There comes a point in everyone's life when they are scared

I have been afraid more times in my life than a normal person should be.  I have been facing death and uncertainty for many years, but never have I felt closer to death than this past month.  I went through chronic renal failure 5 times in less than 7 weeks and I had nothing holding me up.  People who I thought were my friends felt betrayed and abandoned by me and yet there was nothing I could do as my health continued spiraling out of control.  From the constant renal failures, I developed hypothermia and have been freezing cold ever since.  Once that started a severe blood infection developed in my heart that spread from my port in my shoulder.  Which blossomed into a full UTI which triggered seizures, low heart rate, and constant black outs.  For a month I remained in Intensive care and until today thought I would never see the outside world again. 

This morning my doctor informed me that I was finally cleared to move to out of intensive care and go to a recovery floor.  If progress continues as it has this weekend I will be able to leave Tuesday morning and for the first time in my life I am happy to say that I am relieved to be alive.  I was afraid that I wouldn't be there for my parents who are both going through their own series of health issues and as they have been my rock throughout the many years of my illness I would like to be able to return the favor to them.  As for those that I thought would always be my friends I am not sure exactly why there is such bad blood between us because I it really wasn't my decision to get seriously ill when I did or for how long as I was.

What my main fault is that I constantly want to believe the best in people.  To believe that they are honest and just and I take them at their word.  I should know better with some.  I have given them chance after chance and they still screw up.  They continue to beat on me, put me down and expect me to pull their ass out of the fire every single time they screw up.  People never tell you their full intentions and they always have other motivations that are eventually revealed.  I need to learn to harden myself against this misinformation and know that past behavior is a clear indicator of what the future may hold.  I have to stop putting everyone before myself and learn that saying NO and sticking too it is okay. 

My heart is heavy because even now as we speak many things have come to pass that have hindered my forward progress in both my physical and mental health.  The last bit was the fact that my ex who wanted to get married and swears that he loves me with his whole being and wants to do the right thing and go to rehab, and get married is just telling me what he think I want to hear because he doesn't want to go to prison. But, I have come too realize that even though he has told me these words it is only because he is in Jail and that is the sad truth.  He is not going to change and he is never going to love me the same way that I love him, and everything that I have done, I have done out of love and concern for his welfare.

If only he would be truthful and honest with me, tell me what is actually on his mind because here is the thing. I have lost everything repeatedly because of him and the night he was arrested he hit me so hard that I ended up having a concussion and yet he is telling me that he didn't mean it that it was an accident. But to have hit me 22 times in complete succession may have helped trigger this bout of bad health that I just came a through and might have caused some of the problems that I am continuing to experience.  I am sad and a little frightened because he is possibly getting out of jail in the next couple of weeks and then my safety is once again on the line.

Life is an uncertain road and filled with many obstacles and issues.  You shouldn't have to deal with abuse on top of it.  If you are being battered or abused then the only suggestion I can give you is to run and run far and fast because they don't change.  If they hit you once they will continue to do so, I believe it is an illness and they need help and so do you. I know one thing I can't go back to the situation I was in before I came to the hospital because I may not survive the next encounter with him.

Please understand that you are worth something and important to others in this world. You deserve to be treated with love, and respect and if they feel it necessary to get their point across by using their hands or force on you it really isn't worth it.

As always my hopes and dreams are with you,

Uncle B

Age is an issue

Facebook is a great way for people to keep in touch, track down people that have been absent from their lives for years.  But it is also a way for us to keep up to date on things that are happening to people we care about and what they are facing. I am one who hesitates to engage in conflict, but I am not the type of person who shies away from it when it comes my way.  The past several days I have been sitting at home and I have been thinking, reminiscing about my past, reflecting on what I have been through and planning for what I am am facing.  When a friend of mine shared pictures of himself and a simple statement about age, I saw it and thought about what was written and the pictures that were posted.  Then I started reading the comments and what I found troubled me a bit, because I knew exactly what the others were saying, I have felt the way that they are, were feeling. And in my youth I actually participated in the very practice that I am about to write about.

I like to think of myself as a pioneer, a person who puts themselves out there in the forefront and helps blaze a trail for others to follow.  How could I know that simple actions that I had in my youth would impact the lives of others so deeply.  Only now in retrospect can I see that many of the things that I did in my youth have had a resounding effect on others, and that I was one of the people that help inspire and bring about change throughout the LGBTQ community. Yet I am one of the people in this world that is causing a problem and a break in our community.  Though today my ideas are a little different then they were years ago, I still find that I am an ageist.  This is troubling to me because I have so many friends that are my own age and I care about them, but only once in my entire life did I date someone the same age or older than myself. 

Like many in the community I believed that it was my preference to date younger people, but in a sense it was a blinder that I was wearing, I was looking at the outside person and not the package as a whole.  I was one of those high maintenance queens that searched for perfection and could pinpoint ones flaws and faults within minutes of meeting them.  I was shallow and vapid though I thought that my opinions and thoughts mattered.  But a hard life lesson was soon to come my way.  It first struck me at the age of 24 and literally robbed me of my 20's and 30's and scared me mentally and physically for life.  It left me an outcast in the community that I helped mold and create, and today I stay on the fringes of it.  I still consider myself part of the gay community, but I refrain from many of the things that I should still be involved in.  Because somewhere inside of me is the deep abiding fear that I am not perfect and therefore not worthy of love and acceptance into the community that I love and dedicated my life to building.

When I got sick with cancer and then ended up with not 1 but 2 colostomy bags, I turned away ashamed of my body and my broken form.  I secluded myself and sought refuge in drugs and other means to escape the fear of persecution.  Yet, repeatedly human nature has surprised me and I have found friends and sometimes companions along the way.  I have more scares than most, have had more surgeries than most, and I still have the fear that I can't be accepted for me because somewhere in my mind I have decided that people in the gay community are discriminatory against those that don't fit the ideal image of perfection.  Though I have found and joined groups that accepted me limitation, scars and illness and all.  I have found friends when I never thought I would and I have found a sort of peace within myself that I never thought I would because of my battered and broken body.  I have even found people who don't see me as damaged but as bright and shiny star of hope and comfort.  These are things that I would never have thought possible.

But as I was reading my friends post and the comments I realized that there is still a problem with age in the community, that the young still look at those of us with age and have prejudice.  I have come to the realization that I don't look at people the way that I used to, yes I still look at physical appearance, but that is not the person. I have had the unfortunate experience to love a beautiful looking man who was very ugly and dark inside and that made me realize the truth in the adage "you can't judge a book by it's cover".  Yet, my own insecurities continue to hold me in a pattern. I am afraid to put myself out there again and hope that someone can look past the body and see the person on the inside.  I sit in the house day after day and I watching TV, reading and avoiding the truth.  I am lonely, and afraid, these are my truths. Yet, I continue on and do what is expected of me.

Yet, something that my friends wrote stirred in me a desire to once again get out there and make a change in my life.  In doing so I hope that I can inspire others to do the same.  Life for the gay population is different now then when I was growing up.  I have learned that the superficial is not the way to look at another person. Maybe there are others out there that have begun to see that too.  Maybe it is only something that happens with age and wisdom, but I hope not.  I think that if I were to step out of my comfort zone and do something about my situation I might others doing the same.  I am beginning to understand my limitations, accept my physical appearance, and instead of hiding the person that I am.  I am letting the world see the person that I have become. I live my life by example and have been doing so a long time. I write about my life here in the blog, and I talk about my differences to everyone I meet.  My story is one of survival, it is one of hope, and it is one of comfort.  I have lived with 6 terminal illnesses for a long time now and I have done so with courage, and against overwhelming odds. I do it with a smile and a positive attitude that everyone notices.  So, if I can change and look at my mistakes with grace, knowing that I cannot change what I have been and done in the past, I certainly can make adjustments and do something about it in my future.

So I have taken to writing this piece about age.  I have never let it define me or limit my actions. I have taken care of the things that I must and have been there when others have needed me. But that is not all to my life.  When replying to my friends post, I was reminded of the things that I have done in my past, the accomplishments that I have made, and the triumphs, as well as the defeats.  But in all of this I have been a motivator and an instigator for change.  I have been as I put it a pioneer and I have done things that at the time seemed inconsequential, yet had far ranging affects on my peers and those that have come after me.  I may not have been able to rescue everyone, I haven't been able to save the world, or help as many people as I had wanted too.  But in my life there have been thousands of lives that I have touched and I have helped and they are out there. They know what I have done for them and I am not asking for any praise or thanks.  I am looking to those people to help me spread the word that age is a number, physical beauty is a thing that fades with time, and that we must look at the persons heart, soul and attitude to find the things that we are missing in our own lives.  A friend found a sense of belonging and community in his church, he found acceptance and he also found a feeling of wholeness and completion the likes that I have never really felt other than in fleeting times.

Yes, beauty is in the eye of the beholder, but there are things that you need to think about before you wrinkle up your nose at the affections and attentions another casts your way.  Don't let their age be a detractor, because with age comes experience, wisdom and understanding and with those things comes the added bonus of compassion.  I don't know how to change the world or change how the gay community looks at one another, but I can tell you that without my friends of age I wouldn't have made it as far as I have in life.  I wouldn't have been able to face the uncertain times that I have come through or had the strength to persevere when all about me seemed bleak.  I have come through some dark times and very rough medical situations and I have become a stronger person because of them and their advice.  I never gave the appropriate thanks to those that came before me.  The ones that fought for gay rights, however, I have performed in the play Stonewall and celebrated those lives.  It is unfortunate that many of the younger generation know very little to nothing of the days of the 60's and 70's that gave rise to our "Gay Movement" of the 80's and the "Equality Movement" of the 90's and 2000's.  What I can honestly say is that I am grateful to have been a part of those times, I wouldn't change my involvement and actions in anyway. 

So here I sit and I want to begin a new movement, be a voice for compassion and understanding and hopefully change the way the younger generation thinks and feels about us the old guys.  I am tired of being a Yuck or Gross.  I am still an attractive person and I have more to offer today more now than ever.  I am stronger and wiser.  Age hasn't made me less fun, I still can keep up with the 20 years that still are in my life.  But I am not looking for love there anymore either.  I have tried repeatedly to find it in the younger generation and have been left wanting and disappointed.  I am tired of feeling like I am being used and unappreciated.  I am comfortable with who I have become and I have surprised myself that there are those out there that find me attractive and have shown some interest in getting to know me.  Honestly, with my medical situation the way it is I am not really hoping for any new developments, but I am learning that my time isn't always the right time.  I have faith in God and His plan for my life, and if He decides to put a new face in my equations then who am I to argue or find fault.  At least I know that I am not alone right now, I have friends, and people that care about me, and I am not far from my family if something happens that I should need them. 

Let me remind those out there that old is not ugly, old is not boring, old isn't anything but a state of mind.  I am one that can talk about this, I am almost 50 now, and I still do things that I did when I was in my late 20's and things I should have done in my 30's but because I had cancer and missed almost all of those years, it took me some catching up to do.  I have a unique perspective about things because I experienced a lot of them later in life than most.  I found knowledge and wisdom in older friends when I was going through some really tough medical issues.  Those friendships have enabled me to survive and adapt.  It is the job of us that lived through the 80's till now to enlighten those that are younger and teach them about the past and the hardships that we and those before us had to endure.  Gay pride is not a marketing theme, though lately it seems to have become commercialized, no it is a time to celebrate our heritage, our loss, and to remember those that were taken from us early by AIDs.  It is also a time to celebrate the victories that were won and the sacrifices that were made to get us to the place we are at today.  Not only do us of age have things that we can teach the younger generation, we can show them understanding and compassion, offer guidance, and wisdom and help them through the issues that they are facing.  Never forgetting that we still have a long way to go yet in the battle for equality and acceptance.  We have the moral obligation to unveil the myths and misconceptions that surround HIV and AIDs we need to honor the memories of the friends and family that we lost during the height of the epidemic. Plus, we need to remind the world at large that AIDs is still with us we are still loosing brothers and sisters still today to this disease.  Though it isn't the media focus that it once was we would be neglect in thinking that we have vanquished and won.  The war is still being fought, and many are still being persecuted because they have been diagnosed. 

Many of us are tired we have battled long and hard, created a better world for those that come after us, but we are not able to rest just yet, there is much left to be done.  I am reminded every day that I wake up that I am still here way longer than any doctor ever predicted I would be.  I have overcome some incredible odds and I am still fighting today.  We can't let the younger generations forget all that has come before, the heritage, the community, the bonding that we felt and developed in the 80's in the fear of the unknown disease.  Community centers were born, research centers organized and help organizations established that have become the norm.  We need to remind the young that many thousands gave their lives, tears, and suffering for these mediocre changes that we have finally received.  Yes today is a better place, there is a bit more acceptance in the world, but there is much hatred and bigotry still out there.  Our community still suffers from many such forms, and maybe there needs to be a movement inside our own movement that tries to foster change.  Ageism is a form of intolerance, and discrimination that we cannot and shouldn't allow to fester in our community.  We need to look beyond the sexual revolution and think towards a more unifying and holistic love of ourselves.  To look to our elders and still love them and accept them, to show respect and compassion.  Being gay isn't defined by sexual attraction alone, it is being comfortable with those that you are more drawn towards, who you can associate and understand better. We are different yes because of our desire to be loved and we enjoy sex with the same sex, but it goes beyond that I think or at least it does for me.  I feel more comfortable with women as friends, but I feel a kinship and bond with males that I cannot quite describe. 

The human heart has the capacity to love and bond to many different things, and people.  We need to understand ourselves better, look at our motivations, and think about what where we truly feel the most comfortable.  Age is a number, it doesn't define us.  It may limit us physically, but emotionally and mentally we are still those same 20 somethings that we once were in a much more experienced and worn package.  Most of us wear our age well and are proud to do so.  Every year that I am here I am thankful for.  I have worked hard to get here and I plan on hanging around a little longer, if I have to do it alone then so be it.  But, I don't think so there is someone out there looking for the inner me.  When they finally stop looking at the outer me and see the inside they will find what they are looking for. Until then I will keep trying to raise the awareness that age is not something to be afraid of, it isn't something ugly, it is a gift, it is a treasure.  Hopefully others will begin to see that we are of value still and we have things been through situations that can help them, we have lessons we can teach and we still have our voice to make change happen.

So from the age of 49 looking back, I remember the days when I was afraid of being 30, then 40, and of course 50.  But look here I am I have made it this far, have learned much, endured more, and I have something that I can help the world to understand and that is the human spirit.  I know how to give hope, how to inspire through living and comfort just by being there.  Life is a journey that doesn't end.  I can tell you that I am still going through some things even now, but in the end it will have made me that much stronger a person and will give me another lesson that I can teach another person.

So don't wrinkle up your nose at the attentions of those older men that admire you, take it as a compliment, get to know them, maybe just maybe you might find what you have been searching for and it was right in front of you the entire time and you just couldn't see it because of the blinders you have been wearing.  Age is beauty, a gift and something to be cherished.

As always my hopes and dreams are with you. Let me encourage you to live your life full with laughter, love and light.

Uncle B

Timing really is everything

You don't know how many times I shake my head in disbelief as I let opportunity and change slip through my fingers.  Now, today I am sitting here thinking about timing and just how important it really is in our lives.  How many times have you missed opportunities or relationships because your time is not the same as the other persons?  I know that this has happened too me so many times in my life and I have grown accustomed to settling for what has been left once that moment has passed. I couldn't have imagined a year ago that I would be a this place in my life, relying on others for help, rides and favors.  Even if I had, there have been so many things that I could have done had I just been careful and aware of my timing.

Today, I tried to get a dentist appointment rescheduled for several reasons, one because I have just gotten out of the hospital, two I really don't have transportation necessary to get to the appointment and three that asking my father for a ride has become very difficult.  When I called the dentist she told me that because funding was about to go away at the end of the month this appointment was really necessary if I wanted to get the work done that I need and have been approved for.  Once again that thing called timing.

I was speaking to an ex last night who has remained a very close friend of mine ever since we broke up.  He is moving to Philadelphia over the weekend and it troubled me.  See, I had come from Atlanta because my health was bottoming out and everyone thought that I was going to die.  But, when I got here I got better and pushed myself to get up on my feet and on my own.  I asked him then to come to Florida and begin again, but he wasn't really ready, and he kept putting it off.  Nearly two years went by and he finally had made a decision that it was time for him to change and get away from Atlanta, I had just gone through a very tough break up and ended up loosing my place to stay at this exact same time.  I thought we could figure it out and get a place together, but my health became a huge issue. It had been the start of the osteomylitis and the fracturing of my spine, and because I was back home at my parents house and had no place for him he ended up leaving and going to Jacksonville.  I ended up in a nursing home and then bounced around till I finally landed where I am at.  Our timing still way off from each other.  As I am writing this and thinking about what I am going through now, I wish things were different.  I really wanted him to come down here and at least be here while I go through these difficult health issues, but in a way that is totally unfair to him.  I need to do it for myself and maybe by myself.

I think about things that are going on in my daily life and I am not happy, I know that the person who is living with me is just here maybe in a way because he wants to be, but also due to circumstances and that isn't anyway to go forward.  I do dread being alone and being isolated.  In all honestly I have never lived alone before and I am not sure that I even know how.  I know that I need to sit down and talk with the person who is living with me now and changes need to happen.  But I am not sure what I really want nor do I have any real clue what he wants.  I just know that because of the tumor, life is going to get very difficult for me all over again.    I am not the most trusting soul in the world and I have pretty much no friends here in the Daytona Beach area.

Some people have uncanny timing and seem to glide through life effortlessly, I know that it is all a matter of perspective, but things seem to happen naturally for them.  I seem to never see the big picture until the time to act has passed.  In love and in life timing makes a big difference and impacts our daily lives in entirely different ways.  If you connect with some and they with you I suggest that no matter what is going on in your life, world or existence you owe it to yourself and them to explore it to the fullest.  Life is short and you don't want to live with regrets. Take stock of your situation and reach out to those you hold dear, and let them know it.  Don't use the excuse that the time is just not right, because if you don't act at that moment you may have lost it forever.   I am a big believer that we can create perfect moments for ourselves so we need use that ability to our advantage.

I can still remember when Bobby and I first met, we had just gotten off the train and were waiting for a bus to pull in to the station and take us where we needed to go.  We hit it off, found out that we had mutual likes and a definite attraction for one another.  He was homeless and I was just about to lose the place that I was living in, despite everything we managed to come together.  He kept telling me that he wasn't ready for a relationship that he had nothing to offer.  But the truth was we had one another and that was enough. Somehow we made it work and were together for 6 months or so before we let petty things get in the way such as drugs, addiction and a host of other things.  Since, that time we have never gotten back in sync and it seems that maybe our time will not ever come again.  Since, I am staying in Florida at least for a while and he is off to Pennsylvania at the beginning of the week.  Yet, somehow I have don't believe that never is an option, and I know that we will always be close friends.

I have to admit that I am lost right now, drifting on the waves of uncertainty and I don't know what to do to get my head on right.  Friends keep moving away or even dying and I wish that I had some people closer to me and who I could possibly talk to about the way that I am feeling, but unfortunately I don't. So I am at the hands of fate right now as I await the results of the biopsies and wonder which way I should look or turn too.  I have been in this location for 6 months and I am not happy, I feel isolated, lonely and afraid.  Where do I go?  Where should I turn?  I know that I am truly never alone that God is with me and has me in His hands but I spent much of the day home alone and been thinking and I know that change has got to come.  Though my days of adventure might be over for now, what should I do?

Any ideas?  Let me know,

As always my hopes and dreams are with you,

Uncle B