Rebuilding from the past

When I first moved to Florida I came with nothing except the clothes on my back, literally.  I had on a t-shirt and a pair of sweat pants and nothing else except a broken cell phone.  During my first 8 months I experienced some setback such as going into the hospital literally 2 days after I got here.  I was in there for 14 days because my colon ruptured in 2 places while I was in there.  However, I was able to make a recovery, get a job and was able to get clothes that I needed and I was able to purchase things that I wanted along the way.  I got a job, bought a car, and got my own place on top of all of those things.  I can't say that I was happy but it didn't take me long to get furniture.  Luckily there was a place called Our Father's Closet not too far from my house that gave me a sofa bed, and some other items like a coffee table, end tables and a lamp.  I got a TV from a pawn shop and I was on my way.  Over the past 6 years or so I ended up loosing several places where I had lived, ended up homeless and most of my stuff ended up in storage units from Florida to Pennsylvania, which I had successfully kept up with till last summer when I had an unfortunate run in with the law.

I was on the street literally from July till December.  When a friend of mine reached out and opened up his home to me and allowed me to come and stay with him and his partner.  I am extremely grateful to Travis and Demario for allowing me to come into their home.  Life hasn't been kind to me if the truth is to be told.  Most of you already know from reading and following my blog that I have several medical issues and the list seems to be growing longer each passing month.  However, the month of February I took the time for myself and I started rebuilding all of the things that I had lost over the past several years.  This month I took money and bought myself a TV and I also got myself a computer and a printer.  I even purchased a tablet, however, my mother being in a similar situation to mine health wise, I have decided that I am going to send her the tablet that I have bought and wait for a little bit and before I buy another tablet.  It might take me some time but I know that with all the trips to the doctors and labs that need to be done that I am going to continue to be busy till I can get all of these surgeries done and over with that they are saying that I am needing.

I started going to pain management and I am finding that the medication that they have me on now isn't really helping me all that much.  I seem to be taking more and more just to get through the day with out any pain.  So I expressed interest in getting on Medical Marijuana but currently at the price point that they are charging here in Florida it really puts it out of my reach.  I am not sure what I am going to do.  I am pretty sure that my friends aren't going to want me staying with them forever, and I am sure that it would be better to get out on my own.  But, with only being here a few months I am still not sure of my way around.  My friend Travis grew up here and is very familiar with the area so I rely on him pretty heavily.  I just fear that I am getting on their nerves and making them uncomfortable in their own home.

I have been here exactly 2 1/2 months and I am hoping that in the next 2 or so that I will have enough money saved up that I might be able to get out on my own.  However, this is something that I am trying to work on.  Though with every turn something seems to come up and I end up spending money that I wasn't planning on.  My mother's cell phone died totally and wouldn't turn on at all.  This was a necessary expense and I was glad I was in a position to get her a new one.  But since I have been here I have been running into all sorts of obstacles.  Like the UF Health here in Jacksonville is not in my network but the one in Gainesville is.  I am frustrated by this.  I am also having trouble with Ryan White here, for the past 7 years they have been paying my copays to the VA and here in Jacksonville they won't.  I am not sure what I should do and starting next month the VA is going to start garnishing my check.  Further, my partner had me bail him out of jail and then missed court. So now the bondsman is coming after me for the 3000.00 so that is going to end up coming out of my check.

So it seems for every step that I take forward, I end up falling 20 steps behind. I am not sure if I am going to recover from this fiasco altogether.  I figure that during this time when I have the little extra funds available to me that I should purchase the things that I want and need before all the garnishments hit my Social Security check.  That way when they do come I will not be needing things, I will have already built them up from.  My next big expenditure is going to be the installation of my own internet here at the house that way I don't have to rely on my friends totally for everything.  Sometimes I just feel like they think that I am trying to take advantage of their kindness and I don't want to overstep my bounds.

Overall, I am feeling great about the accomplishments that I have made since I have been here and the change of environment and scenery have really helped me maintain focus towards furthering my goal.  My big thing is that I am really trying to fit in and at times I feel like I am keeping my friends from the things that they are needing to do because they are worried about me.  Over the next month or two I am hoping that I will have either saved enough money to get a vehicle or a place of my own.  That way they won't think that I am wasting my money on things and not making sure that they are taken care of.  I also need to figure out how to work around my direct deposit issues with the credit union that I am a member of.  I like the fact that I can transfer funds directly from my checking account directly onto my credit card and not have to worry about incurring an fees or late charges.

That is another thing that I have accomplished. I was able to get myself 2 credit cards.  I am hoping that I will be able to begin rebuilding my credit and work towards getting myself totally back on my feet.

Right now I am worried about my upcoming appointment with the neurosurgeon I am waiting to see what type of treatment he is going to recommend. At this point I have had 3 MRIs and I have to schedule a PET scan tomorrow.  I am struggling to keep up with all of my appointments and getting to and from them conveniently.

Please keep me in your thoughts and prayers as I set out on rebuilding my life from the remnants of my past.

As always my hopes and dreams are with you,




Uncle B

Learning to be

I am searching for an elusive truth, trying to learn how to be comfortable being alone. This is a very elusive truth, something I cannot seem divine on my own. I have always defined my life and happiness through taking care of other's. By always putting someone's else's need above my own. To surround myself with other damaged people that I thought needed my help. Yet, what I was doing, it seems has been setting myself up for failure every time. I always thought that I was doing good by helping people. My lesson this far has just taught me that I am scared of being alone, of facing my illness with no one by my side. To exist by myself, afraid that I would die alone and unwanted.

What I never considered is that even though I may not be in a relationship or defined by someone else's need. I am clearly not alone in life. I have friends and family who care. I may not like being by myself, I have discovered that even when surrounded by others I can still be alone, feel unwanted, and terrified that someone would not be able to accept me for the person I have become through all of these surgeries.

It seems that if I look at my life closely and be honest with myself. I haven't let myself be defined by another's need, love and happiness as much as I have by my own fear, my illness and my own perceived idea of not being whole, of being broken. None of this is healthy if I want to be 100 percent honest. I lost myself over and over again. In relationships that couldn't possibly last that were held together by need and dependence.  What I really need to comprehend is that it's okay to do things by myself. That I can survive being on my own if that is what I really need to.  To learn to sleep by myself again and to accept that I cannot change my condition and even if I could.

Sometimes I wonder what my life would have become if I had not gotten sick when I did. But the one thing that I can be absolutely sure of is that you can't live your life and move forward by clinging to what ifs and could have beens. Acceptance is the only real way that we can truly moved forward and make progress. Living in the past and looking backwards hinders from taking a forward step. I have never heard of anyone ever making forward progress in their lives by carrying baggage. Trying to carry your past baggage forward will tire you out thoroughly before you can get anywhere.

So for now I am going to live each day one at a time. Accepting my limitations and realizing what I can change and what I can't. I must learn to live within the constraints that my medical condition, doctor appointments and other aspects of my life that are always constant.  I am hopeful that some aspects of my life will start to improve the longer I continue learning, growing and writing. I think that over the next month or two something's in my life are going to improve but like everything it is going to take time. There are no short cuts and I will have to climb one step at a time.

As always my hopes and dreams are with you.

Uncle B

Amazing

It is surprising how God works in our daily lives. I was feeling a sense of hopelessness and despair because I have been up here in Jacksonville all by myself.  Since I got here back in December, it has been an endless parade of doctor appointments and tests. This in itself made feel very alone and it hasn't left anytime for me to make any new friendships since I have been up here. But, all of that changed about 2 weeks ago. In just one day I got a direct message from God in a very unique experience in how these 3 people came into my life in the matter of just two days at the beginning of February.

But before these 3 individuals were to come in to my life, I made one new friend on January 18th. She also came into my life in a strange way but was just the person I needed that day and I am very glad that she was there for me when I needed a shoulder to cry on an ear to bend when my partner didn't get on the bus and never came up from Daytona Beach. She was also the person who took care of me that first afternoon of chemotherapy and helped me as I choked on food and threw up all the way home from Gainesville. She wasn't even supposed to be my driver that day, as a matter of fact she just was in the right place at the right time to take me to my appointment.  Because the original transportation driver decided not to take my trip and tried to cancel my trip. Luckily Tara was in Jacksonville and was available to take me to my appointment, even though we were late getting there. I believe God put me and Tara together that day, not only because I was going to need her, but she needed me as well. I got to share my story with her and I found out that she was going through a difficult time in her life as well. We have kept in touch since our meeting that day and I am very glad that we hit it off so well.

On February 1st I went to have some MRIs done. But much to my disappointment I was unable to get them done that morning, because my kidney levels were not good enough for me to be able to tolerate the contrast that the doctor had ordered. Though, had it not been for my tests being cancelled that I was ready to leave the imaging center early. Which put me in the direct path of a really cool lady whose name is Elaine. She was outside looking for a lighter and we ended up going on a little adventure together while we were both waiting for our transportation to come and pick us up.  Because I had been waiting for my ride to come and get me and they were very late, Humana sent another driver to get me.  As I was being driven home I talked to the driver telling him that the radiologist at the imaging center had told me that I needed to go the hospital that my kidney function indicated that I was experiencing renal failure. I honestly don't remember his name, but the more we talked together it became apparent that there was a reason why I  was in his car that afternoon. His sister-in-law had just been discharged from the hospital under hospice care. Apparently, she had given up all hope and had surrendered to the diagnosis that the doctors had given her that she was going to die.  He told me that he really needed to hear my story and history. That it was exactly what he needed to share with her to give her hope and might actually get her to change her mind and decide to fight for her life. I told him to tell her that God is the ultimate physician and only He could decide when it was her time to leave this world behind.

That very afternoon I had already spoken to Dom, and was telling Travis what the radiologist had said about me going to the hospital. Travis's partner was already in the hospital fighting for his life against pneumonia and a collapsed lung.  His recommendation was to call an ambulance and get to the hospital.  Trying to procrastinate and take my time I called my mother and was talking to her on the phone telling her that I needed to go to the hospital. She encouraged me to go and stop waisting time. However, I knew that I was probably going to get admitted so I packed clothes and colostomy supplies. This kept me busy and prevented me from laying down which apparently was a good thing because the ER doctor told me that had I taken a nap that afternoon I would have died in my sleep because my blood pressure was so low my heart would have just stopped while I was sleeping.

The final person whom I was bound to meet is Richard who was my food service attendant that would take care of all of my food orders while I was in the hospital. He was also one of the only people who I had the ability to talk to multiple times a day and kept my mind off of what was going with me. It also gave me some distance between me and my feelings of being abandoned and having to deal with this crisis on my own.  I will admit that I still was upset and angry that Dom isn't keeping in touch with me like I feel he should.  He still isn't talking to me every day like I think he should since that was his promise to me if I bonded him out of jail. However, I should have known that he never means what he tells me when he is in jail, it never works out.  He begged me to keep him out of trouble, but he left and never came back after he had me buy his return trip ticket. Then to top it all off he never went to court and I have no idea what's going to happen now. I don't know if the bondsman is going to come after me for the money. I am not even sure if they can, I think that I might have a fight on my hands when it comes down to it.

Can you see how amazing God is? How that He brought just the right people into my life at the right moment?  How great these interactions have been on me and my well being?

I believe that if you look carefully at your life you will find that God is working in your life and performing miracles on your behalf daily.

As always my hopes and dreams are with you.

Uncle B