Showing posts with label me. Show all posts
Showing posts with label me. Show all posts

Monday, April 3, 2017

Medical update time

Well folks the official news has come in and I am finally cancer free at this time.  Now,  this doesn't mean that cancer can't or won't come back.  What it does mean is that at the present time all markers and indicators seem to point to the fact that the cancer is gone. I had surgery on March 28, 2017, today is the one month mark of my recovery period. The procedure lasted 5 1/2 hours and I spent 5 full days in the hospital.

Life is funny and full of little turns and twists that keeps us guessing from moment to moment.  Nothing is ever
A 11 smooth or goes exactly the way we planned.  If it wasn't this way our lives would be so monotonous and boring we wouldn't know what to do.

Well they were able to remove a golf ball sized tumor from my right kidney.  From all indications it appears that for the first time in 26 years I am cancer free. Now this doesn't mean that cancer will never come back, because it more than likely will. It just means that at this time my doctor's are pretty sure that it is gone for awhile.

I ended up back in the hospital last week on Wednesday because I had walking pneumonia, but I am home now and doing well. Other than that I can't complain about my health. As always you continued well wishes and prayers are appreciated. Thank you so very much for being my support network and venting board. I want you to know it means the world to me that you are out there reading my blog.

As always live well love much and laugh often.

Uncle B

Thursday, March 12, 2015

what is it too you?

I have been told that I should not share my life with you.  That I should edit what I put online, but here is the simple truth.  I am an open book, I have nothing to fear or hide. I want the world to know me. I have been through so much that I feel that I must share it with you.  I have been writing in this blog since 2012 and I have used my life as examples throughout.  I have found that people respond to what I have been through and can use my experiences to enrich their own life and walk their own journey.  It is my desire that one person find comfort, solace, help or even companionship in my writing.  I don't understand why some people want to limit what I have to say.  I guess it is because I tend to shed light on things that they wish to keep hidden.  But, see I write whatever I feel is needed at the time it is needed.  

You don't know how many times I receive emails telling me that my words or adventure has hit home for them, that they have found comfort in my words, or have found a way around a specific problem just because whatever I had written spoke directly too them.  Now, for the record I must confess that when I sit down to write, it isn't always my words that I find on the page or on the screen.  What do I mean by that, well sometimes I don't even remember writing what I am reading off the screen.  It is as if someone else had written the words, and I was just the person who sat down and typed them out.

Now if you follow my Facebook page, you will find that what I am about to talk to you about is something that I found out from my doctors yesterday.  One of the many reasons I write to you and tell you what is going on in my life, is because I don't have that many friends here in Daytona, and I pretty much have no one to talk to about what is happening in my life and what I am going through.  Most of the time when I sit down to write it is to purge my system and just get it out.  Once I start to let everything out on the screen I start to feel better about myself and everything else just seems to fall into place.  I don't know if you can follow what I am trying to say, so I will break it down just a little farther.  See because I really don't have anyone to talk to about my problems, issues, and adventures, I have found that writing them out and talking to you my readers is just like having a close personal friend that I can talk to.  You would be surprised at how many times, I have found the answer I was seeking while I was sitting down writing to you all.  

Some of you know me really well, others maybe not.  Those that know me will tell you that I am a very social person. I hate to be alone, and I love to talk to others, and if I don't have that outlet I start to go crazy.  So without having someone here in Daytona that I can really talk to about everything that is happening in my life I turn to my blog and put it all out there.  Once I do that I start feeling better, it is like a great big weight has been lifted off of my shoulders, and I can finally go on.  This is very important too me, because for so many years I kept everything bottled up inside of me, and when I did let those feelings out it was like a volcanic eruption and it was usually at the wrong person.  So instead of doing that anymore, I have learned that I can purge my feelings and soul by writing out what I am going through and it is just like having a friend close by that I can talk to.

Now with that being said, I want to go a little bit more in depth about what the doctors told me yesterday and why it has me so scared and upset.  But before I do, let me tell you that I have tried to reach out to others, left text messages and called and never got a response so it is time for me to let it all out and maybe someone who reads this will pick up the phone, or drop me a line and of course a dialog will begin and I may feel even better about my situation.  

Yesterday, I went to Orlando to see my infectious disease doctor, and of course the news was not exactly what I wanted to hear.  Now just for the record, no doctor ever tells me something that I want to hear, it is always this negative stuff, and too me it seems like they have given up on me and have already written me off as dead.  But, let me tell you if that is what they are thinking they are in for a rude surprise when I am still here years after they thought I would be gone.  So here we go, a purge is about to begin, so if you don't want to hear what is going on in my life at the moment then I encourage you to leave right now. Stop reading what I am writing and log off of my blog, because I am about to tell you everything the doctors told me yesterday, and why I am so scared of what I have found out.

See most of you know that over the summer and fall I was attacked by a vicious bacterial infection called osteomilitis.  This is a bacterial infection that attacks bones and bone marrow.  It can attack the human body anywhere there is bone. I spent 4 months in a nursing home and 2 months in the hospital.  Very painful, and not any fun at all.  Anyway, I have digressed a little bit, I want to tell you the exact words from my ID physician.  He told me that the MRI that I had done on February 4th showed advanced progression of the bacterial infection and that I would have to go back into a skilled nursing facility to closely monitor the antibiotics that I would have to take.  I was also told that the time that I spent in intensive care back in February had caused some serious complications with my kidneys as well as my liver an it looked like I would have to go through Hep C treatments all over again.  Which is a big concern for myself, because exactly a year ago, I had an aneurysm due to the fact that the Hep C treatment had weakened the vein to my liver and it ruptured on me and I almost bled to death.

So, as you can tell I have some things on my plate that have made me a bit nervous.  But, let me tell you something else that I have become acutely aware of is that by the grace of God and all the many people that are out there praying for me I have been healed and I am closer today in my walk with God then I have ever been before, and I will let nothing and no one weaken that bond that I have finally developed.  I can also tell you that when I thought things were the darkest and I felt like I was going to have to face all of this on my own, my phone rang, and I heard a voice from my past.  It was my best friend, and someone that I love with all my heart.  He told me that he was in trouble and that he was here in Florida and he need my help. I got to speak to him once again tonight and because of our conversation I feel stronger and more sure of myself.  I know that I can do this. I can face this demon head on and with the Might of Jesus and the support of my friends and family I am going to survive this.

Just the other night a really close friend of mine told me that he saw God within me and knew that I had a ministry and a mission to fulfill and because of that he knew that I was not going anywhere and that I would beat this malady that has afflicted my body.  I know that at times, with the pain, and anguish that I face my faith sometimes falters, but only for  a minute. I don't let nothing and no one hold me down and make me sad for long.  I stay positive and focused and that is the way that God meant for us to tackle our problems.  Remember that God helps those that help themselves, and if we let our light shine for Jesus we will never be forsaken or forgotten.  

I have catered to people all my life, I have tried extremely hard to please everyone, I have also tried to rescue every lost soul that I could find and sometimes to the point of hurting myself.  I have to tell you that over the past year I have learned that I cannot be like that anymore. I have to do for myself. I have to stand on my own, and I have to fight, because as I found out the hard way, when things get tough around you, you will be standing there and fighting all alone. No one is going to defend you or have your back unless you are very lucky to find your soul-mate.  Just the other day I told you guys that I thought that I had given up on love, but here I was putting my heart back out there and I am willing to try again.  There has got to be someone out there for me. Someone that wants and needs me as much as I need them.  I will remain strong in my faith and I know that Jesus is going to deliver me through these times of trial and I will be victorious and I will not have to face this all by myself that He has someone out there for me that is willing to stand by my side and will keep me fighting and keep  my head up and my confidence high.  I know this as sure as I am sitting here talking to you.

God will not forsake me in my hour of need, He will not leave me hanging and defenseless.  He is not that kind of God and the closer I walk with Him the more of His divine plan I see, and I know that there is someone just around the corner, just out of sight and reach at this particular moment, but the time is moving faster now and I know that before I wait too much longer the person he has for me will be here and I will not be alone anymore.  I have no more doubts, and my fears are laid to the side because as I approach this new year I feel and sense that change is in the air for me and those around me.  Life is precious and it is a great gift that God has bestowed upon us and we must maintain it and claim it in His name.

Like I said earlier I have done for others to the exclusion of myself and I will not and cannot do it anymore.  So for those of you who are my detractors, those haters that have something against me, or want something from me that I am not ready or willing to give, trust me when I tell you to shove off and move on there is nothing here for you anymore.  See my life has become more intense and I have a network of friends now that are supportive and will stand with me as I face the coming days.  So what is it too you what I write about?  What I disclose on Facebook or in my blog?  You have no claim on me, you can't tell me what to do. If I am hurting you in some way, I am sorry but I have got to be the person God made me and wants me to be.  I am a book that needs to be read, there are strong and powerful lessons to be learned from me and my example, and because I won't listen to you, you want to tell me to stop putting my life out on social media. well screw you! Who do you think you are?  You certainly don't think that I am going to stop just because you said I needed to, do you?  

If you can't abide by my decisions, and you don't like how I put myself out there, then I guess if you don't want your business told on your interactions with me  you need to move on.  Because there is nothing hidden in my life, and if you want your participation hidden then I suggest you don't participate with me, because I  am telling you anything that happens in my life is going to be shared with my readers.  This is what they are here for. They want to learn from my mistakes and they like the way I write, therefore I am sorry, I am not going to change for you!

All my life I have dealt with people like you wanting to control me for your own gain, to use me and what I can do for you.  But honey it is too late and I have been about used up.  I am moving on so should you.  I haven't got anything left for you. There are always going to be haters out there and they will always try to pull you down, they can't stand to see you happy or you succeeding but too bad I am not up for grabs, I have my eye set on a prize and I think I am going to claim it and make it mine finally. Personally I have waited a long time for a specific person and if they still aren't ready now, I am willing to wait some more.  

I hope you can understand what I am saying, where I am coming from and the direction I am heading there is no room this time for others to hang on and drag at me. I am free, and I am going to fly, and when I do, I am going to do it with or without your support.

As always my hopes and dreams are with you,

Uncle B


Thursday, February 21, 2013

Here is an update for all of you inquiring minds!

I want to let everyone know that I am finally back in Florida, and there are going to be some new things coming from Uncle B.  I am working with my partner to flush out new subjects and topics to discuss with you guys.

I don't want to repeat myself and beat a dead horse.  I think you all get the point of what I have been trying to tell you.  The adventures in California were both enlightening and life changing.  I learned a lot from my time out there and I hope that it reflects in what I am writing about.

I am also starting to work on a new book so stay tuned..

My hopes and dreams are with you,

Uncle B

Saturday, July 21, 2012

Me

I am who I am and that is all I can be.
I am not you and couldn't be.
So don't you judge or criticize
You are you and have your own ideals and beliefs
I don't think you can comprehend or understand me.
I don't believe like you, I am who I choose.

Whether right or wrong it is not your place
because when I look in the mirror I don't see your face.
I have my own mind and voice,
This is my right and my choice.

You think you are helping me
offering choice and pity.
But what I do and choose defines my path,
and how I handle things with a laugh
is how it is has got to be
I like to live life light and free.

Your pain and sacrifice are for you alone
My choice and decision are mine to atone
You have your own mind and will
That has made you my friend and still
I don't want to be you my friend
I need you to walk with me toward my end.

I am me and you are you
We are friends that is true,
As long as you can accept me
and can truly let me be
I accept and follow you
because I know all that you have been through

Because of that we are a match
and can make it through this rough patch
keep me strong and have my back
and I will do the same right back.

This is what makes us a pair
keeps us strong and helps us fare
the path of life
even though it is filled with strife
I am glad your here
with out you I would live in fear
that I couldn't make it through
but you keep me strong and true.

Thank you for you, for accepting me for who I am
because of you I am strong.
But I am what I am
Just like you are you.

As always my hopes and dreams are with you,

Uncle B

Tuesday, July 10, 2012

Thought you might like an update....

For those of you who don't follow me on Facebook, I figured I would give you an update on my status and why I haven't written much in the past 2 weeks.  For those of you that do follow me on Facebook this might be a little repetitive and for that I apologize.  However, you might find out a little more here since space is sort of limited on Facebook as to what I can post.

Anyhow, July 3rd, I decided to buy a scooter as a mode of transportation to get to and from different events.  I figured this would give me a little more independence and give my parents some slack in running me around.  But as usual if it wasn't for bad luck I wouldn't have any luck, and no matter how much planning I seem to do to accomplish a task, something inevitably goes wrong every time.  So I shouldn't be at all surprised that as soon as I paid for the thing disaster was poised to strike.  Now, you must keep in mind that my father was against me getting this thing from the very beginning and as such has been almost unbearable to live with because of the "I told you so's" and "You never listen to anything I have to say".

Now, not even 10 minutes after I paid for the darn thing, I decided to take a spin around the block just to check it out, I was turning around in a little apartment complex and was sitting at the stop sign waiting to turn right.  Just as I was beginning to go I felt a jolt from behind and the scooter went out of control and started heading for the ditch on the opposite side of the street.  The bad thing is as it was heading toward the ditch, it tipped to the left and I was pinned underneath it as it slid across the pavement.  Needless to say I have lacerations and cuts from top of my head to my foot along the whole left side of my body.  I also broke my ankle in this endeavor.  Before I knew what was happening I flagged down a car and asked them to help me, I knew my head was bleeding but I didn't think I was hurt very badly.  As a matter of fact I kept insisting I was fine as they were trying to strap me down to a backboard.  Now, 2 officers responded to the scene and an ambulance and fire truck, and within minutes I was whisked away to the hospital.

After what seemed like forever, I was examined by the doctor and taken off the backboard, and laid on the bed to get more comfortable.  Now, you all know me and I am a crazy person, I do things that are risky all the time but this wasn't something that I thought was a risk at all.  I was wrong, if you want to know more about that look at my blog entry on "Advice Freely Given".  All I can say at this point is I am glad I am alive and I wasn't hurt more than I was.  Because I just had surgery on June 18th and I had staples from my breast bone to my groin, and honestly I had no business driving let alone being on a scooter.  All that being said, the staples were examined and removed on Friday the 6th of July and everything was fine until Sunday morning.  When I woke up I felt a sharp pain and itching sensation in my abdomen and when I looked 3 sutures had worked their way to the surface of my incision line.  I went to the surgeon today and found out that they are there because when he operated on me he had to cut the muscles and tissue to remove scar tissue and adhesion's that had formed from all my previous surgeries and these sutures are to hold the muscle and tissue in place so they heal properly.

The ends were very sharp and that is what was cutting and scratching my skin and causing me some discomfort.  The bad news was he was unable to remove the sutures because it is still too early and the healing isn't complete.  He told me that the knots had to stay in for at least another month.  He also told me to not be alarmed if they broke through the incision and came to the surface over time.  He was able however to cut the ends off the knots so that they would no longer irritate my skin and tissue and with that being done, I should start to feel better soon.  Directly after leaving the surgeon's office, I went to the orthopedic surgeons office to have my ankle evaluated and was delighted to find out that the actual break wasn't as bad as I had first thought.

I was able to have a walking cast put on, and told that it should only have to stay in place for 4 weeks which is another great piece of news because originally I was told I would be off my foot entirely for the next 12 weeks.  I am probably going to have a lot of scaring because of the abrasions I sustained in the accident but overall I things are definitely looking better than first thought.  Now I am hoping that tomorrow when I go to see the scooter and the damage from the accident the same will be true there as well.  I know my parents are totally against me getting the thing fixed and riding it, and I am not sure I would be brave enough to get back on it right away. But like anything else in my life, I am not going to let it get me down and hold me back.  So regardless of what they have to say, my intention is to get it repaired and fixed up the way I want it.  From that point if I want to sell it or keep it the choice is mine.  See, I set myself on this course and the end result is still the same.  Even though they are mad and think I have wasted the money I have.  The fact of the matter is I made the choice now, I have to live with it.  From my point of view when you are handed lemons, make lemon aide, further I refuse to look at this as a negative, I find it easier to deal with the turmoils in my life when I can find the positive in the events that have taken place.

I wish everyone could do that and not dwell on the "I told you so's" and "why don't you listen" and "I was right and you were wrong" because frankly that just causes hard feelings and doesn't really accomplish anything.  As with all things in my life I will get over it and I have learned something along the way.  I find that humans learn better by failing and getting hurt than by not trying at all.  Pain gives us the impetus to keep from making the same mistake twice, and trust me I now know what I am doing and will be on guard against it from happening again.  Plus, it is ridiculous to think that an accident is something that was ordained. It wasn't planned hence calling it an accident, and guess what I am still alive and the material possession can be fixed or replaced.  How could I have possibly have known that I was going to get hit by someone and that all of this would have transpired?  I couldn't and even if I had a crystal ball and divine guidance I probably only would have seen probable futures, because until the events actually unfold many different variables come into play.

Like I said I will not let this get me down or defeat me, and no matter how my parents treat me because of this situation I am still going to do what I think is best. I keep in mind that everyone makes mistakes and my favorite analogy springs to mind "Shit Happens".  It is time to keep my head up and keep moving forward,  because as my best friend would say "So What, Who Cares, Get over it!"

For some other good news, I spent the day in Orlando yesterday with the VA.  Met with the infectious disease doctor, and my HIV viral load is back to undetectable and my CD4 count is 298 and climbing.  Further, there have been no complications to the Hep C, and it looks like the treatment is going to eradicate the disease from my body totally without permanent damage.  In other words, even though my surgery didn't go quite as expected, my body has begun fighting for itself and is doing a great job of putting everything in check.  They have also down graded my renal disease from stage 4 to stage 2 and it is steadily improving, there is only going to be a slight impairment.  My damaged kidney has somehow found new life and is responding well to drinking of water and the new medications I have been given.  Maybe by September they will have fixed the kidneys sufficiently to say that the renal disease is in remission.

Now keep in mind that all of this is being accomplished because so many people out there are praying for my recovery, and I know that God is answering those prayers, and I am thankful beyond all understanding for that.  When I came to Florida, I had come home to die, and now it looks like things are finally starting to turn around and I will be granted more time.  I know I can't hope for 10 more years, but 3 to 5 sounds good too me.

Anyhow, sorry I haven't been writing as much, just been in a lot of pain and under the influence of some pretty hefty drugs.  I do plan on getting back to working on my blog daily starting tomorrow.  I hope you all will keep on reading.  You never know what you are going to find here.  I live a very exciting life and I can promise you my days are far from boring.

As always my hopes and dreams are with you.

Uncle B