You may be wondering where I have been for so long and why I haven’t posted anything? Well I have been in and out of hospitals and recovering from all sorts of medical issues, then there was the fact that I lost everything that I owned that was up in Jacksonville. I may never find out what really happened to my stuff, I just know that what I was told seems highly unlikely to have occurred and I am saddened that I lost a friend over stuff like that. However, may the stuff that he has of mine serve him well as he embarks on the new journey of his life.
I just know that I was stuck and had no help out of my situation and was constantly in and out of the hospital. He didn’t bother to come and see me or try to find out what was happening with me, he just turned his back and blamed everything that happened on me and walked away. He made me very uncomfortable the last time I saw him anyway, and his behavior really left questions in my mind as to his real thoughts and intentions. With that being said it is time for me to move on and explain why I haven’t written in my blog in so long.
The truth is that I have been writing and it is all down on paper in a 3 ring binder here on my desk. But since I didn’t have a computer I had no way to get the information into the blog like I normally would have. But I have stuff dating back to my final day in the hospital back at the end of July. I have been in Orlando exactly a month and I have to say that I am in a much more stable environment than what I had been in. Already everything that I lost except for the car has been recovered. I have gotten a new bed, a new computer, a new laptop, my iphone service turned back on, an ipad as well as an android tablet.
There are some things that are different though, I am away from Daytona and the influences of the people there, which in my case is a good thing. I couldn’t understand why I kept ending up in the hospital and why my kidney’s and blood pressure kept failing. Come to find out that the major artery to my heart was almost 85% clogged and I had to have a heart catheter and angioplasty to fix the blockage. So on July 15th I had heart surgery. It was scary, but several good things came out of having that surgery, immediately following it my blood pressure stabilized and I stopped having the dizzy spells and seizures that I had been having prior to the surgery, and my kidney function improved almost back to normal levels. Indicating to the doctors that I may not be as close to dialysis as they had thought.
But since I couldn’t get online and give you regular updates I decided to sit down and do it today. Just last night I was writing in my journal and was talking about what I was thinking about my future and weighing my past. Something that I have been doing all week actually and most of the posts that I am about to type up are regarding that same issue. But today was a beautiful day full of sunshine and no rain as of yet. Which is something of a change in weather for what it has been like around here since the first day I arrived.
No matter what I am headed on the right path at this point, God has given me back all that I have lost and then some. I am even doing well enough that I feel I am at a new point in my life and can honestly say that I have a future. I have wrapped up many of the loose ends that I had left in Jacksonville, paid off the bed that I no longer have and the frame, I also got my checking accounts straightened out and I have gotten myself back into care with the VA and got my medicare straightened out. All and all I am very happy with my progress since I have been here. But, seeing as I had no other options, and the person who I was staying with and considered my friend turned me out like that, claimed that he had changed the locks and told me that I wasn’t welcome back there, then just a week or so later text me saying that everything I owned was lost that supposedly the landlord had evicted us and my stuff was on the side of the road and gone.
I know that this is not the real truth, it may have some factual basis, but being a retired attorney I know that there is an eviction process and that with me being in the hospital in intensive care my roommate could have used that and gotten an extension, he could have fought the eviction and won especially since he just suffered the loss of his partner and then I had the heart attack and was in the hospital. But No everything that me and my ex had left up there is either gone or he is using at his own. Either way it is on him. I know that my situation was extreme and I had people lying too me, stealing from me, and literally trashed my bank accounts, credit cards and the whole nine-yards. But, that is all in the past and I am in a better place with all new things and life is once again sunny.
I couldn’t have asked for a better Saturday, I woke up a little tire and a bit sore, but that quickly passed and once I got out and was able to enjoy the sun I felt so much better. So much so that I am sitting here now typing to you telling you all about it. I am still having some minor chest pains, but I see the cardiologist next week again and hopefully he will be able to tell me what is going on with my heart and why I am still hurting after all this time. I sure hope that it isn’t another heat attack coming because the first one was very scary and totally unexpected.
Anyhow, I hope that you have a glorious Saturday like I did. I am going to start typing my past entries into the journal. Though they are not actually going to be posted on the date they were written. I will make sure that I put somewhere the date that I wrote them, and hopefully by Wednesday I will be caught up enough and will be able to keep writing almost daily and let you know what is happening and going on.
As always my hopes and dreams are with you,
Uncle B
Showing posts with label update. Show all posts
Showing posts with label update. Show all posts
Saturday, August 18, 2018
Monday, October 30, 2017
Under the weather
HiSometimes you just don't feel well no matter what you do. In the past two months I have spent quite a bit of time in the hospital and even today I am feeling like I should probably be back in the hospital. I cannot swallow food it all seems to get stuck in my throat and I can't seem to swallow anything.
On top of all of this I have an intestinal blockage and I am I am great deal of pain. I just don't know how long I can go o feeling like this all the time. I just know that the journey that I am on it has just begun. If I can't eat or process food fully then maybe there will be that the doctors can do to ease what I am going through.
It is so hard everyday struggling to eat and feel better about myself when all I feel is pain. Nothing goes down easy and even if it does, it doesn't process properly and gets stuck in my bowel track. I hope that this situation is short lived and I can move on from there.
I will be finding out if I have cancer once again in the next day or two. I will also be calling about the back brace that the VA is supposed to be having made for me which should help with some of the pain. Anyhow, I will let you know as things progress further.
Just know that right now I am in between places to live and staying in an extended stay hotel in Daytona, hoping that something in my situation will change. Each day is a struggle there are forces in my life that are pulling me down. I have no idea where to turn at this point.
I guess it is time, I was hoping that something else would change but the current course that things have been going I have to make a decision about my future. For too long I have let everything and everyone go. I am scared of tomorrow but honestly over the past few months I have been trying to make a positive change in my life and yet everything seems to be working against me.
Well, I have this weekend to really evaluate my situation both personal and living. From here it is one hard decision after another. What I do know is that no matter what choices I make are going to have far reaching effects. Not only are they going affect my life but those around me. I don't know where the future is going to lead but I do know that tomorrow is unwritten and will unfold as fate and destiny have planned.
All I know is that I wish that I had my health and stamina. But of course things never really go as we as mortal humans plan.
As always you are in my hopes and dreams.
Uncle B
Friday, June 19, 2015
Health update
Yesterday I met with Dr. Clincea at the Orlando Outpatient Clinic in Orlando. We discussed my test results that I took earlier in the month and the results were amazing. Not only have I increased my weight drastically went from 111 pounds in February to 148.6. That is great news I was so underweight in February that all my healthcare providers were clearly concerned.
My viral load is still undetectable and my t cells are now close to 500 which is great news considering that I suffered from severe dehydration just a few months before and was unable to take my medication. This shows my infectious disease team that my body is holding its own and fighting the disease at the cellular level. Further, my kidney functions have started to improve and I have been moved from chronic kidney disease stage 4 to stage 3, as well as no detectable copies of Hep C in my system as well.
All in all the visit to Orlando was a welcome and pleasant change to my health situation. However, this is just the beginning of a very long journey about my spine and the damage done by the osteomilitis that I was exposed to last year. I was told when I was finally released from Carlton shores rehabilitation center that I had severe micro fractures along my t5 to t10 vertebrae. See on the 1st of June I was involved in a serious car accident and my back, neck, arm and chest were affected by the accident.
I will know more later on in the month as the MRI's are finished and the extent of the damage is assessed by a Neurologist and a Neurosurgeon.
I will keep you informed as more information comes available.
As always my hopes and dreams are with you,
Uncle B
My viral load is still undetectable and my t cells are now close to 500 which is great news considering that I suffered from severe dehydration just a few months before and was unable to take my medication. This shows my infectious disease team that my body is holding its own and fighting the disease at the cellular level. Further, my kidney functions have started to improve and I have been moved from chronic kidney disease stage 4 to stage 3, as well as no detectable copies of Hep C in my system as well.
All in all the visit to Orlando was a welcome and pleasant change to my health situation. However, this is just the beginning of a very long journey about my spine and the damage done by the osteomilitis that I was exposed to last year. I was told when I was finally released from Carlton shores rehabilitation center that I had severe micro fractures along my t5 to t10 vertebrae. See on the 1st of June I was involved in a serious car accident and my back, neck, arm and chest were affected by the accident.
I will know more later on in the month as the MRI's are finished and the extent of the damage is assessed by a Neurologist and a Neurosurgeon.
I will keep you informed as more information comes available.
As always my hopes and dreams are with you,
Uncle B
Monday, November 4, 2013
Update...
Well, there it has been quite awhile since I sat down at the computer to write to you guys, and I think it is about high time that I fill you in on some of the things that have been happening in my life. Since the last time I wrote I have had several more visits to the hospital and a whole lot of stuff has been happening in my life. Most of which are topics that we are going to once again be topics of discussion here on Uncle B's Corner.
But first off let me tell you that I have been doing a whole series of different treatments and going through various doctors and wow...Miracles do happen. As some of you are aware I had a whole gambit of illnesses that were holding me down and keeping me in place, but that seems to be a thing of the past. As of last week I have almost a clean bill of health. The kidney disease has totally been eradicated and there seems to be no permanent damage to my kidneys. My body has been fighting off the Hep C virus and keeping it in check and I can report no major liver damage and treatments for that will begin in Mid December. The leukemia is being treated currently and I am having positive results with that treatment and it seems like I will be in remission before you know it.
As for everything else that was wrong with me, it seems that God has seen fit for total recover and healing. I am doing very well, a bout of bronchitis is the only thing that I am really dealing with. I can only say that prayer, faith and positive thinking have done wonders for me. Plus drinking lots of water and modifying my diet a little bit have also helped. I also think that going back to work has had a lot to do with motivating me and keeping me focused. Now it is time to get back to you my readers and my fans. Recently, I stepped down from working full time to part time again so that I could get back on track with my writing and my aspirations. So here I am once again at the computer keyboard getting ready to talk to you about important things that may or may not help you in your daily life.
It has been one heck of a year. Full of surprises, disappointments, hurts, and resounding victories. I can tell you that you will be hearing a great deal from me in the coming weeks and months as the rest of 2013 dwindles away. Some of you are saying it is about time and you are very correct on that. I have been away from what I love for far too long.
So, here I am with a renewed spirit, attitude and hope for the rest of the year and for what is coming. So please come back often and read about what has been happening and what I have learned over the past year.
As always my hopes and dreams are with you,
Uncle B
But first off let me tell you that I have been doing a whole series of different treatments and going through various doctors and wow...Miracles do happen. As some of you are aware I had a whole gambit of illnesses that were holding me down and keeping me in place, but that seems to be a thing of the past. As of last week I have almost a clean bill of health. The kidney disease has totally been eradicated and there seems to be no permanent damage to my kidneys. My body has been fighting off the Hep C virus and keeping it in check and I can report no major liver damage and treatments for that will begin in Mid December. The leukemia is being treated currently and I am having positive results with that treatment and it seems like I will be in remission before you know it.
As for everything else that was wrong with me, it seems that God has seen fit for total recover and healing. I am doing very well, a bout of bronchitis is the only thing that I am really dealing with. I can only say that prayer, faith and positive thinking have done wonders for me. Plus drinking lots of water and modifying my diet a little bit have also helped. I also think that going back to work has had a lot to do with motivating me and keeping me focused. Now it is time to get back to you my readers and my fans. Recently, I stepped down from working full time to part time again so that I could get back on track with my writing and my aspirations. So here I am once again at the computer keyboard getting ready to talk to you about important things that may or may not help you in your daily life.
It has been one heck of a year. Full of surprises, disappointments, hurts, and resounding victories. I can tell you that you will be hearing a great deal from me in the coming weeks and months as the rest of 2013 dwindles away. Some of you are saying it is about time and you are very correct on that. I have been away from what I love for far too long.
So, here I am with a renewed spirit, attitude and hope for the rest of the year and for what is coming. So please come back often and read about what has been happening and what I have learned over the past year.
As always my hopes and dreams are with you,
Uncle B
Thursday, February 21, 2013
Here is an update for all of you inquiring minds!
I want to let everyone know that I am finally back in Florida, and there are going to be some new things coming from Uncle B. I am working with my partner to flush out new subjects and topics to discuss with you guys.
I don't want to repeat myself and beat a dead horse. I think you all get the point of what I have been trying to tell you. The adventures in California were both enlightening and life changing. I learned a lot from my time out there and I hope that it reflects in what I am writing about.
I am also starting to work on a new book so stay tuned..
My hopes and dreams are with you,
Uncle B
I don't want to repeat myself and beat a dead horse. I think you all get the point of what I have been trying to tell you. The adventures in California were both enlightening and life changing. I learned a lot from my time out there and I hope that it reflects in what I am writing about.
I am also starting to work on a new book so stay tuned..
My hopes and dreams are with you,
Uncle B
Saturday, October 27, 2012
Personal update
It is once again that time for me to give you all an update on my health and status. I met with the doctors at the VA on Friday to talk about the upcoming surgery and the things that are going to be necessary to get it done. Found out that I am going to probably have to go to the Tampa VA hospital in order for the surgery to take place because of how complicated my case is. Because I have to be referred all over the VA system in order for this to happen, it is going to take a little while for all the appointments to come together. Not to mention that the VA isn't noted for how fast it moves in such cases. Once this surgery is done and they address the fact that my stoma has started to detach from the abdomen wall then it is on to a 48 week round of chemotherapy. Now they have to wait till after the surgery because the chemo will affect my clotting ability and my white cell counts, my body will be in a repressed immune state and any invasive procedure after it starts would open me up to infection.
My viral load and T-cells are back to undetectable and normal range for a healthy person, so I am happy that we have that under control. We are finally working on getting the kidney functions back to where they need to be. I have been bouncing back and forth between stage 2 chronic renal disease and stage 3, but the new treatment plan should have that eradicated by the end of next month. Liver functions are holding their own and the Hep C is not doing any damage thus far. Overall besides the issues I am having with my colon and abdomen I am doing remarkably well. I am feeling a lot better.
As most of you are aware I have been in my new place for a little over 2 weeks and things keep falling in line that are helping me with the situation that I am in and I am grateful that I am being so blessed and favored with such goodness. I have even joined a church home and doing some meaningful work with them and also volunteering some of my time and energy to that cause. I am still without furniture but have a few things to follow up on that might prove fruitful and help me in that area.
I finally heard from Kerry and Tony both and they are doing well. Kerry is going to have surgery on Tuesday and I would ask that you keep him in your thoughts and prayers. Tony is struggling right now and dealing with a lot of mental and emotional stress and is still out there suffering on the streets. I am hoping that I might be able to help him with that situation soon. I talked to him for the first time since I came back from Atlanta back in September. I am so glad to hear form him, I have been really worried I had heard that he was in the hospital and some other things. Maybe I can finally get him down here and off the street for a little while.
Please read my blog entries on Suicide they are very important to me and I will be rounding out the series with what warning signs to look for and what protective factors we can use to help those that are in crisis.
As always my hopes and dreams are with you,
Uncle B
My viral load and T-cells are back to undetectable and normal range for a healthy person, so I am happy that we have that under control. We are finally working on getting the kidney functions back to where they need to be. I have been bouncing back and forth between stage 2 chronic renal disease and stage 3, but the new treatment plan should have that eradicated by the end of next month. Liver functions are holding their own and the Hep C is not doing any damage thus far. Overall besides the issues I am having with my colon and abdomen I am doing remarkably well. I am feeling a lot better.
As most of you are aware I have been in my new place for a little over 2 weeks and things keep falling in line that are helping me with the situation that I am in and I am grateful that I am being so blessed and favored with such goodness. I have even joined a church home and doing some meaningful work with them and also volunteering some of my time and energy to that cause. I am still without furniture but have a few things to follow up on that might prove fruitful and help me in that area.
I finally heard from Kerry and Tony both and they are doing well. Kerry is going to have surgery on Tuesday and I would ask that you keep him in your thoughts and prayers. Tony is struggling right now and dealing with a lot of mental and emotional stress and is still out there suffering on the streets. I am hoping that I might be able to help him with that situation soon. I talked to him for the first time since I came back from Atlanta back in September. I am so glad to hear form him, I have been really worried I had heard that he was in the hospital and some other things. Maybe I can finally get him down here and off the street for a little while.
Please read my blog entries on Suicide they are very important to me and I will be rounding out the series with what warning signs to look for and what protective factors we can use to help those that are in crisis.
As always my hopes and dreams are with you,
Uncle B
Sunday, September 30, 2012
Health update...once again
I have been back to the hospital yet once again. This time was pretty major, apparently a cyst formed on my kidney and pelvis. It started out on Wednesday afternoon as a 2 mm cyst and by Friday Morning it was 8 cm in diameter, 40 ml of fluid were drained from it, there was no sign of bacteria or infection. I am seriously wondering what caused this phenomena after 3 days of testing and draining of the cyst, I am still no closer to an answer than I was the day I was admitted to the hospital. Ever since I got back from Atlanta, my kidneys have been giving me a lot of trouble. I spent 3 days in the hospital when I got back to Florida, and I spent a day in the hospital in Atlanta before I left. I knew that I was severely dehydrated and that my kidneys were in jeopardy. This new addition of fluid building up in my body in areas that it isn't supposed to has made me wonder what is really going on with my body.
This is the first time in 20 years that I haven't been able to put a finger on what is happening with my body and knowing what I am supposed to do to fix it. Unfortunately, with this new information comes a whole new series of questions. I have been constantly on top of my bodies health ever since I was diagnosed with cancer 20 years ago. This is the first time that something new has cropped up that I haven't had the answers too. It has also made my mind go into overdrive to come up with a solution. Unfortunately with the information that I have I cannot for the life of me understand what is going on inside of me this time. So as with all things unexplained I leave it to the good Lord to sort out on His own, because in my mind He is the ultimate authority on the body since He created it. It has to be His will that I go through this or it wouldn't be happening to me at all.
I have to keep in mind that even as I walk there are times when my strength has failed to move me forward and it has been His unwavering steps that I glimpse in the sand as I look back over my path. I know it is Him who has carried me through those dark moments. I know it will be His divine wisdom that guides the physicians as the struggle to answer the newest mystery in my bodies physiology. I have to keep in mind that all answers are not always self apparent and have to be searched for and researched. I know that I wouldn't have been brought this far for an answer to be hidden and obscured that there is meaning in each of our lives and it is ours to seek out the answers.
I believe beyond a shadow of doubt that we are provided with all the answers to every question we will ever face when we are born onto the Earth, it is also my belief that if we look deep within ourselves that the answers to each question will be revealed in it's due course. See, I have unwavering faith, that when man was still in the Garden of Eden, and the first sin took place, that the knowledge of the ages was imparted to man, and was passed on through our blood. It is the philosopher's journey to unlock those hidden things within our mind. Most of you know that we only use a fraction of our brain during our lifetime, so why is it so large? It is my belief that in our own ignorance or arrogance which ever may have been the case for Adam and Eve's blatant refusal to obey the only commandment they were given, they ate of the fruit of the Tree of Knowledge. For which we have ever been separated from God and the divine.
Now, I know that you were not expecting a Sunday school lesson when you opened up my blog this evening, so I will leave it at this point, but remember that we are each on a journey and that journey is the search for the ultimate truth. Is is not? I hope it is, but it may just be what is the meaning of life or why am I here! These are also good questions and one's that can be answered on the inward journey that I am proposing. See within us is the knowledge of the ages and we need to educate ourselves as we move forward in this life to unlock the secrets of that knowledge, that is the true test that we are faced with in our daily life.
Yet, even as I struggle to grasp the meaning of life and all the other things that are yet obscured by my vision of reality, I seek to find the answers to the my health questions as well. I know the answers are there and that God is waiting for me to reach the level of understanding or enlightenment to reveal these answers to me, and in time I know I will get there. So with all my thoughts and prayers going out, I keep firmly my belief that all things known or will be known will be revealed to us through our journey and our learning. It is my hope that my health will hold out long enough for me to reach the place where I need to be to understand all of this.
So with all of that being said, I will continue to fill you in on what is happening with my health. When I was admitted to the hospital on Wednesday night it was apparent that the fluid build up was not normal from the reaction of the medical staff, however, it was surprising to find that my kidney's which had been such a problem just the week before seemed to be functioning at normal levels and all traces of kidney disease were gone. Now that got me really thinking. See sometimes it is the situation or circumstance that makes us break the mold of our thoughts and think outside of the box so to speak, and what was discovered is that despite the miraculous discovery that the kidneys were once again functioning as they should be there was still something not quite right with the whole situation, and what came to mind was that they had left the stint in place between my kidney's and bladder back in December for 2 months, now the normal length of time that a temporary stint should be in place is 30 days, anything longer the tissue grows back up around the stint and when removed a tear or rip in the organ can take place. So now, we have to search the left kidney for a possible tear or rip that might be minuscule in size which might be allowing fluid to leak into the body unnoticed and be the cause of the cysts that seem to be forming. The fluid is vacuous and not infected by bacteria or contagion which seems to mean that the fluid is sterile as it enters the body cavity. Urine is sterile until it is exposed to air. Could this not mean that the leak might be from the kidney through a rent or tear that was made when the stint was removed?
This is a question I will be following up with in the morning with my doctor to try and get to the bottom of this mystery. I am hoping that it is something as simple as this to my situation and that by now knowing what to look for might make it easier for the doctors to find. Otherwise, I may end up back in the hospital with the same problem all over again.
So tell me what do you think? Might there be something to what I have written here or is it my imagination just grasping at some straws to answer that which I cannot answer?
I really would like to know what your thoughts are on this. Could I be on the right track after all and that all the answers to all our questions are locked right inside of us the entire time?
As always my hopes and dreams are with you,
Uncle B
This is the first time in 20 years that I haven't been able to put a finger on what is happening with my body and knowing what I am supposed to do to fix it. Unfortunately, with this new information comes a whole new series of questions. I have been constantly on top of my bodies health ever since I was diagnosed with cancer 20 years ago. This is the first time that something new has cropped up that I haven't had the answers too. It has also made my mind go into overdrive to come up with a solution. Unfortunately with the information that I have I cannot for the life of me understand what is going on inside of me this time. So as with all things unexplained I leave it to the good Lord to sort out on His own, because in my mind He is the ultimate authority on the body since He created it. It has to be His will that I go through this or it wouldn't be happening to me at all.
I have to keep in mind that even as I walk there are times when my strength has failed to move me forward and it has been His unwavering steps that I glimpse in the sand as I look back over my path. I know it is Him who has carried me through those dark moments. I know it will be His divine wisdom that guides the physicians as the struggle to answer the newest mystery in my bodies physiology. I have to keep in mind that all answers are not always self apparent and have to be searched for and researched. I know that I wouldn't have been brought this far for an answer to be hidden and obscured that there is meaning in each of our lives and it is ours to seek out the answers.
I believe beyond a shadow of doubt that we are provided with all the answers to every question we will ever face when we are born onto the Earth, it is also my belief that if we look deep within ourselves that the answers to each question will be revealed in it's due course. See, I have unwavering faith, that when man was still in the Garden of Eden, and the first sin took place, that the knowledge of the ages was imparted to man, and was passed on through our blood. It is the philosopher's journey to unlock those hidden things within our mind. Most of you know that we only use a fraction of our brain during our lifetime, so why is it so large? It is my belief that in our own ignorance or arrogance which ever may have been the case for Adam and Eve's blatant refusal to obey the only commandment they were given, they ate of the fruit of the Tree of Knowledge. For which we have ever been separated from God and the divine.
Now, I know that you were not expecting a Sunday school lesson when you opened up my blog this evening, so I will leave it at this point, but remember that we are each on a journey and that journey is the search for the ultimate truth. Is is not? I hope it is, but it may just be what is the meaning of life or why am I here! These are also good questions and one's that can be answered on the inward journey that I am proposing. See within us is the knowledge of the ages and we need to educate ourselves as we move forward in this life to unlock the secrets of that knowledge, that is the true test that we are faced with in our daily life.
Yet, even as I struggle to grasp the meaning of life and all the other things that are yet obscured by my vision of reality, I seek to find the answers to the my health questions as well. I know the answers are there and that God is waiting for me to reach the level of understanding or enlightenment to reveal these answers to me, and in time I know I will get there. So with all my thoughts and prayers going out, I keep firmly my belief that all things known or will be known will be revealed to us through our journey and our learning. It is my hope that my health will hold out long enough for me to reach the place where I need to be to understand all of this.
So with all of that being said, I will continue to fill you in on what is happening with my health. When I was admitted to the hospital on Wednesday night it was apparent that the fluid build up was not normal from the reaction of the medical staff, however, it was surprising to find that my kidney's which had been such a problem just the week before seemed to be functioning at normal levels and all traces of kidney disease were gone. Now that got me really thinking. See sometimes it is the situation or circumstance that makes us break the mold of our thoughts and think outside of the box so to speak, and what was discovered is that despite the miraculous discovery that the kidneys were once again functioning as they should be there was still something not quite right with the whole situation, and what came to mind was that they had left the stint in place between my kidney's and bladder back in December for 2 months, now the normal length of time that a temporary stint should be in place is 30 days, anything longer the tissue grows back up around the stint and when removed a tear or rip in the organ can take place. So now, we have to search the left kidney for a possible tear or rip that might be minuscule in size which might be allowing fluid to leak into the body unnoticed and be the cause of the cysts that seem to be forming. The fluid is vacuous and not infected by bacteria or contagion which seems to mean that the fluid is sterile as it enters the body cavity. Urine is sterile until it is exposed to air. Could this not mean that the leak might be from the kidney through a rent or tear that was made when the stint was removed?
This is a question I will be following up with in the morning with my doctor to try and get to the bottom of this mystery. I am hoping that it is something as simple as this to my situation and that by now knowing what to look for might make it easier for the doctors to find. Otherwise, I may end up back in the hospital with the same problem all over again.
So tell me what do you think? Might there be something to what I have written here or is it my imagination just grasping at some straws to answer that which I cannot answer?
I really would like to know what your thoughts are on this. Could I be on the right track after all and that all the answers to all our questions are locked right inside of us the entire time?
As always my hopes and dreams are with you,
Uncle B
Tuesday, July 10, 2012
Thought you might like an update....
For those of you who don't follow me on Facebook, I figured I would give you an update on my status and why I haven't written much in the past 2 weeks. For those of you that do follow me on Facebook this might be a little repetitive and for that I apologize. However, you might find out a little more here since space is sort of limited on Facebook as to what I can post.
Anyhow, July 3rd, I decided to buy a scooter as a mode of transportation to get to and from different events. I figured this would give me a little more independence and give my parents some slack in running me around. But as usual if it wasn't for bad luck I wouldn't have any luck, and no matter how much planning I seem to do to accomplish a task, something inevitably goes wrong every time. So I shouldn't be at all surprised that as soon as I paid for the thing disaster was poised to strike. Now, you must keep in mind that my father was against me getting this thing from the very beginning and as such has been almost unbearable to live with because of the "I told you so's" and "You never listen to anything I have to say".
Now, not even 10 minutes after I paid for the darn thing, I decided to take a spin around the block just to check it out, I was turning around in a little apartment complex and was sitting at the stop sign waiting to turn right. Just as I was beginning to go I felt a jolt from behind and the scooter went out of control and started heading for the ditch on the opposite side of the street. The bad thing is as it was heading toward the ditch, it tipped to the left and I was pinned underneath it as it slid across the pavement. Needless to say I have lacerations and cuts from top of my head to my foot along the whole left side of my body. I also broke my ankle in this endeavor. Before I knew what was happening I flagged down a car and asked them to help me, I knew my head was bleeding but I didn't think I was hurt very badly. As a matter of fact I kept insisting I was fine as they were trying to strap me down to a backboard. Now, 2 officers responded to the scene and an ambulance and fire truck, and within minutes I was whisked away to the hospital.
After what seemed like forever, I was examined by the doctor and taken off the backboard, and laid on the bed to get more comfortable. Now, you all know me and I am a crazy person, I do things that are risky all the time but this wasn't something that I thought was a risk at all. I was wrong, if you want to know more about that look at my blog entry on "Advice Freely Given". All I can say at this point is I am glad I am alive and I wasn't hurt more than I was. Because I just had surgery on June 18th and I had staples from my breast bone to my groin, and honestly I had no business driving let alone being on a scooter. All that being said, the staples were examined and removed on Friday the 6th of July and everything was fine until Sunday morning. When I woke up I felt a sharp pain and itching sensation in my abdomen and when I looked 3 sutures had worked their way to the surface of my incision line. I went to the surgeon today and found out that they are there because when he operated on me he had to cut the muscles and tissue to remove scar tissue and adhesion's that had formed from all my previous surgeries and these sutures are to hold the muscle and tissue in place so they heal properly.
The ends were very sharp and that is what was cutting and scratching my skin and causing me some discomfort. The bad news was he was unable to remove the sutures because it is still too early and the healing isn't complete. He told me that the knots had to stay in for at least another month. He also told me to not be alarmed if they broke through the incision and came to the surface over time. He was able however to cut the ends off the knots so that they would no longer irritate my skin and tissue and with that being done, I should start to feel better soon. Directly after leaving the surgeon's office, I went to the orthopedic surgeons office to have my ankle evaluated and was delighted to find out that the actual break wasn't as bad as I had first thought.
I was able to have a walking cast put on, and told that it should only have to stay in place for 4 weeks which is another great piece of news because originally I was told I would be off my foot entirely for the next 12 weeks. I am probably going to have a lot of scaring because of the abrasions I sustained in the accident but overall I things are definitely looking better than first thought. Now I am hoping that tomorrow when I go to see the scooter and the damage from the accident the same will be true there as well. I know my parents are totally against me getting the thing fixed and riding it, and I am not sure I would be brave enough to get back on it right away. But like anything else in my life, I am not going to let it get me down and hold me back. So regardless of what they have to say, my intention is to get it repaired and fixed up the way I want it. From that point if I want to sell it or keep it the choice is mine. See, I set myself on this course and the end result is still the same. Even though they are mad and think I have wasted the money I have. The fact of the matter is I made the choice now, I have to live with it. From my point of view when you are handed lemons, make lemon aide, further I refuse to look at this as a negative, I find it easier to deal with the turmoils in my life when I can find the positive in the events that have taken place.
I wish everyone could do that and not dwell on the "I told you so's" and "why don't you listen" and "I was right and you were wrong" because frankly that just causes hard feelings and doesn't really accomplish anything. As with all things in my life I will get over it and I have learned something along the way. I find that humans learn better by failing and getting hurt than by not trying at all. Pain gives us the impetus to keep from making the same mistake twice, and trust me I now know what I am doing and will be on guard against it from happening again. Plus, it is ridiculous to think that an accident is something that was ordained. It wasn't planned hence calling it an accident, and guess what I am still alive and the material possession can be fixed or replaced. How could I have possibly have known that I was going to get hit by someone and that all of this would have transpired? I couldn't and even if I had a crystal ball and divine guidance I probably only would have seen probable futures, because until the events actually unfold many different variables come into play.
Like I said I will not let this get me down or defeat me, and no matter how my parents treat me because of this situation I am still going to do what I think is best. I keep in mind that everyone makes mistakes and my favorite analogy springs to mind "Shit Happens". It is time to keep my head up and keep moving forward, because as my best friend would say "So What, Who Cares, Get over it!"
For some other good news, I spent the day in Orlando yesterday with the VA. Met with the infectious disease doctor, and my HIV viral load is back to undetectable and my CD4 count is 298 and climbing. Further, there have been no complications to the Hep C, and it looks like the treatment is going to eradicate the disease from my body totally without permanent damage. In other words, even though my surgery didn't go quite as expected, my body has begun fighting for itself and is doing a great job of putting everything in check. They have also down graded my renal disease from stage 4 to stage 2 and it is steadily improving, there is only going to be a slight impairment. My damaged kidney has somehow found new life and is responding well to drinking of water and the new medications I have been given. Maybe by September they will have fixed the kidneys sufficiently to say that the renal disease is in remission.
Now keep in mind that all of this is being accomplished because so many people out there are praying for my recovery, and I know that God is answering those prayers, and I am thankful beyond all understanding for that. When I came to Florida, I had come home to die, and now it looks like things are finally starting to turn around and I will be granted more time. I know I can't hope for 10 more years, but 3 to 5 sounds good too me.
Anyhow, sorry I haven't been writing as much, just been in a lot of pain and under the influence of some pretty hefty drugs. I do plan on getting back to working on my blog daily starting tomorrow. I hope you all will keep on reading. You never know what you are going to find here. I live a very exciting life and I can promise you my days are far from boring.
As always my hopes and dreams are with you.
Uncle B
Anyhow, July 3rd, I decided to buy a scooter as a mode of transportation to get to and from different events. I figured this would give me a little more independence and give my parents some slack in running me around. But as usual if it wasn't for bad luck I wouldn't have any luck, and no matter how much planning I seem to do to accomplish a task, something inevitably goes wrong every time. So I shouldn't be at all surprised that as soon as I paid for the thing disaster was poised to strike. Now, you must keep in mind that my father was against me getting this thing from the very beginning and as such has been almost unbearable to live with because of the "I told you so's" and "You never listen to anything I have to say".
Now, not even 10 minutes after I paid for the darn thing, I decided to take a spin around the block just to check it out, I was turning around in a little apartment complex and was sitting at the stop sign waiting to turn right. Just as I was beginning to go I felt a jolt from behind and the scooter went out of control and started heading for the ditch on the opposite side of the street. The bad thing is as it was heading toward the ditch, it tipped to the left and I was pinned underneath it as it slid across the pavement. Needless to say I have lacerations and cuts from top of my head to my foot along the whole left side of my body. I also broke my ankle in this endeavor. Before I knew what was happening I flagged down a car and asked them to help me, I knew my head was bleeding but I didn't think I was hurt very badly. As a matter of fact I kept insisting I was fine as they were trying to strap me down to a backboard. Now, 2 officers responded to the scene and an ambulance and fire truck, and within minutes I was whisked away to the hospital.
After what seemed like forever, I was examined by the doctor and taken off the backboard, and laid on the bed to get more comfortable. Now, you all know me and I am a crazy person, I do things that are risky all the time but this wasn't something that I thought was a risk at all. I was wrong, if you want to know more about that look at my blog entry on "Advice Freely Given". All I can say at this point is I am glad I am alive and I wasn't hurt more than I was. Because I just had surgery on June 18th and I had staples from my breast bone to my groin, and honestly I had no business driving let alone being on a scooter. All that being said, the staples were examined and removed on Friday the 6th of July and everything was fine until Sunday morning. When I woke up I felt a sharp pain and itching sensation in my abdomen and when I looked 3 sutures had worked their way to the surface of my incision line. I went to the surgeon today and found out that they are there because when he operated on me he had to cut the muscles and tissue to remove scar tissue and adhesion's that had formed from all my previous surgeries and these sutures are to hold the muscle and tissue in place so they heal properly.
The ends were very sharp and that is what was cutting and scratching my skin and causing me some discomfort. The bad news was he was unable to remove the sutures because it is still too early and the healing isn't complete. He told me that the knots had to stay in for at least another month. He also told me to not be alarmed if they broke through the incision and came to the surface over time. He was able however to cut the ends off the knots so that they would no longer irritate my skin and tissue and with that being done, I should start to feel better soon. Directly after leaving the surgeon's office, I went to the orthopedic surgeons office to have my ankle evaluated and was delighted to find out that the actual break wasn't as bad as I had first thought.
I was able to have a walking cast put on, and told that it should only have to stay in place for 4 weeks which is another great piece of news because originally I was told I would be off my foot entirely for the next 12 weeks. I am probably going to have a lot of scaring because of the abrasions I sustained in the accident but overall I things are definitely looking better than first thought. Now I am hoping that tomorrow when I go to see the scooter and the damage from the accident the same will be true there as well. I know my parents are totally against me getting the thing fixed and riding it, and I am not sure I would be brave enough to get back on it right away. But like anything else in my life, I am not going to let it get me down and hold me back. So regardless of what they have to say, my intention is to get it repaired and fixed up the way I want it. From that point if I want to sell it or keep it the choice is mine. See, I set myself on this course and the end result is still the same. Even though they are mad and think I have wasted the money I have. The fact of the matter is I made the choice now, I have to live with it. From my point of view when you are handed lemons, make lemon aide, further I refuse to look at this as a negative, I find it easier to deal with the turmoils in my life when I can find the positive in the events that have taken place.
I wish everyone could do that and not dwell on the "I told you so's" and "why don't you listen" and "I was right and you were wrong" because frankly that just causes hard feelings and doesn't really accomplish anything. As with all things in my life I will get over it and I have learned something along the way. I find that humans learn better by failing and getting hurt than by not trying at all. Pain gives us the impetus to keep from making the same mistake twice, and trust me I now know what I am doing and will be on guard against it from happening again. Plus, it is ridiculous to think that an accident is something that was ordained. It wasn't planned hence calling it an accident, and guess what I am still alive and the material possession can be fixed or replaced. How could I have possibly have known that I was going to get hit by someone and that all of this would have transpired? I couldn't and even if I had a crystal ball and divine guidance I probably only would have seen probable futures, because until the events actually unfold many different variables come into play.
Like I said I will not let this get me down or defeat me, and no matter how my parents treat me because of this situation I am still going to do what I think is best. I keep in mind that everyone makes mistakes and my favorite analogy springs to mind "Shit Happens". It is time to keep my head up and keep moving forward, because as my best friend would say "So What, Who Cares, Get over it!"
For some other good news, I spent the day in Orlando yesterday with the VA. Met with the infectious disease doctor, and my HIV viral load is back to undetectable and my CD4 count is 298 and climbing. Further, there have been no complications to the Hep C, and it looks like the treatment is going to eradicate the disease from my body totally without permanent damage. In other words, even though my surgery didn't go quite as expected, my body has begun fighting for itself and is doing a great job of putting everything in check. They have also down graded my renal disease from stage 4 to stage 2 and it is steadily improving, there is only going to be a slight impairment. My damaged kidney has somehow found new life and is responding well to drinking of water and the new medications I have been given. Maybe by September they will have fixed the kidneys sufficiently to say that the renal disease is in remission.
Now keep in mind that all of this is being accomplished because so many people out there are praying for my recovery, and I know that God is answering those prayers, and I am thankful beyond all understanding for that. When I came to Florida, I had come home to die, and now it looks like things are finally starting to turn around and I will be granted more time. I know I can't hope for 10 more years, but 3 to 5 sounds good too me.
Anyhow, sorry I haven't been writing as much, just been in a lot of pain and under the influence of some pretty hefty drugs. I do plan on getting back to working on my blog daily starting tomorrow. I hope you all will keep on reading. You never know what you are going to find here. I live a very exciting life and I can promise you my days are far from boring.
As always my hopes and dreams are with you.
Uncle B
Subscribe to:
Posts (Atom)