The big C not totally unexpected but still?

I was talking to my father yesterday afterr meeting with my urologist.  I told him that I thought it would get easier thelonger I dealt with cancer.  But the truth of the matter the disease scares the hell out of me.  I have seen what it has done to other people, and I certainly have had my share of experiences with this disease.  Yet, each time I am told by a doctor that I have cancer that  same old feeling descends on me and I feel helpless and afraid, just like the first time I ever heard the name mutttered in my direction.

Now, if you are a faithful reader you know that this is definitely not my first time at this rodeo, as a matter of fact this is my 4th reoccurence of cancer in one form or another since 2005.  So when I entered the doctors office the verdict was not totally unexpected.  When you have lived as long as I have and have continued to battle the same disease over and over again, you sort of become an expert in strategy and tactics that the doctors have in their arsenal. Not to mention you become highly tuned to the inner workings of your body that nothing  creeps past you and jumps out from the shadows. 

Luckily when I was 23 and was diagnosed with cancer the first time, the chemo and radiation were highly effective and I was able to enjoy 11 great years totally cancer free.  I would say that this was the time that my life and career actually excelled and I accomplished meaningful tasks and learn so much.  It was during that 10 year break that I learned everything I could learn about the disease that I had, and how my body felt throughout the different stagesof treatment and trained myself to look for recurring symptoms that might indicate the a major change was happening within my body.

But, no matter how much you know and how well you think you are prepared you never like to hear the words cancer when referring to yourself.  True there are all sorts of new treatment options and a great many people survive and eventually become cured.  In my case I have been attacked on 3 occasions with 3 different types of cancer.  The first one is Large Cell Lymphoma,  this is a non-hodgekins lymphoma and it primarily attacks the lymphatic system and is very fast growing.  The next was colorectal cancer and that in comparison with Large cell is a much slower growing and moving type of cancer and in most cases surgery seems to be the best offer.  If you  have a localized spot where the tumor has grown and is contained within an organ or a cavity, these types can be easily removed with little because they have not begun to spread. 

I have learned that chemo is so harsh on the body andit is actually industrial stregnth poison that is injected to your blood in the hopes that it will kill the abnormal cancer cells before it kills your healthy good cells.  Which in and of itself seems like a risk that has the potential for great success or for great failure depending on your body and the resiliency of the cancer which they are trying to fight.  Repeated treatments of chemo add the potential for large amounts of scar tissue to be formed where damaged cells have tried to protect themselve and recover from this harsh toxic agent.  This can lead to complications down the road, because as scar tissue is formed abnormal cells can also form right along with it.  These abnormal cells when they grow together are called a tumor and are the basis for cancer.  Thus begins a vicious cycle.

Cancer can come back multiple times and can form due to many different reasons, some genetics, others damage to organs and tissue.  Whereas, certain medications can cause certain problems to creep up and from there the cells can easily be mutated and viola, cancer is once again a major player on the field waging war with you entire being.  In my case the HIV drug called Atripla is largely responsible for the damage to my kidney.  The component of the drug cause some trauma to my kidney and impaired it's functioning.  This impairment became great enough at one point that kidney stones formed, and because of their size had to be surgically removed.  What I didn't realize then was that the complications that came up when I was dealing with the kidney stones was going to greatly impact my life in any meaningful fashion until yesterday. 

When my right kidney was filled with stones, my kidney would back up and the bladder would not be able to totally empty itself completely.  Because of this a urinary tract infection soon ensued and the urologist of the time decided that he was going to put a stint into that kidney and by pass the uritors and connect the kidney directly to the bladder and aleviate some of the pain and discomfort I  was having from these infections.  This took place in 2011, and here we are 6 years later and the significance of that action finally hit home with me yesterday afternoon once I got home from the doctor and was able to sit down and think about what I had heard and battled 3 other times in my life.  It is my opinion, which I must say is pretty well supported by the ultrasound and image studies that were done on the tumor before the biopsy was completed.  Looking at the pictures it is fairly easy to tell that the tumor has formed in the most likely spot that a stint would have resided years ago that connected the bladder and the kdiney toget.  

See when the doctor pulled out that stint so long ago,, scar tissue was able to grow over the areas that were actually damaged by the insertion of the stint.  The scar tissue was dense enough that the tumor was able to grow for a period of time hidded deep within.  The scar tissue not only gave the tumor a very good hiding place it also was able to mask the symptoms so I wasn't actually aware taht I was feeling off and that I had another outbreak of cancer.  This being said I want you to know that once again my trip down this new adventure has started out just like all of the other pervious bouts with cancer.

All I can tell you that finding out that the cancer is back and that it is in another location and that you have a chance that this tumor has spread to areas where you can't find it and that is when things really start getting really scary and real period!  I really wasn't surprised that the tumor that they found on my right kidney turned out to be cancerous.  What was surprising was that this was a totally new form of cancer, one that I have had  absolutely no experience dealing with previously.   The up side of this type of cancer is that it currently is localized to the right kidney wall and though it has tendrils that could eventually mean growth and spreading I was assured by the doctor that this was a very slow growing form of cancer and that I should respond to the treatment plan that he put in place to highly favorablely. 

However, with all of that out on the table in front of you to view I should go on to tell you about the entire conversation that I had with my doctor yesterday and sort of point out where the creeping little doubt and fear is coming from with this new found information.  See even though this tumor was caught fairly early in the stages and it is slow growing I have to add in the factor that I have had a very complicated medical history with numerous issues and complications creeping up in all of my previous encounters with this dreaded disease.  So, with all of the previous issues and complication this tumor could actually become more serious than orginally thought, especially if it truly has started to grow and spread.  Because the migration path is not a very clean path and could eally if this isn't handled in the best possible manner could easily spread to my spine and from there pelvis, chest and eventually could even reach my brain.  Once it reaches the spine it is only a matter of time before it goes from casual to tragic.  See I already have spinal issues and compromised bone marrow, and these factors alone make for a deadly outcome. 

A vicious cycle seems to ensue and before I know it the cancer could be everywhere in my body.  Plus the fact that this tumor has grown significantly it's symptoms and pain might actually mask the growth of cancer in other parts of my body and thus lead to a much larger problem than originally indicated.  So I have decided to take the most proactive steps that I can aggressively persue and have selected having a different type of procedure performed that might be able to totally eradicate the diease way before any more significant damage can happen to my body.  I have agreed to let them go in through my back and freezd the tumor which will immediately necratized the bad cells while allowing the good cells to remain unharmed.  I am looking at having to have this surgery performed rather quickly to head off the cancer and be totally healed.

It is just funny that no matter how many times I have been told that I have cancer,  that same ole fear and trepidation seem to sneak in and cuase mental anguish.  Nothing prepares you to hear those words or how to react once you have heard them. But like I told a woman that I met at Family Dollar the other night:  "God doesn't give us more than we can bare, for longer than we can stand!"  Which serves to remind me that this too is just a fleeting problem, and will not last very long in deed and will therefore make me a much stronger person in the long run

As always my hopes and dreams ware with you ,

Uncle B

Health update...once again

I have been back to the hospital yet once again.  This time was pretty major, apparently a cyst formed on my kidney and pelvis.  It started out on Wednesday afternoon as a 2 mm cyst and by Friday Morning it was 8 cm in diameter, 40 ml of fluid were drained from it, there was no sign of bacteria or infection.  I am seriously wondering what caused this phenomena after 3 days of testing and draining of the cyst, I am still no closer to an answer than I was the day I was admitted to the hospital. Ever since I got back from Atlanta, my kidneys have been giving me a lot of trouble. I spent 3 days in the hospital when I got back to Florida, and I spent a day in the hospital in Atlanta before I left.  I knew that I was severely dehydrated and that my kidneys were in jeopardy.  This new addition of fluid building up in my body in areas that it isn't supposed to has made me wonder what is really going on with my body.

This is the first time in 20 years that I haven't been able to put a finger on what is happening with my body and knowing what I am supposed to do to fix it.  Unfortunately, with this new information comes a whole new series of questions. I have been constantly on top of my bodies health ever since I was diagnosed with cancer 20 years ago.  This is the first time that something new has cropped up that I haven't had the answers too.  It has also made my mind go into overdrive to come up with a solution. Unfortunately with the information that I have I cannot for the life of me understand what is going on inside of me this time.  So as with all things unexplained I leave it to the good Lord to sort out on His own, because in my mind He is the ultimate authority on the body since He created it.  It has to be His will that I go through this or it wouldn't be happening to me at all.

I have to keep in mind that even as I walk there are times when my strength has failed to move me forward and it has been His unwavering steps that I glimpse in the sand as I look back over my path.  I know it is Him who has carried me through those dark moments. I know it will be His divine wisdom that guides the physicians as the struggle to answer the newest mystery in my bodies physiology.  I have to keep in mind that all answers are not always self apparent and have to be searched for and researched.  I know that I wouldn't have been brought this far for an answer to be hidden and obscured that there is meaning in each of our lives and it is ours to seek out the answers.

I believe beyond a shadow of doubt that we are provided with all the answers to every question we will ever face when we are born onto the Earth, it is also my belief that if we look deep within ourselves that the answers to each question will be revealed in it's due course.  See, I have unwavering faith, that when man was still in the Garden of Eden, and the first sin took place, that the knowledge of the ages was imparted to man, and was passed on through our blood.  It is the philosopher's journey to unlock those hidden things within our mind. Most of you know that we only use a fraction of our brain during our lifetime, so why is it so large? It is my belief that in our own ignorance or arrogance which ever may have been the case for Adam and Eve's blatant refusal to obey the only commandment they were given, they ate of the fruit of the Tree of Knowledge. For which we have ever been separated from God and the divine.

Now, I know that you were not expecting a Sunday school lesson when you opened up my blog this evening, so I will leave it at this point, but remember that we are each on a journey and that journey is the search for the ultimate truth.  Is is not? I hope it is, but it may just be what is the meaning of life or why am I here! These are also good questions and one's that can be answered on the inward journey that I am proposing. See within us is the knowledge of the ages and we need to educate ourselves as we move forward in this life to unlock the secrets of that knowledge, that is the true test that we are faced with in our daily life.

Yet, even as I struggle to grasp the meaning of life and all the other things that are yet obscured by my vision of reality, I seek to find the answers to the my health questions as well. I know the answers are there and that God is waiting for me to reach the level of understanding or enlightenment to reveal these answers to me, and in time I know I will get there. So with all my thoughts and prayers going out, I keep firmly my belief that all things known or will be known will be revealed to us through our journey and our learning.  It is my hope that my health will hold out long enough for me to reach the place where I need to be to understand all of this.

So with all of that being said, I will continue to fill you in on what is happening with my health. When I was admitted to the hospital on Wednesday night it was apparent that the fluid build up was not normal from the reaction of the medical staff, however, it was surprising to find that my kidney's which had been such a problem just the week before seemed to be functioning at normal levels and all traces of kidney disease were gone.  Now that got me really thinking.  See sometimes it is the situation or circumstance that makes us break the mold of our thoughts and think outside of the box so to speak, and what was discovered is that despite the miraculous discovery that the kidneys were once again functioning as they should be there was still something not quite right with the whole situation, and what came to mind was that they had left the stint in place between my kidney's and bladder back in December for 2 months, now the normal length of time that a temporary stint should be in place is 30 days, anything longer the tissue grows back up around the stint and when removed a tear or rip in the organ can take place.  So now, we have to search the left kidney for a possible tear or rip that might be minuscule in size which might be allowing fluid to leak into the body unnoticed and be the cause of the cysts that seem to be forming. The fluid is vacuous and not infected by bacteria or contagion which seems to mean that the fluid is sterile as it enters the body cavity.  Urine is sterile until it is exposed to air.  Could this not mean that the leak might be from the kidney through a rent or tear that was made when the stint was removed?

This is a question I will be following up with in the morning with my doctor to try and get to the bottom of this mystery.  I am hoping that it is something as simple as this to my situation and that by now knowing what to look for might make it easier for the doctors to find.  Otherwise, I may end up back in the hospital with the same problem all over again.

So tell me what do you think? Might there be something to what I have written here or is it my imagination just grasping at some straws to answer that which I cannot answer?

I really would like to know what your thoughts are on this. Could I be on the right track after all and that all the answers to all our questions are locked right inside of us the entire time?

As always my hopes and dreams are with you,

Uncle B