No take backs

What's done is done and I cannot change the facts.  All I can do is face the results of my decisions and take responsibility for my actions.  For several years I was an advocate and public speaker, volunteer and committee member of the PCHAP in Volusia county.  I worked closely with a gentleman named Jeff Allen and he introduced me in to the world of advocacy and education.  It is with a heavy heart that I am writing this tonight because on July 28th in a tragic accident Jeff lost his life and left behind his life partner and best friend Jim Geary.  It is to my everlasting shame that I wasn't there for Jim or the other members of the Positive Champions Speakers Bureau through the loss of their leader and mentor Jeff.

In 2014 my life started to fall apart at the seems my lover Kerry Rutherford Jr. left me and went back to Atlanta, and from there I started on the downward spiral.  What transpired in my life was not triggered by the my loss of my friend and partner alone,  but I made it worse by my turning back to drugs and dependence on them to get me through the day.  I was in and out of the hospital from 2014 to 2017 with chronic renal failure, Hep C and Renal Carcinoma and esophagus cancer.  Financial issues and homelessness became a constant struggle for me and I soon lost the ability to volunteer and attend the duties that I had signed up for.

Jeff was there for me during these times, would come see me and talk to me whenever I picked up the phone and called him.  Jeff, understood me and accepted me for the person I was with all of my flaws and all because he suffered from similar addictions and knew the battle that I was facing.  I never saw sympathy or ridicule in his eyes only love, compassion and understanding.  He always had a kind word for me and a smile and told me that I was welcome back when I got my life turned around.  Unfortunately, my turning around of my life took too long and I have lost my friend and champion when he passed away. 

I have finally gotten through my own recovery and I am healthy again, I won my battle with cancer and hep C and I have overcome the addiction issues that were holding me back.  I wish my friend Jeff could have lived to see my victory.  He was and is an inspiration to me and his story has helped me deal with my own issues and move forward with my life.  I am so glad that I met him when I did and he helped me in so many ways.  He was the one who encouraged me to write and helped me get myself together a few times over the past 7 years or so.    It is my hope that I will be able to leave my imprint on this world in a loving manner that he did.  I may not be the advocate or champion that he was, and I may not have made as many contributions to the HIV/AIDS community as he has done.  But he encouraged me to write and to help others through my writing and I have continued to do that despite my struggles.

I can only hope that my life will be an inspiration and testimony like his was.  He was a shining beacon of light and hope that drew others together to champion a cause. He was relentless and once started something fought for victory and would accept nothing less. 

I cannot take back my actions and I have no way to change what has come to pass already, all I have the ability to do is continue forward and make positive changes in my life and help as many people as I can by following his example.  When I see a need I need to address it in the appropriate manner and strive to make a permanent change in our world.  Equality, fear and persecution are still things that we as a community are still fighting for and against today.  Jeff had a huge heart and a loud voice that was heard around the world and throughout our community.  I can only hope and pray that my voice will carry like his did. 

As I stated earlier there are no take backs but there are areas for which improvement can be made and I would like to dedicate myself in the memory of my friend Jeff Allen to always fight for the underdog, advocate for greater equality and better funding and healthcare, housing and the needs of the HIV/AIDS community.

I am going to miss my friend more then ever.  But I hope that I can do some good and effect positive change in this world.

As always my hopes and dreams are with you, Jeff,  I hope that you are Mary are looking down and can see that you both impact my life in different ways, but have been the driving force behind many of my actions.

I am going to miss you my friends and I will see you soon.

Bryan

Age is an issue

Facebook is a great way for people to keep in touch, track down people that have been absent from their lives for years.  But it is also a way for us to keep up to date on things that are happening to people we care about and what they are facing. I am one who hesitates to engage in conflict, but I am not the type of person who shies away from it when it comes my way.  The past several days I have been sitting at home and I have been thinking, reminiscing about my past, reflecting on what I have been through and planning for what I am am facing.  When a friend of mine shared pictures of himself and a simple statement about age, I saw it and thought about what was written and the pictures that were posted.  Then I started reading the comments and what I found troubled me a bit, because I knew exactly what the others were saying, I have felt the way that they are, were feeling. And in my youth I actually participated in the very practice that I am about to write about.

I like to think of myself as a pioneer, a person who puts themselves out there in the forefront and helps blaze a trail for others to follow.  How could I know that simple actions that I had in my youth would impact the lives of others so deeply.  Only now in retrospect can I see that many of the things that I did in my youth have had a resounding effect on others, and that I was one of the people that help inspire and bring about change throughout the LGBTQ community. Yet I am one of the people in this world that is causing a problem and a break in our community.  Though today my ideas are a little different then they were years ago, I still find that I am an ageist.  This is troubling to me because I have so many friends that are my own age and I care about them, but only once in my entire life did I date someone the same age or older than myself. 

Like many in the community I believed that it was my preference to date younger people, but in a sense it was a blinder that I was wearing, I was looking at the outside person and not the package as a whole.  I was one of those high maintenance queens that searched for perfection and could pinpoint ones flaws and faults within minutes of meeting them.  I was shallow and vapid though I thought that my opinions and thoughts mattered.  But a hard life lesson was soon to come my way.  It first struck me at the age of 24 and literally robbed me of my 20's and 30's and scared me mentally and physically for life.  It left me an outcast in the community that I helped mold and create, and today I stay on the fringes of it.  I still consider myself part of the gay community, but I refrain from many of the things that I should still be involved in.  Because somewhere inside of me is the deep abiding fear that I am not perfect and therefore not worthy of love and acceptance into the community that I love and dedicated my life to building.

When I got sick with cancer and then ended up with not 1 but 2 colostomy bags, I turned away ashamed of my body and my broken form.  I secluded myself and sought refuge in drugs and other means to escape the fear of persecution.  Yet, repeatedly human nature has surprised me and I have found friends and sometimes companions along the way.  I have more scares than most, have had more surgeries than most, and I still have the fear that I can't be accepted for me because somewhere in my mind I have decided that people in the gay community are discriminatory against those that don't fit the ideal image of perfection.  Though I have found and joined groups that accepted me limitation, scars and illness and all.  I have found friends when I never thought I would and I have found a sort of peace within myself that I never thought I would because of my battered and broken body.  I have even found people who don't see me as damaged but as bright and shiny star of hope and comfort.  These are things that I would never have thought possible.

But as I was reading my friends post and the comments I realized that there is still a problem with age in the community, that the young still look at those of us with age and have prejudice.  I have come to the realization that I don't look at people the way that I used to, yes I still look at physical appearance, but that is not the person. I have had the unfortunate experience to love a beautiful looking man who was very ugly and dark inside and that made me realize the truth in the adage "you can't judge a book by it's cover".  Yet, my own insecurities continue to hold me in a pattern. I am afraid to put myself out there again and hope that someone can look past the body and see the person on the inside.  I sit in the house day after day and I watching TV, reading and avoiding the truth.  I am lonely, and afraid, these are my truths. Yet, I continue on and do what is expected of me.

Yet, something that my friends wrote stirred in me a desire to once again get out there and make a change in my life.  In doing so I hope that I can inspire others to do the same.  Life for the gay population is different now then when I was growing up.  I have learned that the superficial is not the way to look at another person. Maybe there are others out there that have begun to see that too.  Maybe it is only something that happens with age and wisdom, but I hope not.  I think that if I were to step out of my comfort zone and do something about my situation I might others doing the same.  I am beginning to understand my limitations, accept my physical appearance, and instead of hiding the person that I am.  I am letting the world see the person that I have become. I live my life by example and have been doing so a long time. I write about my life here in the blog, and I talk about my differences to everyone I meet.  My story is one of survival, it is one of hope, and it is one of comfort.  I have lived with 6 terminal illnesses for a long time now and I have done so with courage, and against overwhelming odds. I do it with a smile and a positive attitude that everyone notices.  So, if I can change and look at my mistakes with grace, knowing that I cannot change what I have been and done in the past, I certainly can make adjustments and do something about it in my future.

So I have taken to writing this piece about age.  I have never let it define me or limit my actions. I have taken care of the things that I must and have been there when others have needed me. But that is not all to my life.  When replying to my friends post, I was reminded of the things that I have done in my past, the accomplishments that I have made, and the triumphs, as well as the defeats.  But in all of this I have been a motivator and an instigator for change.  I have been as I put it a pioneer and I have done things that at the time seemed inconsequential, yet had far ranging affects on my peers and those that have come after me.  I may not have been able to rescue everyone, I haven't been able to save the world, or help as many people as I had wanted too.  But in my life there have been thousands of lives that I have touched and I have helped and they are out there. They know what I have done for them and I am not asking for any praise or thanks.  I am looking to those people to help me spread the word that age is a number, physical beauty is a thing that fades with time, and that we must look at the persons heart, soul and attitude to find the things that we are missing in our own lives.  A friend found a sense of belonging and community in his church, he found acceptance and he also found a feeling of wholeness and completion the likes that I have never really felt other than in fleeting times.

Yes, beauty is in the eye of the beholder, but there are things that you need to think about before you wrinkle up your nose at the affections and attentions another casts your way.  Don't let their age be a detractor, because with age comes experience, wisdom and understanding and with those things comes the added bonus of compassion.  I don't know how to change the world or change how the gay community looks at one another, but I can tell you that without my friends of age I wouldn't have made it as far as I have in life.  I wouldn't have been able to face the uncertain times that I have come through or had the strength to persevere when all about me seemed bleak.  I have come through some dark times and very rough medical situations and I have become a stronger person because of them and their advice.  I never gave the appropriate thanks to those that came before me.  The ones that fought for gay rights, however, I have performed in the play Stonewall and celebrated those lives.  It is unfortunate that many of the younger generation know very little to nothing of the days of the 60's and 70's that gave rise to our "Gay Movement" of the 80's and the "Equality Movement" of the 90's and 2000's.  What I can honestly say is that I am grateful to have been a part of those times, I wouldn't change my involvement and actions in anyway. 

So here I sit and I want to begin a new movement, be a voice for compassion and understanding and hopefully change the way the younger generation thinks and feels about us the old guys.  I am tired of being a Yuck or Gross.  I am still an attractive person and I have more to offer today more now than ever.  I am stronger and wiser.  Age hasn't made me less fun, I still can keep up with the 20 years that still are in my life.  But I am not looking for love there anymore either.  I have tried repeatedly to find it in the younger generation and have been left wanting and disappointed.  I am tired of feeling like I am being used and unappreciated.  I am comfortable with who I have become and I have surprised myself that there are those out there that find me attractive and have shown some interest in getting to know me.  Honestly, with my medical situation the way it is I am not really hoping for any new developments, but I am learning that my time isn't always the right time.  I have faith in God and His plan for my life, and if He decides to put a new face in my equations then who am I to argue or find fault.  At least I know that I am not alone right now, I have friends, and people that care about me, and I am not far from my family if something happens that I should need them. 

Let me remind those out there that old is not ugly, old is not boring, old isn't anything but a state of mind.  I am one that can talk about this, I am almost 50 now, and I still do things that I did when I was in my late 20's and things I should have done in my 30's but because I had cancer and missed almost all of those years, it took me some catching up to do.  I have a unique perspective about things because I experienced a lot of them later in life than most.  I found knowledge and wisdom in older friends when I was going through some really tough medical issues.  Those friendships have enabled me to survive and adapt.  It is the job of us that lived through the 80's till now to enlighten those that are younger and teach them about the past and the hardships that we and those before us had to endure.  Gay pride is not a marketing theme, though lately it seems to have become commercialized, no it is a time to celebrate our heritage, our loss, and to remember those that were taken from us early by AIDs.  It is also a time to celebrate the victories that were won and the sacrifices that were made to get us to the place we are at today.  Not only do us of age have things that we can teach the younger generation, we can show them understanding and compassion, offer guidance, and wisdom and help them through the issues that they are facing.  Never forgetting that we still have a long way to go yet in the battle for equality and acceptance.  We have the moral obligation to unveil the myths and misconceptions that surround HIV and AIDs we need to honor the memories of the friends and family that we lost during the height of the epidemic. Plus, we need to remind the world at large that AIDs is still with us we are still loosing brothers and sisters still today to this disease.  Though it isn't the media focus that it once was we would be neglect in thinking that we have vanquished and won.  The war is still being fought, and many are still being persecuted because they have been diagnosed. 

Many of us are tired we have battled long and hard, created a better world for those that come after us, but we are not able to rest just yet, there is much left to be done.  I am reminded every day that I wake up that I am still here way longer than any doctor ever predicted I would be.  I have overcome some incredible odds and I am still fighting today.  We can't let the younger generations forget all that has come before, the heritage, the community, the bonding that we felt and developed in the 80's in the fear of the unknown disease.  Community centers were born, research centers organized and help organizations established that have become the norm.  We need to remind the young that many thousands gave their lives, tears, and suffering for these mediocre changes that we have finally received.  Yes today is a better place, there is a bit more acceptance in the world, but there is much hatred and bigotry still out there.  Our community still suffers from many such forms, and maybe there needs to be a movement inside our own movement that tries to foster change.  Ageism is a form of intolerance, and discrimination that we cannot and shouldn't allow to fester in our community.  We need to look beyond the sexual revolution and think towards a more unifying and holistic love of ourselves.  To look to our elders and still love them and accept them, to show respect and compassion.  Being gay isn't defined by sexual attraction alone, it is being comfortable with those that you are more drawn towards, who you can associate and understand better. We are different yes because of our desire to be loved and we enjoy sex with the same sex, but it goes beyond that I think or at least it does for me.  I feel more comfortable with women as friends, but I feel a kinship and bond with males that I cannot quite describe. 

The human heart has the capacity to love and bond to many different things, and people.  We need to understand ourselves better, look at our motivations, and think about what where we truly feel the most comfortable.  Age is a number, it doesn't define us.  It may limit us physically, but emotionally and mentally we are still those same 20 somethings that we once were in a much more experienced and worn package.  Most of us wear our age well and are proud to do so.  Every year that I am here I am thankful for.  I have worked hard to get here and I plan on hanging around a little longer, if I have to do it alone then so be it.  But, I don't think so there is someone out there looking for the inner me.  When they finally stop looking at the outer me and see the inside they will find what they are looking for. Until then I will keep trying to raise the awareness that age is not something to be afraid of, it isn't something ugly, it is a gift, it is a treasure.  Hopefully others will begin to see that we are of value still and we have things been through situations that can help them, we have lessons we can teach and we still have our voice to make change happen.

So from the age of 49 looking back, I remember the days when I was afraid of being 30, then 40, and of course 50.  But look here I am I have made it this far, have learned much, endured more, and I have something that I can help the world to understand and that is the human spirit.  I know how to give hope, how to inspire through living and comfort just by being there.  Life is a journey that doesn't end.  I can tell you that I am still going through some things even now, but in the end it will have made me that much stronger a person and will give me another lesson that I can teach another person.

So don't wrinkle up your nose at the attentions of those older men that admire you, take it as a compliment, get to know them, maybe just maybe you might find what you have been searching for and it was right in front of you the entire time and you just couldn't see it because of the blinders you have been wearing.  Age is beauty, a gift and something to be cherished.

As always my hopes and dreams are with you. Let me encourage you to live your life full with laughter, love and light.

Uncle B

Even Today

Today I met with UF Health CARES only to find out that my paperwork from Daytona was not conpletely faxed across. I couldn't prove that I ever had a registered viral load. Too the doctor that reviewed the portion of the test that came across the fax it looks like I have always been undetectable.  This one mistake made my entire visit there non-productive. I had to have my blood drawn to get a new proof of positiveness letter and reschedule my appointment for 2 weeks away. This is rather disappointing because that means it will be another two weeks before I am finally enrolled in Ryan White services.  I can tell you that the visit wasn't entirely a waste. I met Brandon during my visit, a highly intelligent young man who besides being heterosexual, he was also born with HIV.

Though we didn't have as much time I would have liked. I got to discuss a bit of his story as I told him my own.  One thing that I was capable of doing was answering many of the questions that he had.  I am amazed that even today persons with HIV can still feel prejudice and stigma. Which can trigger deep depression and feelings of fear, persecution, alienation. All of which can instill a deep and abiding sense of worthlessness and a lack of self-worth.  Which according to Brandon has often made him feel as if he were a burden to others and unlovable. 

His most relevant question for me was how do I stay positive and grounded? Luckily for him I was asked almost the same question not an hour before by the social worker for my primary care team at the VA. My answer to their question was simply that first I don't dwell on my illness and second that I use my blog as a sort of catharsis.  That's right my coping mechanism is writing in my blog as well as telling to others my story every chance I can.

Like Brandon, I still deal with stigma and fear. I also know from our talk today that fear is a constant companion. Like me, we both fear how others will react to our disclosure of our illness. How others will receive us.  The fear that others will reject us and thus diminish our hopes for a relationship. There are now treatments that a mixed couple (one poz and the other not). This maybe an option for some. But what if your potential partner isn't willing or not educated about it.  However you decide to handle this dilemma is up to you.

But there is a whole lot more to Brandon than meets the eye. He feels compelled to help others, he has dedicated himself to the expansion of HIV research. In his own words he felt like he had a debt to pay becausr of everything he went through and his still being alive. With that debt in mind he dedicated himself in his sisters memory to constantly trying make a difference and help those around him.

Whether we want to accept it or not fear, misconception , stigma and prejudice still persist today. There are groups like the positive champions speakers bureau that work hard to stem these injustices and seek to educate and elighten the community of the truth of this disease. Back in the 1980's and the 1990's HIV/AIDS was headline news. There were marches, charity drives, concerts and an outpouring of information. Now,  there is barely mention of AIDS Related death's and one rarely hears of the infection rates. Yet, one thing that I have learned is that in some of the nations largest cities. The majority of people being diagnosed, are dianosed with full blown AIDS versus being diagnosed with HIV.

As I explained to Brandon that my telling of my story has a two fold reward for me.  It gives me the opportunity to talk to others one on one about what I went through and how it has affected me both positively and negatively. The second is that I am inspiring hope in others who might have given up on themselves and society in general.

One of the things about me is that I truly enjoy talking to people and it makes me feel like I am helping others and gives me a sense that I am giving something back to the community.

So if you are looking for a way to cope with your feelings of anxiety and depression or are looking for ways to deep or cope with stereotypes and stigma. Then maybe you should take up writing and talking to others about your story. I honestly think that you will find that your depression lessens and your self-worth will increase.

You are not doing this for yourself alone yet you will reap the most benefit from doing these things.

As always my hopes and prayers are with you. Love deeply, laugh often and live much.

Uncle B

Bigger than Life

Today has been all about a very dear friend of mine that I will never forget.  Someone that never had much but was happy and content with everything she had.  She wasn't self-conscious, vain, or envious. She was brutally honest, courageous, and magnanimous.  Was never to busy to talk, had great shoulders to cry on, and a smile that lit up the room.  She always saw the good in people, never found fault, never stayed down for long and always had a kind smile, warm heart for anyone that came into her life.  She was a very dynamic force and one that couldn't be contained in one body.  Maybe that is the reason why God took her so young!

Her memorial service was today and so many people got up and spoke her praises.  She had a personality that was larger than life.  She wanted to change the world and strove to do so with her volunteering with the Positive Champions Speakers Bureau.  All she ever wanted was to change one persons life, to reach one person with her story. But she impacted each and everyone of us that knew her. Mary was the embodiment of warmth, sun, caring, love and sharing.

She traveled all over telling her story over and over again to groups and individuals alike. She didn't care what others thought, she only cared about what she was fighting for.  She dreamed of a world where there was no such thing as HIV or AIDS and fought towards that end.  She would make you laugh, cry and even shake your head in disbelieve because she was bold and courageous.  Whatever she felt she said.

Souls are attracted by vibration and not by looks, and Mary taught me that.  It didn't matter to her what you looked like, or how you dressed we were all the same to her.  When two souls resonate together they recognize each other and form a bond of friendship and love.  I still remember how she flirted with everyone and didn't care what they thought about it.  She lived in the moment and nothing could take that love of life away from her.

I was fortunate to live close to Mary.  I got to see her a lot, we also talked a lot on the phone and she helped me through some very difficult times in my life.  She had a light inside of her that drew people close, her personality was such that once you were in her orbit you were her friend.  That light inside of her could drive away the darkness and for a brief moment when she was around you knew that anything was possible.

Yet, in the end God chose to take her from this earth and bring her home.  I have mixed emotions about that.  See, I depended on her guidance and her words of encouragement when my life got into some tough spots.  I don't have anyone like that anymore, she was it.  I am going to miss our talks and how she boosted me up and never tore me down.

So what would I like to say to Mary?  Well, I would tell her thanks for taking the time to teach me how to embrace my own Awesomeness and reminding me that everything we do, is building us towards something else.  She saw ahead of her that there were endless possibilities and  opportunities to share her testimony and her story.  When I say that Mary was larger than life, I mean exactly what I have said. She was bigger than life, she radiated warmth and acceptance with the greatest of ease and she gave great big bear hugs.  She wasn't afraid to touch you, nor tell you about yourself if you were in the wrong.  She lived in the moment and by doing so she achieved what most of us envied.  An openness to talk, a freedom to express exactly what she needed to when she needed too. She was comfortable with herself, her situation, her looks, and everything that made her up.  I admired her honest, conviction and courage and I hope that just a little of each of those has rubbed off on me.

She gave hope where there was fear, she gave love unconditionally and expected nothing in return.  Though she may be gone, I don't think it will ever be possible to forget her. She had a great impact on so many of our lives.  For that alone I know she will live on forever in each and everyone of us.

Thank you for keeping her family and friends in your prayers.  What more can I say, Mary saw a world in which change was possible and she struggled to help bring it about.  I can't tell you how grateful I am that she chose me to be a part of her family.  She helped and loved beyond any situation.  She was so full of light and life that it was nearly blinding to look at her at times.  She knew what she wanted and set about trying to get it. A spirit of a lion and the heart of a lamb.

I am going to miss you so much, but I know now that she is with me everywhere and I remember the words she told me when my partner left me and did all those things to hurt me. "You deserve better than that Bryan, you deserve to be happy".  Now, I know that the secret to happiness is found only with ourselves and no where else.  Thank you for reminding me of that.  I am jealous or even envious of her, see it was so easy for her to talk, to get her story out. She wasn't afraid, because there is no reason to fear the truth.  Again, thank you for the lesson Mary!

Oh yes, I have a voice and I write in that voice, but speaking I tremble on the inside.  She told me over and over again, to just be yourself and it will all work out. Guess what she was right and I am still here today.  She didn't have transportation much of the time I knew her, but it didn't limit her much. She still made it to Group and Positive Champions meetings.  I don't think I have ever seen her discouraged for more than a minute. She never gave up on anyone!  She always saw their goodness and she brought that out in all of those around her.

When I say bigger than life that was Mary. Yes it was and I think that she burned so brightly to everyone around her that her poor body just couldn't handle all of it.  When I tell you that she loved, she did!  She loved Gay Men! She Loved Children! She Loved to talk! She loved to hug everyone! So today was Mary's day and will remain for me till tomorrow. Today was a day that was sad, somber, yet funny and exciting as well.  I have a heavy heart because of the loss of my friend but a big ole smile on my face as I sit here and remember.

You maybe wondering why I am telling you all about my friend and her life and what she meant to me.  So, let me tell you that there are lesson here that you can learn from. Something each and everyone of us can use in our daily lives.  You may not believe me, and I am not sure that I do yet myself, but I think as all of us gathered today to remember our dear friend something magical and wonderful happened.  We were reminded that life is fleeting, and that we need to cherish those around us.  We need to surround ourselves with family of our own choosing, be inclusive of everyone, fear nothing, accept everything, live in the moment, cherish the life you have and what you got.  Take back your power, live for yourself and throw your hands and heads up in the air, don't care what others think of you. Just do you and everything else will fall in place.

What can you learn from Mary?  Everything there is to know about life and living.  Learn something new everyday, share it with those you love and those you don't know. Live in the moment, experience everything with baby fresh eyes, those eyes of wonder that still see the magic in the world.  Keep those you resonate with close to you, because like souls attract like souls.  Stay positive, focused and tell your story to anyone who will listen.  Everyone has a story to tell and you never know where a casual conversation might lead you.  Seek the goodness in others, freely give kindness to those you love and give love to those that love you.  Speak your mind and your heart will follow, don't filter out anything.  Someone described Mary today as having the gift of Transparency and I think that is a place where we should all strive to be.  You never had to guess what Mary was thinking or feeling you could see it and feel it.  That is what is meant by being transparent.  We are all given a voice and we must learn how to use it. Your story is unique just as was mine and Mary's but there might be someone out there that needs to hear it. You may save someones life, or your words might heal their hurting soul.  Your story could change 1 persons life and like Mary said "If I can reach or help or change one person than I have accomplished my task".  Mary changed a lot of lives, so many hearts, and will live on with each of us who knew her.

But, now my friends as you read what I am writing about  her, she will also live in you.  You may not have met her, you may never have seen her. But you know her spirit, her heart, and the magical way she changed the lives of each and everyone of us that came in contact with her.  Please take away from this entry if nothing else, one person can inspire change in the world. Yes, you can. All it takes is you to find your voice, tell your story, and live your life like Mary lived hers.  Trust me.

As always my hopes and dreams are with you!

Uncle B

Expect the Unexpected...

As most of you are aware the first few days of December have been extremely busy for me. We had rehearsal for the play “Faces of AIDS” on Thursday November 29^th and the actual live performance was on December 1^st. Now keep in mind that December 1^st is World's AIDS Day and it is also my birthday. This year I turned 44, which is surprising and amazing in itself since no one ever thought I was going to make it to be this old. But you know God has different ideas and plans for our lives and if our work on earth isn't finished then he just might not bring you home. Actually if you want to know that truth of the matter my life started picking up speed right before Thanksgiving and hasn't actually slowed down yet. But as I was saying since I was co-author of the play and a member of the Positive Champions Speakers Bureau and this was a benefit to raise funds for our organization to help us meet the grant requirements, it was my duty to help set up the space and get us ready for the performance. However since it was my birthday I was expected to make an appearance at my dad's place to have a little celebration before the rehearsal and set up, so that is just what I did and it worked out well, I was able to get to the Museum of Arts and Sciences early and help the cast get all set up and organized. Now when I tell you that the performance was awesome, a good time was had by all, I am not selling us short. For the amount of time we had to rehearse and get this under our belts we did a fabulous job. We had a great turn out and when we opened it up to questions and answers the audience participation was excellent. I want to again tell the members of the Positive Champions Speakers Bureau once again, Good Job, Well Done and I am so proud of you.

But that was just the beginning of the adventure that was going to start on December 1^st, after the Faces of AIDS Benefit, most of us went on to the Streamline Hotel for another fund-raising event that was to benefit Outreach Community Care Network an AIDS Service Organization of which I am a client of. They are the organization that helps administer the Ryan White Title funding for Volusia and Flagler counties. They are almost like a pride center, they offer medical services, case management, and a whole host of other services. But I digress as usual here. The benefit at the Streamline Hotel was in Tribute and Remembrance of Billie Boots. Who was a pioneer and champion in raising money for HIV and AIDS from the very beginning. I am proud to say that I knew Billie and the huge heart that he/she had for those infected and affected by HIV. For those of you that haven't figured it out Billie was a female impersonator or as some might call her a Drag Queen, no matter what your choice of titles for Billie, I will just say this an Entertainer that really loved Entertaining. Now back in the day when I first met Billie I was a struggling and aspiring female entertainer myself and I had a stage name of Idora Dixx and for years I traveled the drag circuit with folks like Billie Boots, Gilda Golden, Rusty Fawcett, Carmella Marcella Garcia, Paige King, Daniel Hunter and the list goes on. It was at this fundraiser at the Streamline that I ran into my past and reconnected with some great friends and entertainers that I had lost touch with over the years. It was a fabulous night and a great time supporting a worthy cause.

It was also that night that my tooth broke, so Monday I spent the day trying to get in to see a dentist to get it fixed, and then start packing, because my friend Judy decided to call me Sunday December 2^nd and pay for my plane ticket out to L.A. Then Tuesday came and I had an appointment with the dentist in Orlando so my friend Mary Bennefield and I jumped in the car and drove to Orlando to see the dentist only to be sent away because I had an infection and my insurance would only cover extracting the tooth. Wednesday my friend had neuro-surgery and I promised to take Mary grocery shopping and run errands. Thursday I had to clean house, do laundry, meet with the Vocational Rehabilitation people and so many other things. Because I was leaving on my trip to California on Friday. Now normally I am not so manic, but I really wanted to get the house clean and everything put up so that when I came home from this trip everything would be done and I wouldn't have to do anything but come home and relax. Because in my experience I usually need a vacation from the vacation because I am one of those people that is always on the go.

Now the whole reason why I am telling you all of this stuff is to demonstrate that we need to always expect the unexpected and be amazed and surprised when miracles happen in our lives. Because let me tell you a bit more about this past week, the things that just jumped out at me and happened. These are not all bad things, most of them have been pleasant revelations and I want to demonstrate them to you. See the way things were happening, me being sick with pneumonia right after Thanksgiving, the play rehearsals, then the benefits, I just had no time to think let alone do anything but react. Because of that I was open to the unexpected and great things happened. I think in a way because I wasn't feeling well, and so much was happening around me, my mind just disconnected and I was open to receiving the unexpected. Now what am I talking about by the unexpected? Well let me tell you, the unexpected are events that take place around you and include you that you are unprepared for totally. That being said I will use the play event as an example, even though I had helped write the script for the play and helped with stage managing and blocking the cast, I wasn't actually prepared mentally for the performance. I had just been out of the hospital for 7 days and my mind couldn't remember my lines to save my life. But when it came down too it and I was on the stage and the action was happening around me, a peace settled over me, it almost seemed like time slowed down, and the action around me faded just a little, and the words poured out of my mind and mouth like I knew what they were supposed to be. That my friends is the unexpected. Moving on, I was exhausted and my feet hurt from being on them all day, I had no intention of going to the Streamline that night, but I had never been there before and everyone was talking about going and somehow I just agreed and went. Bam! The unexpected happened, not only did I have a fantastic time and got to hangout with my new friends from the Speakers Bureau, I also ran into some very old and dear friends from my past. I actually reconnected with a few, exchanged numbers and have made plans with them for after my trip to California. So see, the unexpected just jumped out at me and happened. The rest of the week was just happening so fast and everything was a blur, I didn't think I would even have time to catch my breath let alone get everything done that I wanted to get done before I left, but as I shut the door on my apartment this morning I smiled on with contentment everything was completed and done before my father ever showed up to take me to the airport.

Here is another example of expect the unexpected, and it wasn't necessarily a good thing either, see the unexpected can be either good or bad depending on the situation and the circumstances that surround it. I got up this morning had a few last minute things to pack, which I had put out in the living room by the suitcase so I would see them when I got up, I got all of that done with remarkable precision, even had the ticket laying on the coffee table in a place where I would see it and pick it up. Dad got there and I scooted around to get him the stuff I wanted him to take home because I thought it might go bad while I was gone. As we left out I gave the keys to my neighbor so she could collect my mail for me and stuff, and had dad take me to the gas station to get an electronic cigarette so I could have something to smoke on while I was in the airport and on the plane. Once I paid for it and got back in the car I looked around and couldn't find my itinerary or e-tickets anywhere. I couldn't find them in the car, we went back to the gas station and they weren't there, and then we went back to my apartment and I looked around and couldn't find them anywhere. All my careful planning and making sure I had everything went right out the door. I had made dad come over early so I could be early to the airport. Got there just a little before noon and guess what the flight didn't leave until 3:55, it was supposed to leave at 1:52. Then my connecting flight in Charlotte was also delayed. Again, it is me, I should have expected the unexpected!

Honestly no matter how hard I try to plan something it always falls apart or turns out a colossal mess, however if I do things spontaneously and by the seat of my pants it usually turns out spectacular. I have been told that it is a part of my nature as dictated by my zodiac sign which is Sagittarius. I am not sure how true that is but I know that things seem to flow better and have better results when I just wing it as they say. So, what is it that I am trying to tell you in this article? I am telling you that you have to be open and flexible. Life rarely goes the way we want or plan, you have to accept the inevitable and just go with the flow, the unexpected isn't always negative, it can have some positive benefits as well just like in my examples. The truth is life just happens and no matter how carefully you plan, sculpt and try to make things happen, it might just go awry for no apparent reasons. Realizing this will cut down on the stress and disappointment you feel when it happens to you. I have told you before that life is messy, full of twisted and colorful characters, chance events and encounters, adventures and all sorts of things that will get you totally filthy dirty if you let it. Enjoy it, go out there and get crazy wild and totally dirty, but have fun doing it. Don't let your temper flair because your vacations plans got screwed up, go with the flow, enjoy yourself. I am sure that if you just let it go, go with the flow and enjoy yourself no matter what you are going to have the time of your life.

Life is crazy, hectic, and doesn't conform nicely or neatly into rigid roles, rules and plans, so you have to expect that you are going to be thrown a curve-ball every now and then, that your plans are never going to happen as you expect them to and that you have to be flexible and enthusiastic enough to just go with it and enjoy it. This trip started off pretty good and I am rolling with the flow here, and I am happy that I did, I haven't gotten upset or stressed out at all and this is going to be the best trip ever, wanna know why? Cuz, I found out that my boyfriend is coming to meet me tomorrow which is totally unexpected, but totally welcome. Again expect the unexpected and be open to change. It is all about acceptance and adaptability.

As always my hopes and dreams are with you,

Uncle B

Saturday December 1st Dual Meaning for me!

You know when I was young December 1st only had one meaning for me, but as I got older and the AIDS pandemic was realized that day was forever changed for me.  Today I am one out of countless people that deal with living with HIV the precursor to AIDS.  Now, a lot has changes since the 80's with the hysteria and rumors running rampant through the country.  The life expectancy of a newly infected person is now close to 30 years with the current drugs that are on the market.  However, that doesn't mean that there still aren't deaths and complications that can arise that can shorten someone's lifespan.  As the title suggest I have now two reasons to celebrate on December 1st.  I guess the first and foremost one would be that it is my birthday, and second is the celebration of Worlds AIDS Day.

This year I am celebrating my 44th birthday, I am blessed and lucky to have such a long life.  Though I have health issues and concerns, I have still outlived some of my closest and dearest friends and loved ones.  See, in the early years of HIV/AIDS there wasn't much knowledge about the disease, how it was spread, and what could be done to treat it.  Many of my friends died a very painful and agonizing death, others became detached because of dementia and other factors.  It was hard for me watching so many of the people I love die, even worse was the fact that a longtime partner didn't even recognize me or know me the day that he died. We had been together for years, I was the lucky one, I didn't contract the disease right away.  As a matter of fact when he died in 95, I was finishing up my first battle with colon cancer and seemed to be none the worse for wear.

I have to be honest I was lost for quite awhile after his death, and so I decided to go back to school and that is when I first discovered my love for writing.  Here we are 20 years later and I am still writing and that is a blessing.  But nothing could take away the pain nor the hole that was left in my life by his passing. However, in 1997 I met an extraordinary person who moved me away from Orlando and my family and took me to the  "Big City" of Atlanta.  Where I actually lived and worked till this year.  I have met some wonderful and beautiful people on my journey, and I have made some big mistakes.  It is also where I contracted the virus that I had so carefully avoided.  I am the type of person that learns everything I can about the diseases and illness I am faced with.  Through that knowledge it led me to a greater understanding of the people that are affected by the disease as well as those infected by it.  See it is important to remember that a person doesn't actually have to be infected by the disease for it to affect them in some way.  None of us are immune to feeling the effects of a friend or loved one becoming infected.  Of course the circumstances and the situations are different still between the affected and the infected.

When I moved to Volusia County in February of 2012 I didn't know what I was going to find.  I came here blind only knowing my father.  Didn't even know the person he was living with. So I was on my own.  No friends, only my dad, no car, no money.  But I came anyway, and I have to tell you that I am happy that I did.  Through my curiosity and wanting to keep up with my medical treatments for HIV, I contacted the Florida AIDS helpline and got some information on resources in my area. Within a matter of days I had set up appointments and began my journey.  My first case manager, was Donna Wood, a wonderful woman who like me cares about people and their welfare.  She took me under her wing and talked to me about several programs that she thought I might be interested in, and by the summer I had joined and became part of several groups that advocate and fight the stigmas, myths and misconceptions about HIV/AIDS.  She also encouraged me to continue my writing and telling my story to anyone and everyone that would listen, for that I am going to be ever grateful.  So this year when the Positive Champions Speakers Bureau talked about doing an event for raising money for our group during the Worlds AIDS Week celebration I quickly volunteered to help.

The group decided that we were going to do a dinner and a play for our fundraiser.  We met with other organizations and coordinated our efforts so that we could do the play and not interfere with anyone else's events.  It was held at the Daytona Beach Museum of Arts and Sciences.  It was a catered affair, with a wine and cheese reception before, a slide presentation during the meal and then our performance.  The turn out was spectacular, and I have to say that we all had a great time.  It was a learning time and a time for coming together.  We took a topic that is highly sensitive, we broke it down into real life examples, told our story, and we did it in such a way that it wasn't heavy or stale, and gave it a human face, and a little humor and it was met with a great response. I am proud to say that I was the co-author the play, and I believe that throughout the work you can see the upbeat and positive energy that was lovingly put into it.  For those of you who didn't get to attend you missed something spectacular and revealing.

But you know, it was after the play was done and everyone was leaving that I had a chance to talk to some of the wait staff and people that were behind the scenes, and you know what was amazing to me was how open and receptive these young people were to the message we were sending out.  Two of the young men that were on the Banquet line and passing through the tables collecting the dirty dishes were 17 years old, they saw and heard the play, and one of them told me that he had learned a lot about the disease that he didn't know from our play, and that we had taken a taboo subject and made it humorous and delivered it with a delicacy that was excellent.  That the facts and figures that were expressed were done in a way that made them memorable and helped him to feel more comfortable about being tested and finding out more about the disease.  Now trust me when I tell you that I was touched by this. Because our goal is to address the younger generation, educate them, help them to understand the stigmas, fears that surround the disease and finding out that you are positive.

The young man went on to say that he was impressed with me because of my response to when I was asked questions about my health and how I managed to stay so upbeat and positive with all that I am facing.  Honestly, it was him and his willingness to talk to me that impressed me.  See, I am living with it, I have been dealing with it for awhile and I have come through the stigmas, social fears, the pressure of when to disclose and when not too, so talking to others about my illness has become second nature to me.  But here was a young man wanting to know more about what he could do to help bring awareness to his peers and friends and that my friends made the whole evening worthwhile.  Yes it is true that we want an end to the disease, the persecution, and the segregation that we feel when we disclose, but we also want to reach these young people. Help them to understand that safe sex, and getting tested routinely is important.  We want them to realize that HIV/AIDS doesn't care if you are gay or straight, male or female, white or black, hispanic or asian, it doesn't care if you are rich or poor, it doesn't care at all! We are all targets for it.  We also want them to realize that there are cultural differences that will be barriers that they may have to overcome and that there are others out there just like them that are going through the same things, and that there are people who care and are willing to help them.  No one has to face this alone.

Now as I close this entry, I want you to think about this, HIV/AIDS can impact your life at anytime, through yourself or those around you.  You can't tell if someone is sick or infected just by looking at them.  Heck three out of five people today are infected and have no signs of illness or even know that hey are infected.  You just can't tell.  We each have a voice and we can do something about this, we have been too quiet for far too long, people are still dying out there, and HIV/AIDS hasn't gone away.  Talk to your friends and family about it.  Volunteer your time if you have some, educate yourself and learn more about how it is affecting your community. Become a light in the darkness and let others know you care.  Though World's AIDS Day is only celebrated once a year, I hope that you will take the initiative in your own life and make it a celebration every day like I do.

I also want to say thank you for all of you who came to the benefit, saw our play and enjoyed yourself. I am glad you came, I am happy that we were able to deliver not hard topic to discuss, but also shared with you a part of ourselves and our stories.  You made all our efforts worthwhile.  Thank you to the Positive Champions Speaker's Bureau for becoming my family, my friends, and letting me be a part of your group.  Thank you for the support you have shown me this entire year as I have been battling my own health issues, and most of all thank you with trusting me with your stories, so that the play could be written and acted out. Thank you for listening to my advice and suggestions when we were rehearsing, and for making this event such a wonderful experience for everyone.

I would also like to say that I am so very proud of you all, for putting yourselves out there and giving of yourselves daily to each other and the community.  Your efforts inspire me and make me happy to have found such a group of loving and supportive people.  I am already looking forward to the coming year and all the things that we can do to help improve our community and our group.

I love you all!

As always my hopes and dreams are with you,

Uncle B