever reason, your mind creates solutions and equations and thousands of excuses as to what is really going on.  Problem with all of these scenarios that are playing out in your head, you have no foundation or basis in which to draw from, so your thoughts become cyclical, and you go from thinking the worst to the best, and before you know it your orientation is totally screwed up.  Sometimes we find ourselves in a place of emotional discovery, where you find out that what you once thought was not reality, even though all indicators seemed to point to a fact, when you finally get up on it, you realize that you had misread them, or mislabeled them as fact when they were just feelings.  Which is the funny thing about feelings, they can feel so real that you can almost believe them as fact, when in most cases they aren't, they are just interpretations of the facts that the brain and heart can process.

I can tell you it is a terrible feeling waking up one morning and finding out that everything you once believed in was a lie, that what you thought of as fact, was just in fact illusion created by yourself to keep from facing the truth.  Trust me when I tell you that it is a hard pill to swallow.  Humans are amazing creatures, we have not only the ability to reason, but we also have the ability to feel, and when you put reason and feelings together we get a sort of mental image, problem is that feelings are not as reliable and our images are easily shattered.  When something happens in your life that causes you to doubt everything it is very hard to pull yourself back together.  See, I am not a stranger to the world of addictions and drugs. I am not a stranger to lying to myself to make myself feel better, but I have learned over the years how to come to deal with these falsehoods, and I stand before you a different person.  See I am brutally honest with myself and those around me these days, because I hate to have the feelings of being lost, alone and scared.  I would rather get the initial shock and pain over with than have to deal with it on an on-going form.  So, I gave up on trying to kid myself.

However, there comes a time when we run into individuals that aren't quite at the level that you are. You have asked them repeatedly if they care about you and love you, if they are sure that you are the one they want to be with.  If they aren't at the same place you are, the answer you might get may leave you totally wondering as to your position. See I am a firm believer that everything starts with self and works its way outward. So if you are honest and truthful with yourself you have a greater ability to accept the things that are handed to you.  Some things you wouldn't even expect that hit you with a firm foundation of reality and truth behind you, you will be able to face them and overcome them with ease.  But, every so often something comes along that blind sides you. Something that comes from an unexpected corner, a place where you weren't looking or had thought you had gotten past, and it can rip your sense of reality right out from under you.

You may not understand what I am talking about or where I am coming from with this, and that is absolutely okay.  What I want you to understand there are times when you can be lost, alone and scared and it is not of your own doing.  You can feel those feelings under many different circumstances and I am beginning to understand the amount of pressure that it can put on another person who cares about you.  See, I am beginning to understand the physical and emotional toll of my health conditions on the person that I love.  I am beginning to understand that he has to stand there and watch as my health deteriorates and it makes him feel powerless and vulnerable and angry that there is nothing he can do to make the situation for me any better.  See I can understand him feeling lost, scared and alone during these times and there is nothing I can do to ease that burden from him.  The exact same thing is true for someone doing drugs and the other one not.  The person who is sober might think that they have the power to change the other person but they don't.  You are not a god, you don't have the power to rescue someone else.  The just don't understand that they are loosing not only themselves to it, but you as well. The hardest thing is for you to watch someone circle the drain.  Somewhere you have to be the stronger person and cut them loose and let them go.

2013 is about to start and you don't want to start it off on the wrong foot. There is nothing you can do to change either of the above situations, so inevitably you are going to have to walk away.  The situation is toxic for both of you and you are going to have to cut it loose or end up dragging yourself through the proverbial gutter.  It is hard to say these things because I know that they hurt.  But as sure as I am sitting here today, I realized that some situations are just beyond our control and reasoning. There is nothing I can do to alter either of the scenarios mentioned above.  This is for you, the one that asked me the question what to do if your partner has left you and decided that the drugs are more important than you. I have to tell you a hard truth, I am familiar with the world of drugs, and the effect that they can have on someone.  You are going to have to cut the string and let them go. No matter what happens from this point you must stay strong to yourself and your convictions.  If you give in know you have lost the battle.  I know this from experience once you give in and let someone back into that world it is virtually impossible to get them back out again.

I wish you the best of luck my friend. Because I know how hard it is at this time of year to be going through this alone, but believe it or not I am in a similar situation here in Los Angeles.  I can't go into details as I said earlier, but I do totally understand your feelings of isolation, loneliness and heartbreak at what you are going through.  I sympathize with you and I too am going to have to make a tough decision and pray that God will give me the strength to make it through this with my spirit and heart still intact. I hope you understand that you are not actually giving up on the person. It is going to take more than you to break the hold of the drug that has your friend.  I would never advise someone to give up on another person.  I am not giving up on my friend, I am not supporting or condoning his behavior, but I can't watch it tear apart my relationship and my life again. So if it takes me letting him go and moving on so be it. Lord is my witness that is the last thing I want to do. But, I know I can't make him change and I am not enough of a substitute.

As always my hopes and dreams are with you,

Uncle B