Open your mouth let's talk about it! HIV is still alive and Well!

I am sickened once again and want to bring this subject back to your attention.  We are living in a day where HIV/AIDS isn't mainstream media coverage anymore, but it doesn't mean that it has gone away, isn't a threat, believe me it is still there and ready to jump on anyone it can come in contact with.  Remember, HIV doesn't care who you are, your ethnicity, your social status, or sexual preference, it will infect anyone that it comes in contact with.  I recently saw an article on the web about Atlanta, how more people there are being diagnosed with Full AIDS versus HIV.  That means there are too many people neglecting themselves.  It is everyone's job to Know Their Status.  It not only protects the one being tested but those they love and have sexual conduct with.

This morning a friend of mine sent me a report from POZ.Com which states that 91% of HIV passes from those that don't know their status or who are not in care.  This is a tremendous percentage and something that we need to talk about.  The United States has gone from a state of panic and awareness to a place of complacency and silence.  This is totally unacceptable!  Something must be done, and I am calling on you to help me reach out and spread the word.  I would like to see the end of HIV in my lifetime.  I have a group of friends and we go out and speak all the time trying to end fear, prejudice and misunderstandings about HIV/AIDS.  There are too many young people today that have no idea how they can contract the disease.  Today's youth those that are ages 17-30 don't seem to have a clue how or where they can contract this disease.  It is so bad in the area in which I live that a friend of mine was terrified the first time he came over to my house.  He didn't want to touch me, use any of my cups or utensils for fear of the disease, I didn't know it then.  But, by listening to me talk to others, he soon learned that HIV/AIDS wasn't something that could be picked up casually like an online date for the evening.  No, he found out that it was a blood borne disease and could only be transmitted if one had some type of mishap or had sexual relations without protection.

Once he explained to me how afraid he had been when he first met me, and how I had helped educated him on the disease all without my knowing that he was scared mind you.  This made me realize that I was doing something right.  I don't have a problem opening up to others and telling them my story.  I reveal to anyone who will listen my disease and what it can do and how it can be prevented.  The group I spoke about earlier is called the Positive Champions Speakers Bureau, whose aim it is to end stigma associated with HIV/AIDS, but we also seek to educated others about the disease, we try to show and demonstrate in our lives that this disease can happen to anyone. Our group is a cross-section of those we represent.  We are composed of both gay and straight men and women, minorities, and magnetic couples.  We don't discriminate at all we have come together with the realization that there is still too much ignorance in the world about this disease.  We all have different backgrounds, educations, religious preferences, nationalities  and races.  We are the changing Faces of AIDS.  No one on this planet is exempt from exposure and once you realize that the job of education and training becomes a much larger challenge.

Much to my dismay many of us who are infected find it hard to talk about our illness.  Why are we so shy when it comes to talking about HIV?  Many of the reasons could be: because of fear, fear of rejection, fear of being ridiculed, fear of being made and example of, fear of people making fun of us. Whatever it is that is keeping us from talking about it needs to be address and the only way to do that is by educating and personalizing the stigma associated with HIV/AIDs if we can rid ourselves of this fear we might more effectively reach a broader spectrum of people.  Fear and hysteria were hallmarks of the early years of this disease.  Widespread public panic forced pharmaceutical companies to invest billions of dollars into research, the government was pushed into action by appropriating money toward research, and the CDC was born.  Back then the new media broadcast stories about people suffering with AIDS, it became a household name.  But, fear ran wild in those days because there wasn't a clear understand of what the disease was or how it was transmitted.  It was commonly mislabeled as the Gay Disease, Gay Cancer, GRID and so forth.  However, this epidemic wasn't isolated to one specific group it soon moved to the rest of the population.  It went from an outbreak to and epidemic to a pandemic in less than 20 years.  There is still no cure for the disease but new testing has made early detection possible and new medications have come out that make it easier for an infected individual to live longer and stay healthier.   Times have changed and so have the attitudes of the people, but it is important to understand that just because these advancements come about doesn't mean that people aren't still dying from the disease.  Yes there is still money going into research, and everyday more and more information comes out about the virus.  But, it isn't news worthy, doesn't get the headlining like it used too.

Back in the 1990's a memorial quilt was made each panel was exactly 6' x 3' and was decorated by the people that loved and missed the person whose name was on the panel.  It used to be displayed all over the country at Gay Pride events.  Today, it has been retired and portions of it are displayed in Washington D.C. and other places.  Gay Pride events have become exaggerated craft fairs, concerts and commercialized, some education goes on but it is the secondary focus I am afraid.  Does the youth of today that visit these Pride events even know that there was a memorial AIDS Quilt?  Do they have any idea of what it was like to watch friends and family pass away with lesions and extreme complications to this horrible disease?  I don't think they do.  Those of us that are old enough to have lived through the 80's and 90's recall all of these things and so much more. We can tell you that the reason why the panels on the quilt were exactly 6' x 3' because it was the exact measurement of a coffin.  We were burying those we loved.  A whole was ripped into our society, loss and fear were rampant.  I would also hazard to guess that these younger generation kids don't even understand the significance of Gay Pride, and why we actually celebrate it yearly.  Who out there remembers the Stonewall Riots, the beginning of the Gay Pride movement, how we struggled for acceptance, equality and equal rights.  As I have said earlier times have changed, and we the custodians of knowledge have done a very poor job in educating those that come after us about the beginnings and reasons why we have some of the celebrations and memorial services that we do have.

If we can ever hope to get a handle on this disease and make sure that it finally ends within our lifetime is to take a bigger active role in this education process.  We have to shake these fears, and open our mouths, we must tell anyone who will listen about HIV/AIDS, dispel the lies, fears, and ignorance that surround this disease.  It can only get worse if we sweep it under the carpet and try to hide it. Does it really matter that people are living longer and are living healthier with the disease today?  Of course it does, but it doesn't end the hatred, fear, persecution and other stigmas associated with the disease.  Only by being transparent and letting the world know that we won't accept and tolerate these types of behavior anymore.  Plus, we need to emphasize the importance of getting tested regularly and KNOWING YOUR STATUS.

Please don't hide your head in the sand, it is everyone's responsibility.  How many of you know that 3 out of every 5 people you pass on the street are HIV positive and don't even know it.  Do you realize that in the United States that every 7 seconds another person is being diagnosed with HIV?  It is staggering to think about these things and yet so little is being done to educate our young people.  I live in Daytona Beach, Florida, and I live very close to Bethune-Cookman College which resides in the heaviest hit zipcode in Florida of HIV Infection.

Please take the time and talk to anyone around you who will listen to your story. You don't know who around you might need to be inspired by you and might gain hope just by hearing your testimony.  Encourage everyone you know to get tested regularly and to Know their Status, it might not only save their life, but those that they love and care about.

As always my hope and dreams are with you,

Uncle B

Bigger than Life

Today has been all about a very dear friend of mine that I will never forget.  Someone that never had much but was happy and content with everything she had.  She wasn't self-conscious, vain, or envious. She was brutally honest, courageous, and magnanimous.  Was never to busy to talk, had great shoulders to cry on, and a smile that lit up the room.  She always saw the good in people, never found fault, never stayed down for long and always had a kind smile, warm heart for anyone that came into her life.  She was a very dynamic force and one that couldn't be contained in one body.  Maybe that is the reason why God took her so young!

Her memorial service was today and so many people got up and spoke her praises.  She had a personality that was larger than life.  She wanted to change the world and strove to do so with her volunteering with the Positive Champions Speakers Bureau.  All she ever wanted was to change one persons life, to reach one person with her story. But she impacted each and everyone of us that knew her. Mary was the embodiment of warmth, sun, caring, love and sharing.

She traveled all over telling her story over and over again to groups and individuals alike. She didn't care what others thought, she only cared about what she was fighting for.  She dreamed of a world where there was no such thing as HIV or AIDS and fought towards that end.  She would make you laugh, cry and even shake your head in disbelieve because she was bold and courageous.  Whatever she felt she said.

Souls are attracted by vibration and not by looks, and Mary taught me that.  It didn't matter to her what you looked like, or how you dressed we were all the same to her.  When two souls resonate together they recognize each other and form a bond of friendship and love.  I still remember how she flirted with everyone and didn't care what they thought about it.  She lived in the moment and nothing could take that love of life away from her.

I was fortunate to live close to Mary.  I got to see her a lot, we also talked a lot on the phone and she helped me through some very difficult times in my life.  She had a light inside of her that drew people close, her personality was such that once you were in her orbit you were her friend.  That light inside of her could drive away the darkness and for a brief moment when she was around you knew that anything was possible.

Yet, in the end God chose to take her from this earth and bring her home.  I have mixed emotions about that.  See, I depended on her guidance and her words of encouragement when my life got into some tough spots.  I don't have anyone like that anymore, she was it.  I am going to miss our talks and how she boosted me up and never tore me down.

So what would I like to say to Mary?  Well, I would tell her thanks for taking the time to teach me how to embrace my own Awesomeness and reminding me that everything we do, is building us towards something else.  She saw ahead of her that there were endless possibilities and  opportunities to share her testimony and her story.  When I say that Mary was larger than life, I mean exactly what I have said. She was bigger than life, she radiated warmth and acceptance with the greatest of ease and she gave great big bear hugs.  She wasn't afraid to touch you, nor tell you about yourself if you were in the wrong.  She lived in the moment and by doing so she achieved what most of us envied.  An openness to talk, a freedom to express exactly what she needed to when she needed too. She was comfortable with herself, her situation, her looks, and everything that made her up.  I admired her honest, conviction and courage and I hope that just a little of each of those has rubbed off on me.

She gave hope where there was fear, she gave love unconditionally and expected nothing in return.  Though she may be gone, I don't think it will ever be possible to forget her. She had a great impact on so many of our lives.  For that alone I know she will live on forever in each and everyone of us.

Thank you for keeping her family and friends in your prayers.  What more can I say, Mary saw a world in which change was possible and she struggled to help bring it about.  I can't tell you how grateful I am that she chose me to be a part of her family.  She helped and loved beyond any situation.  She was so full of light and life that it was nearly blinding to look at her at times.  She knew what she wanted and set about trying to get it. A spirit of a lion and the heart of a lamb.

I am going to miss you so much, but I know now that she is with me everywhere and I remember the words she told me when my partner left me and did all those things to hurt me. "You deserve better than that Bryan, you deserve to be happy".  Now, I know that the secret to happiness is found only with ourselves and no where else.  Thank you for reminding me of that.  I am jealous or even envious of her, see it was so easy for her to talk, to get her story out. She wasn't afraid, because there is no reason to fear the truth.  Again, thank you for the lesson Mary!

Oh yes, I have a voice and I write in that voice, but speaking I tremble on the inside.  She told me over and over again, to just be yourself and it will all work out. Guess what she was right and I am still here today.  She didn't have transportation much of the time I knew her, but it didn't limit her much. She still made it to Group and Positive Champions meetings.  I don't think I have ever seen her discouraged for more than a minute. She never gave up on anyone!  She always saw their goodness and she brought that out in all of those around her.

When I say bigger than life that was Mary. Yes it was and I think that she burned so brightly to everyone around her that her poor body just couldn't handle all of it.  When I tell you that she loved, she did!  She loved Gay Men! She Loved Children! She Loved to talk! She loved to hug everyone! So today was Mary's day and will remain for me till tomorrow. Today was a day that was sad, somber, yet funny and exciting as well.  I have a heavy heart because of the loss of my friend but a big ole smile on my face as I sit here and remember.

You maybe wondering why I am telling you all about my friend and her life and what she meant to me.  So, let me tell you that there are lesson here that you can learn from. Something each and everyone of us can use in our daily lives.  You may not believe me, and I am not sure that I do yet myself, but I think as all of us gathered today to remember our dear friend something magical and wonderful happened.  We were reminded that life is fleeting, and that we need to cherish those around us.  We need to surround ourselves with family of our own choosing, be inclusive of everyone, fear nothing, accept everything, live in the moment, cherish the life you have and what you got.  Take back your power, live for yourself and throw your hands and heads up in the air, don't care what others think of you. Just do you and everything else will fall in place.

What can you learn from Mary?  Everything there is to know about life and living.  Learn something new everyday, share it with those you love and those you don't know. Live in the moment, experience everything with baby fresh eyes, those eyes of wonder that still see the magic in the world.  Keep those you resonate with close to you, because like souls attract like souls.  Stay positive, focused and tell your story to anyone who will listen.  Everyone has a story to tell and you never know where a casual conversation might lead you.  Seek the goodness in others, freely give kindness to those you love and give love to those that love you.  Speak your mind and your heart will follow, don't filter out anything.  Someone described Mary today as having the gift of Transparency and I think that is a place where we should all strive to be.  You never had to guess what Mary was thinking or feeling you could see it and feel it.  That is what is meant by being transparent.  We are all given a voice and we must learn how to use it. Your story is unique just as was mine and Mary's but there might be someone out there that needs to hear it. You may save someones life, or your words might heal their hurting soul.  Your story could change 1 persons life and like Mary said "If I can reach or help or change one person than I have accomplished my task".  Mary changed a lot of lives, so many hearts, and will live on with each of us who knew her.

But, now my friends as you read what I am writing about  her, she will also live in you.  You may not have met her, you may never have seen her. But you know her spirit, her heart, and the magical way she changed the lives of each and everyone of us that came in contact with her.  Please take away from this entry if nothing else, one person can inspire change in the world. Yes, you can. All it takes is you to find your voice, tell your story, and live your life like Mary lived hers.  Trust me.

As always my hopes and dreams are with you!

Uncle B